Welcome To PAC2

Welcome to PAC2!

We are an advocacy community on a mission to raise awareness of childhood cancer. We strive to take ACTION as

 "One Voice United Against Childhood Cancer"!


PAC2 - 6,0154 members

 Childhood Cancer Petition - Another Inconvenient Truth 46,814 signatures

PAC2 Facebook

13,000 followers

Contact PAC2

Take Action

  1. Help PAC2 grow: Invite your friends.
  2. Learn that the American Cancer Society and LLS fund very little childhood cancer research.
  3. Learn: Little Patients, Losing Patience is an excellent summary of the issues the kid cancer community faces.
  4. Learn: "Curing childhood cancer is the equivalent of curing breast cancer..."
  5. Think: 80% of kids live 5-years -- but is the real, long-term "cure" rate 66%?
  6. Read about Federal funding of childhood cancer research.
  7. Participate as an individual in the My Childhood Cancer project
  8. Read the latest childhood cancer news here.
  9. Hope

Childhood Cancer News

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News from around the childhood cancer world....

We're honored to share the February 2014 news from around the childhood cancer community: PAC2 - February 2014 Update.

Here's some examples of the stories:

  • #SaveJosh - Josh is a 7 year old who has already fought cancer 4 times.  After a BMT he developed a virus at St. Jude and needed a drug, under Compassionate Use, to live.  The drug company, Chimerix, is currently conducting trials and claimed they dropped out of the Compassionate Use program 2 years ago and needed the inventory for the trial.  Well, Josh needed the inventory to live.  Family reps reached out to us and the Coalition Against Childhood Cancer and others, and soon a highly public campaign was on to get Josh the drug, along with backroom negotiations to make it happen.  Originally seen on CNN Sunday night, the campaign picked up speed and soon, it was announced that Josh would get his drug.   Great news for Josh.  Forbes does a good writeup - Company Makes Drug Available To Ailing Boy Following Public Outcry.
  • Gabriella Miller and the passage of the Gabriella Miller Kids Research First Act.  Although unfortunately she's not here to, (what's the right 'celebration'), nod her head in acknowledgement, Congress took her advice to 'stop talking and start doing' with the passage of the Act which will direct to research $126 million over 10 years from a rarely used fund used to finance national political conventions. The money will go to the NIH common fund, supporting research into childhood cancer and other pediatric diseases and developmental disorders.  (so now the childhood cancer community will advocate for funding from the Act, along with other childhood disease groups).  A step forward, and: Thank you Gabriella from kids everywhere.

Read more at PAC2 - February 2014 Update.

We've created a new chronic illness

Post-treatment care from doctors that understand the problems of childhood cancer survivors is critical to the health and well-being of all childhood cancer survivors. But are we doing a good job? New survey data out today presents some disappointing responses from doctors about their experience during post-treatment care of childhood cancer survivors.

  • 2 out of 3 doctors surveyed are "uncomfortable" caring for childhood cancer survivors
  •  Only 1 in 10 of the doctors professed any knowledge of survivorship guidelines (www.survivorshipguidelines.org)
  •  3 out of 4 doctors never received a summary of treatment history

Read more at "We've created a new chronic illness"

Amber Larkin, of Noah's Light Foundation at TEDTalkx Orlando

Childhood Cancer

Childhood Cancer - Long-Term Outcomes

This PAC2 article estimates the likelihood of four life-long outcomes for a child diagnosed with cancer.  These are the projected results:

  • 22% live at least 30 years after diagnosis without chronic health conditions
  • 25% live at least 30 years but face mild to moderate chronic health conditions
  • 19% live at least 30 years but face life-threatening or disabling chronic health conditions
  • 34% die within 30 years of diagnosis. 


Every day 7 children die from childhood cancer within five years of being diagnosed AND every day 5 children that have survived 5-years from diagnosis die from the original cancer, a secondary cancer, or other long-term effects.

Click to read more: Childhood Cancer - Current Long-Term Outcomes

PAC2 on Facebook - all the latest activity in the childhood cancer world

 
 
 

Coalition Against Childhood Cancer

PAC2 is proud founding member of the Coalition Against Childhood Cancer!

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Kellz Kelly is now a member of People Against Childhood Cancer
Thursday
Jim Warren updated their profile
Thursday
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"Hello. How do I find Susan Swafford, please?"
Apr 14
Jim Warren is now a member of People Against Childhood Cancer
Apr 14

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