Welcome To PAC2

Welcome to PAC2!

We are an advocacy community on a mission to raise awareness of childhood cancer. We strive to take ACTION as

 "One Voice United Against Childhood Cancer"!


PAC2 - 6,182 members

 Childhood Cancer Petition - Another Inconvenient Truth 46,832 signatures

PAC2 Facebook

13,500 followers

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Take Action

  1. Help PAC2 grow: Invite your friends.
  2. Learn that the American Cancer Society and LLS fund very little childhood cancer research.
  3. Learn: Little Patients, Losing Patience is an excellent summary of the issues the kid cancer community faces.
  4. Learn: "Curing childhood cancer is the equivalent of curing breast cancer..."
  5. Think: 80% of kids live 5-years -- but is the real, long-term "cure" rate 66%?
  6. Read about Federal funding of childhood cancer research.
  7. Participate as an individual in the My Childhood Cancer project
  8. Read the latest childhood cancer news here.
  9. Hope

Childhood Cancer News

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September 2014 - #SteppingUpTogether

we didn't jump any fences, but the childhood cancer community sure took some leaps and rocked Washington, DC this week.....

On Thursday our friends at Hyundai Hope On Wheels hosted the Inaugural Hope on Wheels Thought Leaders’ Summit bringing together advocates, children, parents and many of the 36 Hyundai Research Scholars who Hope on Wheels awarded a combined $9 million in grants this year.
 
Friday morning, Coalition Against Childhood Cancer President Vickie Buenger introduced Reps Michael McCaul and Chris Van Hollen at the 5th Annual Congressional Childhood Cancer Caucus.  Dr. Francis Collins, the head of National Institutes of Health (NIH) gave us insight into how we can work together, and we heard from drug industry reps who want to help.
 

From there, it was on to The White House where we engaged with Harold Varmus, the Director of the National Cancer Institute, and others on how we can do better for children with childhood cancer. A big thanks to the White House Office of Public Engagement -- the community looks forward to continuing work with you on our discussions with NCI!!!

On Saturday, after a meeting hosted by the Alliance for Childhood Cancer bringing together many in the community to discuss goals and collaborations, it was on to CureFest for Childhood Cancer and an amazing opening event and evening at the Nationals Stadium.

(The National Angel Quilt features images, names and ages of children who have lost their battles with cancer, it keeps growing and right now that's about the number of kids killed by cancer every month)

Then, as the sun set the community regrouped in front of the White House, held such a moving ceremony, and turned the White House Gold in honor of our children, and in defense of all children.


On Sunday the childhood cancer community took over the National Mall and Memorial Parks, celebrating our children, honoring those not there, and continuing to collaborate on the NATIONAL MOVEMENT THAT WILL STOP CHILDHOOD CANCER!

There are literally hundreds of people who made all this happen, and our heartfelt gratitude goes out to every one of them.  But we can say for sure that they didn't do it for the thanks, they did it for the kids.

September 2014 - #SteppingUpTogether
— in Washington, District of Columbia.

 

National Cancer Institute Names UTHSCSA Pediatric Hematologist-Oncologist to Council of Research Advocates

In a big step forward, ped-onc doc and childhood cancer survivor Greg Aune has been appointed to the National Cancer Institute Council of Research Advocates. Announced Friday by NCI Director Varmus, this appointment is designed to help align the interests of childhood cancer advocacy groups with those of the NCI. “I hope to encourage a meaningful dialogue regarding the future funding priorities for pediatric cancer,” said Aune. “I’d like to direct the obvious passion of these groups towards efforts that resonate with the NCI and move the field of pediatric cancer research forward.” Read more here - National Cancer Institute Names UTHSCSA Pediatric Hematologist-Oncologist to Council of Research Advocates

Childhood Cancer

Childhood Cancer - Long-Term Outcomes

This PAC2 article estimates the likelihood of four life-long outcomes for a child diagnosed with cancer.  These are the projected results:

  • 22% live at least 30 years after diagnosis without chronic health conditions
  • 25% live at least 30 years but face mild to moderate chronic health conditions
  • 19% live at least 30 years but face life-threatening or disabling chronic health conditions
  • 34% die within 30 years of diagnosis. 


Every day 7 children die from childhood cancer within five years of being diagnosed AND every day 5 children that have survived 5-years from diagnosis die from the original cancer, a secondary cancer, or other long-term effects.

Click to read more: Childhood Cancer - Current Long-Term Outcomes

PAC2 on Facebook - all the latest activity in the childhood cancer world

 
 
 

Coalition Against Childhood Cancer

PAC2 is proud founding member of the Coalition Against Childhood Cancer!

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Latest Activity

Theresa M. Collins posted a blog post
Dec 16
Bobbi Meehan is now a member of People Against Childhood Cancer
Dec 12
Theresa M. Collins posted a blog post
Dec 11
dave callahan updated their profile
Dec 7

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