Welcome To PAC2

Welcome to PAC2!

We are an advocacy community on a mission to raise awareness of childhood cancer. We strive to take ACTION as

 "One Voice United Against Childhood Cancer"!


PAC2 - 6,182 members

 Childhood Cancer Petition - Another Inconvenient Truth 46,832 signatures

PAC2 Facebook

13,500 followers

Contact PAC2

Take Action

  1. Help PAC2 grow: Invite your friends.
  2. Learn that the American Cancer Society and LLS fund very little childhood cancer research.
  3. Learn: Little Patients, Losing Patience is an excellent summary of the issues the kid cancer community faces.
  4. Learn: "Curing childhood cancer is the equivalent of curing breast cancer..."
  5. Think: 80% of kids live 5-years -- but is the real, long-term "cure" rate 66%?
  6. Read about Federal funding of childhood cancer research.
  7. Participate as an individual in the My Childhood Cancer project
  8. Read the latest childhood cancer news here.
  9. Hope

Childhood Cancer News

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This is where we post most often....

National Cancer Institute Names UTHSCSA Pediatric Hematologist-Oncologist to Council of Research Advocates

In a big step forward, ped-onc doc and childhood cancer survivor Greg Aune has been appointed to the National Cancer Institute Council of Research Advocates. Announced Friday by NCI Director Varmus, this appointment is designed to help align the interests of childhood cancer advocacy groups with those of the NCI. “I hope to encourage a meaningful dialogue regarding the future funding priorities for pediatric cancer,” said Aune. “I’d like to direct the obvious passion of these groups towards efforts that resonate with the NCI and move the field of pediatric cancer research forward.” Read more here - National Cancer Institute Names UTHSCSA Pediatric Hematologist-Oncologist to Council of Research Advocates

Wow....

Look at the list of speakers at the upcoming Coalition Against Childhood Cancer (CAC2) Annual Summit......‪#‎collaborationrocks‬.

CAC2's program will include the following confirmed speakers and panelists:
Spotlight on Survivorship
Dr. Greg Aune
Pediatric Hematologist-Oncologist UTSA Health Science Center
and Childhood Cancer Survivor
Presentation:
“The Lifelong Burden of Successful Childhood Cancer Therapy:
From Bench to Bedside and Beyond”
Spotlight on Boundary Spanning Collaborative Opportunities
David Pugach
One Voice Against Cancer
Dan Smith
Patient Quality of Life Coalition
Jennifer Bernstein
Rare Disease Legislative Advocacy
Jon Retzlaff
American Association for Cancer Research
Rally for Medical Research
Featured Panel Discussion
“Opportunities and Challenges in Drug Development for Pediatric Cancers: Continuing the Dialogue”
Moderator
Dr. Jeffrey Skolnick
Vice President of Clinical Research, Tetralogic Pharmaceuticals
And CAC2 Member
Dr. Brigid Bradley-Garelik
Director Oncology Global Clinical Research, Research and Development
Bristol-Myers Squibb
Michael Trigg
Oncology Scientific Advisor
Bristol-Myers Squibb
David Bettoun
President, HaRo Pharmaceutical and CAC2 Member
Spotlight on Research
Dr. Crystal Mackall
Chief, Pediatric Oncology Branch at National Cancer Institute
Topic: Current State of Immunotherapy in Childhood Cancer Research
Other Invited Speakers
(confirmation pending)
Jo Dulay
Advocacy Relations
Genentech

Heck, for that matter, look at the list of childhood cancer groups working together to imagine a world without childhood cancer at CAC2:

1. 3/32 Foundation
2. A Kids' Brain Tumor Cure Foundation
3. Alex's Lemonade Stand Foundation
4. Andrew McDonough B+ Foundation
5. Arms Wide Open Childhood Cancer Foundation
6. Bear Necessities Pediatric Cancer Foundation
7. Because of Ezra
8. Braden's Hope for Childhood Cancer
9. Brooke's Blossoming Hope for Childhood Cancer Fund
10. Caleb's Crusade Against Childhood Cancer
11. CancerFree Kids
12. Chase After a Cure
13. Childhood Cancer Guides
14. Children's Cause for Cancer Advocacy
15. Children's Neuroblastoma Cancer Foundation
16. Children's Oncology Camping Association, International (COCA-I)
17. Children's Specialty Center of Nevada
18. Cristina Renna Foundation Inc
19. Christina Renna Foundation Inc.
20. CJ's Journey
21. ConKerr Cancer
22. Crosby's Fund
23. Cure Childhood Cancer, Inc.
24. CureSearch for Children's Cancer
25. Cure4Cam Childhood Cancer Foundation
26. Curing Kids' Cancer
27. DC Candlelighters (Candlelighters Childhood Cancer Foundation of the DC Metro Area )
28. Dragon Master Foundation
29. Ethan Jostad Foundation
30. Evan's Victory against Neuroblastoma Foundation
31. Faith & Grief Ministries
32. Flashes of Hope
33. Francesco Loccisano Memorial Foundation / Frankie's Mission
34. Friends of Cathryn Foundation
35. Gold in September Charitable Trust
36. Have Faith Be Strong
37. Hope & Heroes Children's Cancer Fund
38. Hope for Tomorrow
39. Hugs for Brady Foundation
40. I Back Jack Foundation, Inc.
41. I Care I Cure Childhood Cancer Foundation
42. Jeff Gordon Children's Foundation
43. Jeremy Cares Inc.
44. Journey4ACure
45. Kids' Cancer Research Foundation
46. Kids v Cancer
47. Koontz Oncology Consulting LLC
48. Luck2Tuck Foundation
49. MACC Fund, Inc. (Midwest Athletes Against Childhood Cancer, Inc.).
50. Make Some Noise: Cure Kids Cancer Foundation, Inc.
51. Making Headway Foundation
52. Martin Truex Jr Foundation
53. Mattie Miracle Cancer Foundation
54. Max Cure Foundation
55. Max's Ring of Fire
56. Melina's White Light
57. Morgan Adams Foundation
58. Neuroblastoma Consortium (William Guy Forbeck Research Foundation)
59. Noah's Light Foundation
60. Northwest Indiana Cancer Kids Foundation
61. Open Hands Overflowing Hearts
62. Pediatric Brain Tumor Foundation
63. Pediatric Cancer Foundation (Mamornek, NY)
64. Pediatric Cancer Foundation (Tampa, Fla.)
65. People Against Childhood Cancer (PAC2)
66. PJs for Patients
67. Precious Jules Childhood Cancer Foundation
68. Richi Childhood Cancer Foundation
69. Rock Against Cancer and The Gold Ribbon Project
70. Ryan's Battle Buddies
71. Sammy's Superheroes
72. Solving Kids' Cancer
73. Steven G AYA Cancer Research Fund
74. Striving for More
75. Swifty Foundation
76. Tay-Bandz, Inc.
77. Team G Foundation
78. TeamConnor Childhood Cancer Foundation
79. Tennessee Cancer Coalition - Childhood Committee
80. The Alex Mandarino Foundation
81. The Nicolas Conor Institute (TNCI)
82. The Truth 365
83. This Star Won't Go Out
84. West Virgina Kids Cancer Crusaders
85. Zoe4Life

Childhood Cancer

Childhood Cancer - Long-Term Outcomes

This PAC2 article estimates the likelihood of four life-long outcomes for a child diagnosed with cancer.  These are the projected results:

  • 22% live at least 30 years after diagnosis without chronic health conditions
  • 25% live at least 30 years but face mild to moderate chronic health conditions
  • 19% live at least 30 years but face life-threatening or disabling chronic health conditions
  • 34% die within 30 years of diagnosis. 


Every day 7 children die from childhood cancer within five years of being diagnosed AND every day 5 children that have survived 5-years from diagnosis die from the original cancer, a secondary cancer, or other long-term effects.

Click to read more: Childhood Cancer - Current Long-Term Outcomes

 
 
 

Coalition Against Childhood Cancer

PAC2 is proud founding member of the Coalition Against Childhood Cancer!

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Latest Activity

Barbara Polo is now a member of People Against Childhood Cancer
yesterday
Shannon S Wood is now a member of People Against Childhood Cancer
Jun 19
Paulette Carles updated their profile
Jun 18
Amelia Herbert updated their profile
Jun 18

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