A discussion with the Leukemia & Lymphoma Society from August 2010
Bob Piniewski Dear Leukemia & Lymphoma Society, can you state how the proceeds from the Landon Donovan Ten Day Challenge will be directed? Based on the promotion, it appears that they would go towards childhood cancer research; so thank you very much if that's the case! As you know, childhood cancer act and are treated much differently than adult cancers, and require research specific to children. Can you please verify that these funds will go to researchers working on childhood cancer? (i.e., Children's Oncology Group members) Thanks for all you do!

PS: Can you also share what you will be doing in September to highlight National Childhood Cancer Awareness Month? Thanks!
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    • The Leukemia & Lymphoma Society
      Thanks for your interest, Bob. In our last fiscal year, LLS funded almost $6
      million in research focused on blood cancers in children, although much
      of our approximately $72 million is focused on developing new treatments
      that are likely to... improve outcomes for leukemia and lymphoma patients of all ages.

      LLS recently launched a research initiative focused on the long-term and
      late effects of today's curative therapies - many of these
      quality-of-life limiting consequences impact pediatric patients
      differentially as children can live for decades after they are cured.
      LLS just committed more than $2 million to new projects in this research
      area, thanks to generous donors, and anticipate investing more than $5
      million over the next 3 years, in order to make today's cures safer.

      We are also involved in the Alliance for Childhood Cancer - http://www.allianceforchildhoodcancer.org/acc/Main and thePediatric Cancer Survivorship Legislation - http://www.capitolconnect.com/lls/contentpage.aspx?page=pediatricsurvivorship
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      August 26 at 4:08pm · ·
    • Bob Piniewski
      Thank you for the information. Would there be a list you can provide for the
      $6 million in grants to childhood cancer research? Can you point me to
      more information on the long-term effects work, and will that work
      occur at COG hospitals?...
      With nearly 1 in 500 young adults anticipated to be survivors of
      childhood cancer, that work is certainly needed as they transition to
      adult care. It's a health care situation that will require diligence by
      all due to its uniqueness. I will also certainly suggest to others
      that they become involved in advocacy to support the Pediatric Cancer
      Survivorship Legislation.

      Apparently there are no direct answers to the questions I originally posed: 1) where the funds for the
      Ten Day Challenge directed and 2) what at the LLS plans, if any, for
      recognition of September as National Childhood Cancer Awareness Month?
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      August 26 at 7:03pm · ·
    • Kathi McKune Clarke Great questions Bob! I look forward to reading their response as well. Thank you.
      August 31 at 3:23pm · ·
    • Bob Piniewski
      Thank you for the information. Would there be a list you can provide for the
      $6 million in grants to childhood cancer research? Can you point me to
      more information on the long-term effects work, and will that work occur
      at COG hospitals?......
      With nearly 1 in 500 young adults anticipated to be survivors of
      childhood cancer, that work is certainly needed as they transition to
      adult care. It's a health care situation that will require diligence by
      all due to its uniqueness. I will also certainly suggest to others that
      they become involved in advocacy to support the Pediatric Cancer
      Survivorship Legislation.

      Apparently there are no direct answers to the questions I originally posed: 1) where the funds for the Ten Day
      Challenge directed and 2) what at the LLS plans, if any, for recognition
      of September as National Childhood Cancer Awareness Month?
      See More
      12 minutes ago · ·

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Bob,
Aggravating, to say the least. You asked some pretty simple, straight-forward and fair questions. It would seem that if the answers were going to be in any way satisfactory, they would have been given just as directly as they were asked. It's good to know that you're out there asking the questions and pressing for answers.

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