A brief discussion with the Lukemia & Lymphoma Society...

[AJs Dad]

A discussion with the Leukemia & Lymphoma Society from August 2010

Bob Piniewski Dear Leukemia & Lymphoma Society, can you state how the proceeds from the Landon Donovan Ten Day Challenge will be directed? Based on the promotion, it appears that they would go towards childhood cancer research; so thank you very much if that's the case! As you know, childhood cancer act and are treated much differently than adult cancers, and require research specific to children. Can you please verify that these funds will go to researchers working on childhood cancer? (i.e., Children's Oncology Group members) Thanks for all you do!

PS: Can you also share what you will be doing in September to highlight National Childhood Cancer Awareness Month? Thanks! See More

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• Kathi McKune Clarke, Tom Nunn, CeeJay West and 6 others like this.
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    The Leukemia & Lymphoma Society

    Thanks for your interest, Bob. In our last fiscal year, LLS funded almost $6
    million in research focused on blood cancers in children, although much
    of our approximately $72 million is focused on developing new treatments
    that are likely to... improve outcomes for leukemia and lymphoma patients of all ages.
    
    LLS recently launched a research initiative focused on the long-term and
    late effects of today's curative therapies - many of these
    quality-of-life limiting consequences impact pediatric patients
    differentially as children can live for decades after they are cured.
    LLS just committed more than $2 million to new projects in this research
    area, thanks to generous donors, and anticipate investing more than $5
    million over the next 3 years, in order to make today's cures safer.
    
    We are also involved in the Alliance for Childhood Cancer - http://www.allianceforchildhoodcancer.org/acc/Main and thePediatric Cancer Survivorship Legislation - http://www.capitolconnect.com/lls/contentpage.aspx?page=pediatricsurvivorship
    See More

    August 26 at 4:08pm · ·
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    Bob Piniewski

    Thank you for the information. Would there be a list you can provide for the
    $6 million in grants to childhood cancer research? Can you point me to
    more information on the long-term effects work, and will that work
    occur at COG hospitals?...
    With nearly 1 in 500 young adults anticipated to be survivors of
    childhood cancer, that work is certainly needed as they transition to
    adult care. It's a health care situation that will require diligence by
    all due to its uniqueness. I will also certainly suggest to others
    that they become involved in advocacy to support the Pediatric Cancer
    Survivorship Legislation.
    
    Apparently there are no direct answers to the questions I originally posed: 1) where the funds for the
    Ten Day Challenge directed and 2) what at the LLS plans, if any, for
    recognition of September as National Childhood Cancer Awareness Month?See More

    August 26 at 7:03pm · ·
  • 

    Kathi McKune Clarke Great questions Bob! I look forward to reading their response as well. Thank you.

    August 31 at 3:23pm · ·
  • 

    Bob Piniewski

    Thank you for the information. Would there be a list you can provide for the
    $6 million in grants to childhood cancer research? Can you point me to
    more information on the long-term effects work, and will that work occur
    at COG hospitals?......
    With nearly 1 in 500 young adults anticipated to be survivors of
    childhood cancer, that work is certainly needed as they transition to
    adult care. It's a health care situation that will require diligence by
    all due to its uniqueness. I will also certainly suggest to others that
    they become involved in advocacy to support the Pediatric Cancer
    Survivorship Legislation.
    
    Apparently there are no direct answers to the questions I originally posed: 1) where the funds for the Ten Day
    Challenge directed and 2) what at the LLS plans, if any, for recognition
    of September as National Childhood Cancer Awareness Month?See More

    12 minutes ago · ·

[Benji Palus]

Bob,
Aggravating, to say the least. You asked some pretty simple, straight-forward and fair questions. It would seem that if the answers were going to be in any way satisfactory, they would have been given just as directly as they were asked. It's good to know that you're out there asking the questions and pressing for answers.