Sestak is our voice on the hill! Politics aside we need him re-elected and the primary in PA is tomorrow! Sestak's Daughter is a childhood cancer survivor.


Congressman Sestak’s Pediatric Cancer Caucus Calls for Administration to Support Research and Treatment

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Letter Urges Full Funding of the Conquer Childhood Cancer Act

December 5, 2009
WASHINGTON, DC – Congressman Joe Sestak (PA-07), joined by 21 members of Congress, sent a letter to President Barack Obama, Secretary of Health and Human Services Kathleen Seibelius, and Director of the Office of Management and Budget Peter Orszag, calling on the Administration to include $30 million for Pediatric Cancer Research in its Fiscal Year 2011 Budget request. Legislation that the Congressman co-sponsored and that was signed into law last year authorizes the Administration to implement the funding. Earlier this year, Congressman Sestak announced the establishment of the Pediatric Cancer Caucus, created to advocate – as in this case -- for thousands of sick children and their families.

“From my daughter’s battle with cancer, I know all too well its impact on children and families,” said Congressman Sestak. “My family has been incredibly lucky and my daughter was fortunate to receive some of the best care in the country, but too many children are lost every year to cancer and those who survive face dire after- effects of their treatment.”

The Caroline Price Walker Conquer Childhood Cancer Act, which became law last year, provides for the additional funding for research on pediatric cancer and treatment, a grant program that better disseminates information on best practices and connects children with best treatments for their cancers, and investments in epidemiological tracking of pediatric cancer. It is named in honor and memory of former Representative Deborah Pryce’s daughter Caroline, who passed away in 1999 at age nine from Neuroblastoma

“The research and new treatments this funding would support will allow more children with cancer to enjoy full and healthy lives, so that more families can be as fortunate as mine,” continued Congressman Sestak.

With nearly 15,000 new cases diagnosed each year, cancer is the leading cause of death by disease in children, cutting short the lives of more children under the age of 20 than any other disease. While long-term survival rates for pediatric cancer are fairly high -- 1 child out of 5 who is diagnosed with cancer dies from it -- 3 out of 5 children suffer from long-term side effects.

The other Members signing the letter were Representatives Steve Cohen, Tom Cole, Lloyd Doggett, Raul Grijalva, Luis Gutierrez, Maurice Hinchey, Mary Jo Kilroy, Peter King, Robert Latta, Carolyn Maloney, Betsy Markey, Michael McCaul, Thaddeus McCotter, James McGovern, Dennis Moore, Patrick Murhpy, James Oberstar, Adam Putnam, Bobby Scott, Patrick Tiberi, and Chris Van Hollen.

See the text of the letter below:

December 5, 2009

The Honorable Barack Obama
President of the United States of America
The White House
Washington, DC 20500

Dear Mr. President:

We write today to respectfully request the inclusion of $30 million in funding for the Caroline Pryce Walker Conquer Childhood Cancer Act of 2008 (Public Law 110-285, 122 Stat. 2628-2631) in the President's Budget for Fiscal Year 2011 and in the remaining years of this act’s authorization. We believe that this funding is essential to provide effective, widespread and speedy research to help eradicate the cancers that plague our nation's youth.

As you may know, The Caroline Pryce Walker Conquer Childhood Cancer Act is named in honor and memory of former Representative Deborah Pryce’s daughter Caroline, who passed away in 1999 at age nine from Neuroblastoma. This authorization bill enjoyed bipartisan support, passed the House unanimously 416-0, and passed in the Senate by unanimous consent and was signed into law by your predecessor on July 29, 2008. This year, the House Appropriations Committee included $10 million for this authorization in the FY10 Labor-HHS Appropriations Act.

The Caroline Pryce Walker Conquer Childhood Cancer Act calls upon the Secretary of Health and Human Services and the Director of NIH and other Federal agencies with an interest in prevention and treatment of pediatric cancer to continue to enhance, expand, and intensify pediatric cancer research and other activities related to pediatric cancer, including therapeutically applicable research to generate effective treatments, pediatric preclinical testing and pediatric clinical trials through National Cancer Institute-supported pediatric cancer clinical trial groups and their member institutions. This research, and the treatments it will help to develop, will allow children with cancer the opportunity to enjoy full and healthy lives.

The Act also authorizes grants to childhood cancer professional and direct service organizations for the expansion of activities that provide information on treatment protocols to ensure early access to the best available therapies and clinical trials for pediatric cancers. Ensuring that children get the best type of treatment as soon as possible is especially important for pediatric cancer both because children and adolescents are much more vulnerable to the side effects of these treatments and because they have the ability to recover fully if they get the right treatment. Additionally, these grants would also be used to provide information on the late effects of pediatric cancer treatment to ensure access to necessary long-term medical and psychological care, specialized education resources for school reentry and postsecondary education and other support services.

Additionally, this legislation authorizes the Director of the Centers for Disease Control and Prevention to award a grant to enhance and expand existing infrastructure to track the epidemiology of pediatric cancer into a comprehensive nationwide registry of pediatric cancer cases.

As you are aware, each year cancer kills more children between 1 and 20 years of age than asthma, diabetes, cystic fibrosis, and AIDS, combined. Because of research in pediatric cancer, up to 75 percent of the children with cancer can now be cured. However, despite significant improvements in our ability to fight pediatric cancer, some types continue to lack effective treatment and thousands of children still lose their bouts with cancer. Indeed, cancer remains the leading cause of death by disease in children. It is with these children in mind that we seek your support in securing this much needed funding for FY2011 and the following years.

Thank you again for your consideration of this request. We look forward to working with you and your Administration and appreciate your support for eradicating this devastating disease.

Born and raised in Delaware County, former 3-star Admiral Joe Sestak served in the Navy for 31 years and now serves as the Representative from the 7th District of Pennsylvania. He led a series of operational commands at sea, including Commander of an aircraft carrier battle group of 30 U.S. and allied ships with over 15,000 sailors and 100 aircraft that conducted operations in Afghanistan and Iraq. After 9/11, the Congressman was the first Director of Deep Blue, the Navy’s anti-terrorism unit that established strategic and operations policies for the Global War on Terrorism. He served as President Clintons Director for Defense Policy at the National Security Council in the White House, and holds a Ph.D. in Political Economy and Government from Harvard University. According to the office of the House Historian, Congressman Sestak is the highest-ranking former military officer ever elected to the U.S. Congress.

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GREAT reminder Rob. gracias....
CNN just announced that Congressman Sestak won the Primary in PA.....
I voted for Sestak yesterday-every little bit counts right?
We need to all write our congress people and urge them to join the Pediatric Cancer Caucus....
Just so you know, here is a list of pediatric Cancer Caucus Members:
Pediatric Cancer Caucus Membership List

Rep. Joe Sestak (D-PA)
Rep. Michael McCaul (R-TX)

Caucus Members:
Rep. Rodney Alexander (R-LA)
Rep. Michael Arcuri (D-NY)
Rep. Tammy Baldwin (D-WI)
Rep. Shelley Berkley (D-NV)
Rep. Howard Berman (D-CA)
Rep. Rob Bishop (R-UT)
Rep. Marsha Blackburn (R-TN)
Rep. Rick Boucher (D-VA)
Rep. Bruce Braley (D-IA)
Rep. Paul Broun (R-GA)
Rep. Ben Chandler (D-KY)
Rep. Steve Cohen (D-TN)
Rep. Tom Cole (R-OK)
Rep. John Culberson (R-TX)
Rep. Lloyd Doggett (D-TX)
Rep. Chet Edwards (D-TX)
Rep. Vernon Ehlers (R-MI)
Rep. Bob Filner (D-CA)
Rep. Gabrielle Giffords (D-AZ)
Rep. Bob Goodlatte (R-VA)
Rep. Parker Griffith (R-AL)
Rep. Raúl Grijalva (D-AZ)
Rep. Maurice Hinchey (D-NY)
Rep. Darrell Issa (R-CA)
Rep. Lynn Jenkins (R-KS)
Rep. Walter Jones (R-NC)
Rep. Peter King (R-NY)
Rep. Mark Kirk (R-IL)
Rep. Jon Kline (R-MN)
Rep. Leonard Lance (R-NJ)
Rep. Tom Latham (R-IA)
Rep. Robert Latta (R-OH)
Rep. Christopher Lee (R-NY)
Rep. Blaine Luetkemeyer (R-MO)
Rep. Carolyn Maloney (D-NY)
Rep. Betsy Markey (D-CO)
Rep. Tom McClintock (R-CA)
Rep. Thaddeus McCotter (R-MI)
Rep. James McGovern (D-MA)
Rep. Michael McMahon (D-NY)
Rep. Charlie Melacon (D-LA)
Rep. Dennis Moore (D-KS)
Rep. James Moran (D-VA)
Rep. Jerry Moran (R-KS)
Rep. Patrick Murphy (D-PA)
Rep. Randy Neugebauer (R-TX)
Rep. Bill Pascrell (D-NJ)
Rep. Joseph Pitts (R-PA)
Rep. Todd Platts (R-PA)
Rep. Bill Posey (R-FL)
Rep. Adam Putnam (R-FL)
Rep. Mike Rodgers (R-AL)
Rep. Linda Sánchez (D-CA)
Rep. Janice Schakowsky (D-IL)
Rep. Allyson Schwartz (D-PA)
Rep. Carol Shea-Porter (D-NH)
Rep. Adam Smith (D-WA)
Rep. Jackie Speier (D-CA)
Rep. John Spratt (D-SC)
Rep. John Tanner (D-TN)
Rep. Todd Tiahrt (R-KS)
Rep. Patrick Tiberi (R-OH)
Rep. Fred Upton (R-MI)
Rep. Chris Van Hollen (D-MD)
Rep. Charles Wilson (D-OH)
Rep. Robert Wittman (R-VA)
Kate, I know that you are busy but is there a list of the Representatives that have not signed on yet as part of the Pediatric Cancer Caucus? Maybe we can get PAC2 members to contact their congress people on this.


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