CureSearch for Childhood Cancer
unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Children's Oncology Group is the collection of over 230 hospitals that collaborate on research and treat more than 90% of cancer kids in the US. Thanks to CureSearch for offering the following summary of its activities in 2010!
The last year has been one of incredible growth for CureSearch for Children’s Cancer. We not only doubled our previous year’s fundraising successes but we also opened regional development offices across the country so we can be closer to our families, their communities and the Children’s Oncology Group (COG) hospitals.
In addition, we traveled to more than 110 Children’s Oncology Group hospitals to meet with researchers and hear firsthand about the important work they are doing to both treat patients and develop cures for children’s cancer. Some special highlights from the year include:The CureSearch Walk
This year, children, families, friends, co-workers, neighbors, clinicians and researchers came together in more than 25 cities across the country for The CureSearch Walk where they celebrated and honored those whose lives have been affected by children’s cancer. Together, more than $1 million was raised to fund children’s cancer research. We thank everyone who supported The CureSearch Walk - we cannot do it without you!Nascar Champion Jeff Gordon Public Service Campaign
CureSearch for Children’s Cancer partnered with four-time NASCAR Champion Jeff Gordon to create new TV and radio public service announcements (PSA), one promoting The CureSearch Walk and one which highlights the need for ongoing funding for children’s cancer research. The PSAs were distributed during September - Childhood Cancer Awareness Month - to 750 radio stations and 265 TV stations across the country. Childhood Cancer Summit
In September the Congressional Pediatric Cancer Caucus held a Childhood Cancer Summit on Capitol Hill in Washington, DC. The Summit began with a breakfast co-hosted by CureSearch for Children’s Cancer and Children’s Cause and a panel discussion led by pediatric cancer experts including COG Chair-Elect Peter Adamson, MD. The speakers addressed key issues facing children with cancer, the challenges ahead and policy solutions, and addressed questions from the audience which included Members of Congress, congressional staff, childhood cancer researchers and advocates. 10th Anniversary of the Children’s Oncology Group Gala
This year’s Fall COG meeting marked the 10th anniversary of the Children’s Oncology Group. To celebrate this remarkable achievement, CureSearch hosted a Gala for approximately 800 people. This spectacular event raised $460,000 for the COG.
The Gala also featured several key presentations, including a video which honored the Children’s Oncology Group through patients and parents. Laura Hogan, MD, a unique member of the COG in that she is not only a pediatric oncologist, but also a pediatric cancer survivor, spoke to the audience and shared her experience as both a patient and physician, and talked about her determination to help bring an end to pediatric cancer.
The presentations concluded with a well-deserved tribute to Dr. Reaman, Group Chair, who was honored for his dedication and commitment to the COG during the last 10 years and for his influential vision and leadership.Looking Ahead to 2011
As we move into the New Year and the second decade of CureSearch for Children’s Cancer, we will continue our affiliation agreement as the Foundation for the Children’s Oncology Group, while developing even stronger relationships with our patients, parents, clinicians and hospitals. Watch for these exciting upcoming activities and events:Hope and Help Journal
Through a generous grant of $100,000 from Hyundai Hope on Wheels, CureSearch is creating a valuable tool for families of newly diagnosed children – The Hope and Help Journal.
When parents are told “your child has cancer,” they are thrown into a world of unfamiliar terms, treatment options and decisions. They often don’t know what to ask first. With the support of the COG Nursing Steering Committee and other COG members, we have developed this new tool which includes lined, blank pages for notes as well as a series of questions to guide parents through the initial diagnosis stage and help them begin to think about treatment plans.
It is our hope that the Journal will be a resource throughout the cancer journey to assist parents as they face critical decisions and advocate for the best treatment options for their child, as well as a medical reference for long-term follow-up care. The Journal will be distributed to the COG hospitals in the second quarter of 2011. CureSearch.org
In mid 2011, CureSearch will unveil a new look and updated content for the website, www.curesearch.org
. We are working with two COG groups on this project to create a site that is easy to navigate and more appealing while continuing to provide relevant, detailed information which supports patients, parents and supporters through a child’s cancer journey. The CureSearch Walk
In 2011 we plan to add an additional 20 Walks to our event calendar. With more than 45 walks taking place across the nation, we are sure to raise not only more money for research, but also awareness about the need to invest in children’s cancer research. To find a walk near you, visit www.curesearchwalk.orgOther Special Events
Ultimate Hike - If you love adventure and crave a new experience, then this is the event for you! In just one amazing day, you will hike the 27.5 miles of the Appalachian Trail beginning in Tennessee and ending in North Carolina. For more information, contact Leah Bartlett in our Southeast Regional Office at (704) 285-6553.
Winery Tour and Tasting – Taking place in Santa Barbara County, CA in March, 2011, winemakers from across the region will come together for this first time event which includes a weekend of wine tasting and entertainment at various vineyards to raise money for CureSearch for Children’s Cancer. To learn more contact Denise Balyes in the Western Regional Office at (626) 241-1741
Burgers and Brews – Launching nationwide in 2011, this event will combine local breweries and burger restaurants for a tasting event whose proceeds benefit CureSearch for Children’s Cancer.Advocacy
In the coming year, CureSearch will continue to advocate for full funding of the Caroline Pryce Walker Conquer Childhood Cancer Act which allows Congress to appropriate up to $30 million a year in children’s cancer funding through the National Cancer Institute. In addition, our legislative agenda includes:
Children’s Cancer Awareness and Advocacy Day on Capitol HillCureSearch for Children’s Cancer’s will hold its annual advocacy day on March 16-17, 2011.
- updating the Best Pharmaceuticals for Children Act to provide incentives for testing the safety and efficacy of drugs in children,
- introducing the Create Hope Act of 2010 (S.3697) in the House to give a transferable priority review voucher to companies who gain approval of a drug for a rare pediatric disease; and
- advancing the Childhood Cancer Survivorship Research and Quality of Life Act (H.R. 2109) to better understand and promote appropriate and improved care for survivors.
We are excited that once again advocacy day will be hosted by CureSearch for Children’s Cancer and include multiple children’s cancer organizations coming together on one day to educate Congress about the need for increased funding for children’s cancer research. In addition, we are pleased that this year the date will align with the legislative process at a time of active and heightened policy making on the Hill.