Dear PAC2,

After four years of chronicling events, we are struck by the shear increase in the volume  of stories (increased awareness), the increased levels of funds being raised and the increased levels of corporate America sponsorship.  So, while Emerson did say "No member of a crew is praised for the rugged individuality of his rowing;" today we take a moment to share some some heart rendering stories and huge accomplishments by the "crew."  Thank you all for all you do!!

Warm-ups...

This video from Seattle Children's Hospital was a highlight for us, with over 2.2 million views so far (increased awareness!). If you've been there, you will recognize it. If you haven't, here's a glimpse into it - the incredible spirit of incredible children....


Fundraising

 

Advocacy & Legislative

  • "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom. A man can't ride you unless your back is bent." - Martin Luther King, Jr.

    Godspeed to the hundreds of advocates who will hit the Hill in DC next week at the Alliance for Childhood Cancer sponsored Childhood Cancer Advocacy Day on June 5th. Stay tuned for updates! - Alliance for Childhood Cancer - Home

  • On May 24, in a 96-1 vote, the Senate passed the FDA user fee legislation (Senate bill, S. 3187, the FDA Safety and Innovation Act). This bill calls for the FDA to hold a public meeting to examine ways to encourage and accelerate the development of new therapies for pediatric rare diseases with a report to follow. The House is expected to vote on their version of the FDA user fee bill soon. - Senate Inches Closer To Passage Of FDA Reauthorization Bill

  • Our friends at Children's Cause for Cancer Advocacy have brought us up to date on all that's happened this week on the legislative front. . . and it's a lot. Click to get the details. - The Next Step, May 2012

  • Only about half of prescription drugs have suitable safety or dosing data available for children. Across the board, we need legislation to increase pediatric clinical trials and require that information is added to labeling. - Drug Labels Often Lack Pediatric Information

  • The proposed IL Childhood Cancer Research Fund (a box on the state tax form that allows you to donate to childhood cancer research) moves forward! - My Testimony at the Illinois State Capital

 

Writing & Good Stuff

 

Research and Treatment

 

Survivorship

 

PAC2 Stuff

 

And finally.....

 

12-Year-Old Boy Made Honorary Marine Before Succumbing To Cancer-Related Infection, Local Marine Stands Guard At His Hospital Door Entire Night Before He Passed Away…

12-year-old Cody Green has always admired the strength and courage of the Marines. At 12:35 Saturday afternoon, it was the Marines admiring the strength and courage of Cody. Cody had leukemia since he was 22 months old, but beat the disease three times. Although he was cancer-free, the chemotherapy lowered his immune system and Saturday afternoon, he died from a fungus that attacked his brain. Members of the Marines decided to step in and do something. “They decided Cody, with the strength and honor and courage he showed through the whole thing, he should be a Marine,” said Cody’s father David Snowberger. Cody was given Marine navigator wings and was made an honorary member of the United States Marine Corps. For one Marine, that wasn’t enough, so he did even more. “The night before Cody passed, he stood guard at Cody’s door at the hospital all night long for eight hours straight,” said Snowberger.

 

Thanks PAC2!


Join PAC2 on Facebook and Twitter and sign the Petition for Increased Awareness and Funding for Childhood Cancer

 

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Alison Ingle is now a member of People Against Childhood Cancer
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