Update: Feb 2012 from Kids v Cancer:

Dear Supporters of Kids v Cancer:
We need your help to advocate for the Creating Hope Act. Would you please call Representative Fred Upton’s office (R-MI6) and ask him to “put the Creating Hope Act in the Chairman’s mark for PDUFA”?

Here’s the phone number: 202-225-3761

Here are the talking points:
“Hello, my name is ________. I would like to request that the Creating Hope Act, HR 3059, be put in the Chairman Upton’s mark for PDUFA. “
“This is important to me because” [tell them why you care about incentives for new drugs for kids with cancer and other rare diseases]
“Thank you.”

Here’s some background:
We are working to achieve passage of the Creating Hope Act, which provides incentives for the development of life saving drugs for kids, by asking that the Creating Hope Act be attached to another piece of legislation, PDUFA. This is an important strategy because PDUFA, the Prescription Drug User Fee Act, will be enacted into law this summer or fall. Under PDUFA, sponsors of new drug applications pay userfees to the FDA and the FDA provides additional or more timely services to sponsors. This opportunity to attach the Creating Hope Act comes from Energy & Commerce Chairman Upton, who will determine the base text for PDUFA.
WHEN YOU”RE DONE, SHOOT US AN EMAIL AND LET US KNOW YOU DID IT SO WE CAN GET A COUNT (AND THANK YOU!)

Thank you
Nancy


UPDATE: November 29, 2011 from Kids v Cancer:

>We have 87 Cosponsors supporting the CREATING HOPE ACT:) Our December GOAL is to reach 100. Please click on the link below to see if your Represenatives have signed on. If they have not signed on, you can email laura@kidsvcancer.org and she will give you the contact information to CALL..THANK YOU!!!! YOU ARE ABLE TO MAKE THE BIGGEST DIFFERENCE!!!! http://www.facebook.com/kidsvcancer?sk=notes

 

Original Post

The Creating Hope Act is innovative legislation that will incentivize drug companies to invest in childhood cancer research in return for a voucher that will let them speed other, more profitable drugs to market. Incentive at no cost to the American taxpayer. More childhood cancer research means better treatments and moving closer to the cure for childhood cancer.  Nancy Goodman is the architect of the Creating Hope Act, the founder of Kids v Cancer and, forever mom to Jacob.  Read more about the Creating Hope Act here: http://bit.ly/CreatingHopeAct.

 

On September 23, 2011 Congressmen Michael McCaul (R-TX), G.K. Butterfield (D-NC), Sue Myrick (R-NC), and Chris Van Hollen (D-MD) introduced the Creating Hope Act. Senators Bob Casey (D-PA) and Scott Brown (R-MA) introduced a companion bill, S. 606.  Congressman McCaul, the founder and co-chairman of the House Childhood Cancer Caucus, said “The Creating Hope Act offers the best chance of encouraging pharmaceutical companies to develop treatments for children at no cost to taxpayers.” 

 

Now we must advocate for passage of the Creating Hope Act. 

The kids need your help!

You can help by contacting your representatives seeking their support of the CHA.  Please click the link below to easily send a note to your reps. The main note is already written for you, and the reps are pre-selected by your address. You simply fill in your contact information, add a personal note if you like, and hit send.

 

Click the link to send your note:

www.congressweb.com/cweb2/index.cfm/siteid/KAKI/action/TakeAction.C...

 

THIS is how your voice can be heard in Congress in support of a no-cost, win-win piece of legislation that will incentivize big pharm to invest in research that will save children's life's....5 minutes max......please share this link!

 

Thanks PAC2!!

 

Video of The Creating Hope Act making the news...

 

Video of actor Dennis Quaid explaining why the Creating Hope Act is...

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UPDATED LIST OF COSPONSORS NOVEMBER 29, 2011

Creating Hope Act 

Cosponsors by State: 

House of Representatives:

 

Alabama

  • Martha Roby (R-AL2)
  • Mike D. Rodgers (R-AL3)
  • Spencer Bachus (R-AL6)

Alaska

Arizona

Arkansas

California

  • Lynn Woosley (D-CA6)
  • Nancy Pelosi (D-CA8)
  • John Garamendi (D-CA10)
  • Jackie Speier (D-CA12)
  • Elton Gallegly (R-CA24)
  • Ken Calvert (R-CA44)
  • Brian Bilbray (R-CA50)
  • Bob Filner (D-CA51)

Colorado

  • Diana DeGette (D-CO1)
  • Jared Polis (D-CO2)

Connecticut

  • Jim Himes (D-CT4)

Delaware

Florida

  • Ander Crenshaw (R-FL4)
  • Kathy Castor (D-FL11)
  • Bill Posey (R-FL15)
  • Ileana Ros-Lehtinen (R-FL18)

Georgia

  • Hank Johnson (D-GA4)
  • Austin Scott (R-GA8)
  • Phil Gingrey (R-GA11)

Hawaii

Idaho

Illinois

  • Bobby L. Rush (D-IL1)
  • Jesse Jackson Jr. (D-IL2)
  • Peter J. Roskam (R-IL6)
  • Danny K. Davis (D-IL7)

Indiana

Iowa

Kansas

  • Lynn Jenkins (R-KS2)

Kentucky

  • Geoff Davis (R-KY4)

Louisiana

  • Charles Boustany Jr. (R-LA7)

Maine

Maryland

  • Chris Van Hollen (D-MD8)

Massachusetts

  • Barney Frank (D-MA4)
  • John F. Tierney (D-MA6)
  • Edward Markey (D-MA7)
  • William R. Keating (D-MA10)

Michigan

  • Dan Benishek (R-MI1)
  • Mike Rodgers (R-MI8)
  • Thaddeus Mccotter (R-MI11)

Minnesota

  • Tim Walz (D-MN1)
  • Erik Paulsen (R-MN3)

Mississippi

  • Alan Nunelee (R-MS1)

Missouri

  • Russ Carnahan (D-MO3)
  • Blaine Luetkemeyer (R-MO9)

Montana

Nebraska

Nevada

New Hampshire

New Jersey

  • Steven R. Rothman (D-NJ9)
  • Rush Holt (D-NJ12)

New Mexico

New York

  • Peter King (R-NY3)
  • Edolphus Towns (D-NY10)
  • Carolyn Maloney (D-NY14)
  • Charles B. Rangel (D-NY15)
  • Nita Lowey (D-NY18)
  • Maurice Hinchey (D-NY22)
  • Richard L. Hanna (R-NY24)
  • Ann Marie Buerkle (R-NY25)

North Carolina

  • G.K. Butterfield (D-NC1)
  • Walter B. Jones (R-NC3)
  • Larry Kissell (D-NC8)
  • Sue Wilkins Myrick (R-NC9)

North Dakota

Ohio

  • Jean Schmidt (R-OH2)
  • Patrick J. Tiberi (R-OH12)

Oklahoma

  • James Lankford (R-OK5)

Oregon

Pennsylvania

  • Michael Kelly (R-PA3)
  • Mike Fitzpatrick (R-PA8)
  • Michael F. Doyle (D-PA14)
  • Charlie Dent (R-PA15)
  • Tim Murphy (R-PA18)
  • Todd Platts (R-PA19)

Rhode Island

South Carolina

South Dakota

Tennessee

  • Phil Roe (R-TN1)
  • Marsha Blackburn (R-TN7)
  • Steve Cohen (D-TN9)

Texas

  • Al Green (D-TX9)
  • Ron Paul (R-TX14)
  • Sheila Jackson Lee (D-TX18)
  • Charlie Gonzalez (D-TX20)
  • Pete Olsen (R-TX22)
  • Francisco “Quico” Canseco (R-TX23)
  • Michael Burgess (R-TX26)
  • Henry Cueller (D-TX28)
  • John R. Carter (R-TX31)

Utah

Vermont

  • Peter Welch (D-VT)

Virginia

  • James P. Moran (D-VA8)
  • Frank R. Wolf (R-VA10)
  • Gerald E. Connolly (D-VA11)

Washington

  • Cathy McMorris Rodgers (R-WA5)
  • Adam Smith (D-WA9)

West Virginia

  • David B. McKinley (R-WV1)

Wisconsin

  • Reid Ribble (R-WI8)

Wyoming

 

District of Columbia

  • Eleanor Holmes Norton (D-DC) 

Virgin Islands

  • Donna Christensen (D-VI)

Puerto Rico

  • Pedro Pierluisi (D-PR)

 

Senate:

 

Alabama

Alaska

Arizona

Arkansas

California

Colorado

Connecticut

  • Richard Blumenthal (D-CT)

Delaware

Florida

Georgia

  • Johnny Isakson (R-GA)

Hawaii

Idaho

  • Mike Crapo (R-ID)

Illinois

Indiana

Idaho

Kansas

Kentucky

Louisiana

Maine

Maryland

Massachusetts

  • Scott Brown (R-MA)

Michigan

Minnesota

  • Al Franken (D-MN)

Mississippi

Missouri

  • Roy Blunt (R-MO)

Montana

Nebraska

Nevada

New Hampshire

New Jersey

New Mexico

New York

  • Kristen Gillibrand (D-NY)

North Carolina

North Dakota

Ohio

  • Sherrod Brown (D-OH)

Oklahoma

Oregon

Pennsylvania

Rhode Island

South Carolina

South Dakota

Tennessee

Texas

Utah

Vermont

Virginia

Washington

West Virginia

Wisconsin

Wyoming

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