Team Sarcoma

if you are battling sarcoma, here you can join with others fighting the same fight....

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Comment by Paula Yost on January 25, 2009 at 10:26pm
Hang in there. Take one day at a time. I know this is a huge blow. You know so much more that when Ishani was first diagnosed, I imagine that alone is enough to scare you beyond belief. Keep fighting, I will pray for you and Ishani.

Comment by Dash Wallooppillai on January 25, 2009 at 6:16pm
Thanks Sarah - we will keep up the fight. Good Luck with Vinny's scans.
Comment by Sarah DiGerolamo on January 25, 2009 at 5:24pm
Dear Dash,
I am truly sorry, but this does not mean the worst. Some of the Rhabdo kids have relapsed 4 times and are okay... I will e-mail you. do not give up the fight, sweetie. We are here for you always.
Comment by Dash Wallooppillai on January 25, 2009 at 5:16pm
Sad news - Ishani was diagnosed with a relapse of her rhabdomyosarcoma after a biopsy of her lymph node. We are still numb. She is having scans to restage, then we will discuss the treatment options. Kids do not deserve this.
Comment by Tiffany Beamer on January 20, 2009 at 5:15pm
Angie, I'm sorry about Steve now having to fight AML. I know a family who's daughter first fought AML and recently fought osteosarcoma as a result of the treatment she got for AML. It is fair to these kids to go through this over and over.

I have just joined this group, but have been in PAC2 since the beginning. My daughter was 3 1/2 when she was diagnosed with Ewing's Sarcoma of the soft tissue. She is nine months OT now and doing very good but during treatment was a nightmare. If there is anyone who has a child with Ewings who needs to talk let me know.
Comment by Sarah DiGerolamo on January 13, 2009 at 4:20pm
Dear Dash,
I truly hope that Ishani only has an infection and has not relapsed. It is very hard not to worry while you wait for results. We will be hoping and praying that the lump disappears fast and a biopsy is not needed. Vinny also has Rhabdo - we just finished our last chemo and are waiting for final evaluations in 2 weeks. I understand your anxiety. I am also in the Rhabdo List Serv if you want to be inivited in. Everyone there Rhabdo and has a lot of helpful advice and experiences. E-mail me if interested. I wish you the best.
Comment by Dash Wallooppillai on January 13, 2009 at 3:24pm
Hi Everyone, My daughter Ishani was diagnosed with alveolar rhabdomyosarcoma of her leg in June, 2006. She has done well and started Kindergarten last Fall. 2 days ago, she woke up in the morning with severe pain in her left groin. She had a large, painful lump. We were numb. We saw her doctor yesterday, and she is on antibiotics. They are hoping it is an infection since it is responding to the antibiotic. She will need a biopsy if it does not resolve. Please keep her in your thoughts and prayers. Dash
Comment by Sarah DiGerolamo on January 13, 2009 at 7:39am
Dear Jill,
I am truly sorry to hear about Matt. It hits very close to home right now. My best friend's 18 yr old daughter just passed away from Ewing's Sarcoma, and our other very close friend's daughter is on her way also, with Ewing's. It is also similar to Rhabdomyosarcoma, which my son has. I am very, very sorry.
Comment by Matts mom on January 13, 2009 at 7:22am
Hi. I lost my son to Ewings Sarcoma on Nov 1 2008. He was diagnosed at 19 years old. Too old for a pediatric cancer. Nonetheless he went thru hell for 5 years fighting this horrible beast. It started in his chest. After relapsing for the 3rd time it couldnt be stopped. Do you know if you survive 5 years, you are considered a success. Some success! He's dead and we miss him!
Comment by Kim on December 31, 2008 at 8:30pm
I'm so sorry to hear this, Steve looks like a fighter, if he beat it the first time, he can do it again.. You and your family will be in our thoughts and prayers.
Mom of Ty

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