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Team Sarcoma

if you are battling sarcoma, here you can join with others fighting the same fight....

Location: Everywhere
Members: 66
Latest Activity: Mar 1, 2012

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Comment by Dash Wallooppillai on January 25, 2009 at 6:16pm
Thanks Sarah - we will keep up the fight. Good Luck with Vinny's scans.
Comment by Sarah DiGerolamo on January 25, 2009 at 5:24pm
Dear Dash,
I am truly sorry, but this does not mean the worst. Some of the Rhabdo kids have relapsed 4 times and are okay... I will e-mail you. do not give up the fight, sweetie. We are here for you always.
Love,
Sarah www.caringbridge.org/visit/vinnydigerolamo
Comment by Dash Wallooppillai on January 25, 2009 at 5:16pm
Sad news - Ishani was diagnosed with a relapse of her rhabdomyosarcoma after a biopsy of her lymph node. We are still numb. She is having scans to restage, then we will discuss the treatment options. Kids do not deserve this.
Dash
Comment by Tiffany Beamer on January 20, 2009 at 5:15pm
Angie, I'm sorry about Steve now having to fight AML. I know a family who's daughter first fought AML and recently fought osteosarcoma as a result of the treatment she got for AML. It is fair to these kids to go through this over and over.

I have just joined this group, but have been in PAC2 since the beginning. My daughter was 3 1/2 when she was diagnosed with Ewing's Sarcoma of the soft tissue. She is nine months OT now and doing very good but during treatment was a nightmare. If there is anyone who has a child with Ewings who needs to talk let me know.
Comment by Sarah DiGerolamo on January 13, 2009 at 4:20pm
Dear Dash,
I truly hope that Ishani only has an infection and has not relapsed. It is very hard not to worry while you wait for results. We will be hoping and praying that the lump disappears fast and a biopsy is not needed. Vinny also has Rhabdo - we just finished our last chemo and are waiting for final evaluations in 2 weeks. I understand your anxiety. I am also in the Rhabdo List Serv if you want to be inivited in. Everyone there Rhabdo and has a lot of helpful advice and experiences. E-mail me if interested. sdigerolamo@gmail.com I wish you the best.
Love,
Sarah www.caringbridge.org/visit/vinnydigerolamo
Comment by Dash Wallooppillai on January 13, 2009 at 3:24pm
Hi Everyone, My daughter Ishani was diagnosed with alveolar rhabdomyosarcoma of her leg in June, 2006. She has done well and started Kindergarten last Fall. 2 days ago, she woke up in the morning with severe pain in her left groin. She had a large, painful lump. We were numb. We saw her doctor yesterday, and she is on antibiotics. They are hoping it is an infection since it is responding to the antibiotic. She will need a biopsy if it does not resolve. Please keep her in your thoughts and prayers. Dash
Comment by Sarah DiGerolamo on January 13, 2009 at 7:39am
Dear Jill,
I am truly sorry to hear about Matt. It hits very close to home right now. My best friend's 18 yr old daughter just passed away from Ewing's Sarcoma, and our other very close friend's daughter is on her way also, with Ewing's. It is also similar to Rhabdomyosarcoma, which my son has. I am very, very sorry.
Comment by Kim on December 31, 2008 at 8:30pm
I'm so sorry to hear this, Steve looks like a fighter, if he beat it the first time, he can do it again.. You and your family will be in our thoughts and prayers.
Kim
Mom of Ty
Comment by Angie Giallourakis on December 31, 2008 at 7:24pm
Hi Everyone,
Thanks for all your support. Steve had his first round of chemo treatments. His body handled them well. We are waiting for his counts to go back up. He has had pancreatis due to asperagenase chemo and a few small fevers. Overall, he is okay. But can't eat right now due to the pancreatitis. His initial blood tests reveal NO CANCER CELLS, so we wait until his bone marrow test next week to check out his marrow. Hopefully there will be no cancer cells, and then he can move onto his next treatment and stem cell transplant. So, keep praying. God bless. Angie
Comment by Angie Giallourakis on December 23, 2008 at 12:04am
Please check out my message to the entire group. Steven was diagnosed a couple of weeks ago with secondary acute myelogenous leukemia as a result of this chemo for osteosarcoma. Steve will need a stem cell transplant. Anyone interested in becoming a donor can contact marrow.org.
 

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