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Team Sarcoma

if you are battling sarcoma, here you can join with others fighting the same fight....

Location: Everywhere
Members: 66
Latest Activity: Mar 1, 2012

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Comment by Laura Ortiz on August 13, 2008 at 12:59pm
I am one of the families Debb connected with during Alexa's treatment. I agree that we need to do all we can to raise awareness and be there for people who are faced with this rare kidney cancer. My son is doing very well in spite of the cancer and the treatments that followed. I am happy to share our positive experiences in the 11 years that have followed the removal of Dakota's kidney, the chemo, and the radiation. He's our inspiration!

Laura
Mom to Madi, 15 and Dakota, 12, DX: Clear Cell Sarcoma of the Kidney 5/5/97
Comment by Alexa's Mommy on August 12, 2008 at 11:22pm
My daughter, Alexa, was diagnosed with Clear Cell Sarcoma of the Kidney last June. I've been able to 'connect' with about 10 other CCSK families from across the world and we are noticing differences in how are children are being scanned 'post' treatment. We often e-mail each other, so we can stay on top of what each hospital/doctor is recommending. If there is one thing I've learned this last year, it is that 'we' are our children's best advocates and that is exactly what I intend to do-advocate. Feel free to e-mail me. Thank You!Debb Moore
 

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Coalition Against Childhood Cancer

PAC2 is proud founding member of the Coalition Against Childhood Cancer!

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