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Comment by Eric Mitcheltree on January 29, 2013 at 3:24pm

All, 

Camp Sunshine in Casco, ME will be having a Wilm's Tumor Session this spring. The dates are April 17-21. 

http://campsunshine.org/programs/

Last year we had 8 Wilms families there. It's a great time for the family and great opportunity to talk with other Wilms families!

Comment by Mary Anne Thomas on March 25, 2009 at 5:42am

Hi everyone. I am a 42-year-old survivor of Wilms. I was diagnosed in 1969 when docs had no idea how to treat this type of cancer. They basically told my parents they would try certain things but only gave me 2 to 4 percent survival rate. Thank goodness my angel stepped in and took over my care. He was always there up until his death two years ago. He still followed my health once a year until I moved out west. Then he was always available by telephone either at his office or at his home. I am seeking survivors in their early 40s to swap stories and share information on long-term effects. The long-term effects of the treatment have been difficult especially those dealing with the radiation damage. I hope someone out there will be able to guide me to another member. Thanks. My prayers are with all the parents going through cancer with their children.

Comment by Renee Frugoli on March 8, 2009 at 4:27pm

Felicia was diagnosed with stage 5 favorable cancer on December 10th 2007. For now she is well and we go back for scans on April 8th. Her story is on www.caringbridge.org./visit/felicia

Comment by Kris Rech on March 8, 2009 at 12:43pm

While in DC in February for CureSearch Team Leader Training, Diane and Steve Brestel and myself had a meeting with CureSearch to discuss the CureSearch National Wilms Tumor Initiative.

At the time of the meeting we learned that the balance in the Initiative was $218,000.00

We also had a conference call with Dr. Dome. During the conference call he updated us on how the money in the Initiative was going to be spent, and the process that was used to determine what grant would be funded.

Discussion was held about the COGS Anaplastic Wilms Tumor and Rhabdoid Tumor Meeting.

I will contact Dr. Dome and ask him to send us an update on the meeting and to also give us an overview of the grant to Dr. Elizabeth Perlman that was funded.

THANK YOU TO EACH AND EVERYONE OF YOU WHO HAS CONTRIBUTED TO THE CURESEARCH NATIONAL WILMS TUMOR INITIATIVE!

You should be very proud of the research that will be taking place as a result of your efforts.
The Wilms Tumor community has made an impact on Capital Hill, within CureSearch at Team Leader meetings, and at Reach the Day.

On behalf of Steve and Diane Brestel and my husband Jim, I look forward to your help in getting the Conquer Childhood Cancer Act funded, and to more research funded through the Initiative.

Kris Rech

Comment by Renee Frugoli on February 14, 2009 at 6:06pm

Felicia is a survivor of stage 5 wilms as of August 20th 2008. Her story is posted on www.caringbridge.org./visit/felicia

Comment by Carrie Black on November 26, 2008 at 11:14pm

Orange I have seen for Leukemia.

Comment by Carrie Black on November 26, 2008 at 11:14pm

I have never seen orange for kidney cancer, only green.

Comment by Tasha Yaksic on November 24, 2008 at 5:26pm

I think that the color was changed along time ago. There is a great web-site that I found that explains what each color means. It also has cool cancer awarness things such as clothing, wrist bands, and car magnets. It also has other links to other sites, It tell you how to start and orginize fundraisers. www.choosehope.com

Comment by Tasha Yaksic on November 24, 2008 at 5:21pm

How wonderfull to have found others!

Comment by Sara Schumann on October 23, 2008 at 12:50pm

I did see that there was one site that listed orange as being for kidney cancer survivors, but ACS is still showing green as being the color. I wonder who changed the color?

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