Sources of Info on Childhood Cancer

While researching your child's cancer, these sites may prove valuable.  

Couple tips: 

1 - While looking at medical journal articles online, you may find that you can only access the abstract without a subscription to the journal that it is published in.  A quick and easy way around that is to Google the author's name and affiliation.  Typically, you will be able to track down his or her e-mail.  I found that in every case, they were more than willing to send me the article

2 - Just because its called the "National" something, does not mean its the biggest or best.   


Childhood Cancer

  • CureSearch - Resources
    As much as I have visited the site, I had never seen this.  It is buried at the bottom of the page, next to Glossary and Contract Us, there is this link to resources.  Really, our pages here are a weak imitation of the CureSearch page.  The nice thing about OURs, is that we can be honest about our appraisals, add ones that work, delete those we don't like.  But - with that said, CureSearch has done an excellent job pulling them together. 

  • Childrens Cancer Web
    This is much like a Yahoo or Google Directory for Childhood Cancer links. Its hard to tell how up to date the info is, some pages say updated 2003.  But most of it is still good and the larger orgs have not changed.

  • The Childhood Brain Tumor Foundation
    The Childhood Brain Tumor Foundation (CBTF) was founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected.

Others. Have info, dig deep for childhood stuff though. 

  • American Brain Tumor Association
    The American Brain Tumor Association (ABTA) is a not-for-profit, independent organization. Not affiliated with any one institution, we serve individuals globally and award funds to researchers throughout the United States and Canada. Founded in 1973 out of a desperate need, the American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.

  • American Cancer Society
    The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. Which is all lovely.  But they only provide less than a penny on a dollar of their funds to childhood cancer, and the only receive two stars in Charity Navigator. 

  • American Society of Clinical Oncology
    Has some valuable resources; an explanation of clinical trials, information on all types of cancer, resources and coping strategies.   Probably nothing you can't find elsewhere

  • Bonetumor.org

    Claims to be the webs most comprehensive source of bone tumor information.

  • Chemo Care
    Scott Hamilton's chemotherapy site offers chemo information for cancer patients and their families, caregivers and friends. Outlines all you should know about chemotherapy and cancer treatment.

  • Columbia University Integrative Therapies Program
    The Integrative Therapies Program for Children with Cancer in the Division of Pediatric Oncology at Columbia University Medical Center, Morgan Stanley Children's Hospital of New York-Presbyterian provides free complementary and alternative medicine (CAM) therapies to children with cancer and their families through and beyond cancer treatment. Our research is expanding outside North America through our international initiatives. Our interactive website serves as a central educational and research resource on children with cancer and integrative medicine.

  • Cure Lymphoma Foundation
    The Lymphoma Research Foundation (LRF) is the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF's mission is to eradicate lymphoma and serve those touched by this disease.

  • Eye Cancer Network
    An educational Web site that covers diagnosis and treatment of ocular tumors, eye cancer and orbital disease for patients and their families.

  • Leukemia and Lymphoma Society of America

    The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The mission of LLS is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, LLS has invested more than $550 million for research specifically targeting blood cancers.

  • National Brain Tumor Foundation
    The National Brain Tumor Foundation (NBTF) is a nationwide 501(c)(3) non-profit organization serving people whose lives are affected by brain tumors. We are dedicated to promoting a cure for brain tumors, improving the quality of life and giving hope to the brain tumor community by funding meaningful research and providing patient resources, timely information and education.

  • National Cancer Institute
    Cancer.gov.  Need we say more? Good section on clinical trials.

  • National Coalition for Cancer Survivorship
    The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care.  NCCS organizes Cancer Advocacy Now!™, a legislative advocacy network that engages constituents across the country in federal cancer-related issues. Patient education is also a priority for NCCS. We believe that access to credible and accurate patient information, such as NCCS’s award-winning Cancer Survival Toolbox® is key to demanding and receiving quality cancer care.

  • Pain Foundation
    Founded in 1997, the American Pain Foundation is an independent nonprofit 501(c)3 organization serving people with pain through information, advocacy, and support. Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. Offers ideas on advocating for yourself with your doctor as well as pain management ideas.

  • Steve Dunn's Cancer Guide
    CancerGuide is created by Steve Dunn, a survivor. CancerGuide is different from most sites. It is primarily about helping you learn how to find the answers to your questions and especially to helping you learn what questions you need to ask. It also covers other aspects of coping from attitude to finances. With the big exception of kidney cancer, it does not maintain much information on treatment of specific cancers, although it will guide you to such information elsewhere. CancerGuide will help you to understand your options as deeply as you want to or need to. This includes delving into the latest technical medical literature on the disease.

  • The Oncologist
    The practice of oncology and hematology is more challenging than ever before. Physicians are charting new territories in cancer patient care and practice management. The Oncologist was established by oncologists to help physicians better manage their practices in a changing and challenging environment—to guard against the future and ensure their patient's rights to the best health care possible.

  • University of Pennsylvania Cancer Center - OncoLink
    OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. Recent changes have been made to OncoLink to update the look and feel of our site.
  • MD Linx
    Site scans 1200 journals and sorts articles.  You can sign up for free, customize your search, and get an email daily or weekly with the latest news on your area of interest.  Pediatric Hemoc is one area they publish

  • Cure Today
    Good source of well written, no nonsense articles on cancer.  Many on issues effecting the lack of progress in childhood cancer research.  Free subscription

  • Cancer News
    Cancer News on the Net® is dedicated to bringing patients and their families the latest news and information on cancer diagnosis, treatment and prevention. This service is offered for free as our gift to you. Hopefully, you will find it helpful. The only thing we ask is that you let us know how we can improve!

  • MedLine Plus
    MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

  • Free Medical Journals
    While you likely get what you pay for it might be worth a shot if you are researching.

Last updated by AJs Dad Mar 24, 2011.

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