"Hi Amanda, Patricia and Bob!
My son was diagnosed with Ph+ALL in March 2010 at the age of 5. He did 10 months on an experimental Dasatinib (Sprycel) protocol but because he relapsed while receiving treatment he had a bone marrow transplant from an…"
"Hello Patricia, I would love to talk to you. Thank you for responding to my message. My email is email@example.com. If you could email me your phone number, I would like to ask you some question's. Thank You for your time, and I…"
"My son was diagnosed @ 14 years old with BAL (biphenotypic Acute leukemia) +PH, and leukemia in the CNS in 2/2006, rare, rare, rare.... he had a double umbilical cord transplant in 8/2006 ( no live match in the bone marrow bank). He is now a…"
"Hello, I just joined this website and notice your request. I am here also to find people that have children with ALL PH+. My son Robert was diagnosed on 3-12-2007 at the age of 5 1/2. He had a stem cell transplant on 7-18-2007. If you would…"
Hello Dear, How is everything with you,I picked interest on you after going through your short profile,I have something very vital to disclose to you,but I found it difficult to express myself here,since it's a public site.Could you please get back to me on(firstname.lastname@example.org)for the full details. Have a nice day. thanks Bruno Serra.
HI Amanda! Great to find you on here! Wondered if you ever invited Tiffany to this site? I mentioned it to her but couldn't remember the address at the time. Thought I better ask before sending another email if you did already.
I think we know many of the same people. I hear about you and little Aspen often on caringbridge/carepages of some of our friends. My 3-year-old son Lane is a neuroblastoma survivor, also treated at CMH. He was in treatment at CMH from May 2006-Sept. 2007. His doctor is Dr. Max. He now goes to CMH every 3 months for scans.
I have prayed for Aspen and will continue to do so. She sounds like a wonderful, brave and strong little girl.
I hope you will consider joining the PAC2 Midwest Group. There are many other CMH moms that are members. Our goal is to advocate for change, make friendships and raise awareness for childhood cancer in our region. You can join under the Groups tab on this page.
Take care. I'll pray for complete HEALING for little Aspen!