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Philidelphia Positive ALL

Started this discussion. Last reply by Jenica Thurber Oct 31, 2011. 4 Replies

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Jenica Thurber replied to Amanda's discussion 'Philidelphia Positive ALL'
"Hi Amanda, Patricia and Bob! My son was diagnosed with Ph+ALL in March 2010 at the age of 5. He did 10 months on an experimental Dasatinib (Sprycel) protocol but because he relapsed while receiving treatment he had a bone marrow transplant from an…"
Oct 31, 2011
bob caulfield replied to Amanda's discussion 'Philidelphia Positive ALL'
"Hello Patricia, I would love to talk to you. Thank you for responding to my message. My email is If you could email me your phone number,  I would like to ask you some question's. Thank You for your time, and I…"
Oct 29, 2011
Patricia replied to Amanda's discussion 'Philidelphia Positive ALL'
"My son was diagnosed @ 14 years old with BAL (biphenotypic Acute leukemia) +PH, and leukemia in the CNS  in 2/2006, rare, rare, rare.... he had a double umbilical cord transplant in 8/2006 ( no live match in the bone marrow bank). He is now a…"
Oct 27, 2011
bob caulfield replied to Amanda's discussion 'Philidelphia Positive ALL'
"Hello, I just joined this website and notice your request. I am here also to find people that have children with ALL PH+. My son Robert was diagnosed on 3-12-2007 at the age of 5 1/2. He had a stem cell transplant on 7-18-2007.  If you would…"
Oct 26, 2011

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Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
My daughter Aspen has Phillidelphia Positive ALL. She is doing really well and progressing through her chemo treatment very quickly.

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At 10:29am on June 3, 2015, Bruno Serra said…

Hello Dear,
How is everything with you,I picked interest on you after going through your short profile,I have something very vital to disclose to you,but I found it difficult to express myself here,since it's a public site.Could you please get back to me on( the full details.
Have a nice day.
Bruno Serra.

At 2:52pm on November 9, 2008, Jill Bolling said…
HI Amanda! Great to find you on here! Wondered if you ever invited Tiffany to this site? I mentioned it to her but couldn't remember the address at the time. Thought I better ask before sending another email if you did already.
At 7:37pm on November 1, 2008, Kara Cunningham said…
Hi Amanda,

I think we know many of the same people. I hear about you and little Aspen often on caringbridge/carepages of some of our friends. My 3-year-old son Lane is a neuroblastoma survivor, also treated at CMH. He was in treatment at CMH from May 2006-Sept. 2007. His doctor is Dr. Max. He now goes to CMH every 3 months for scans.

I have prayed for Aspen and will continue to do so. She sounds like a wonderful, brave and strong little girl.

I hope you will consider joining the PAC2 Midwest Group. There are many other CMH moms that are members. Our goal is to advocate for change, make friendships and raise awareness for childhood cancer in our region. You can join under the Groups tab on this page.

Take care. I'll pray for complete HEALING for little Aspen!

Lane's mommy
At 12:06pm on October 25, 2008, Aimee Nilsen said…
Hey sweetie! Anything I can do to help raise awareness for what these kids are growing through. Miss you tons, and think of you all every day, even if I don't write every day! HUGS!!!

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