Andrea Rockefeller
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west orange
new jersey
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Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
my son was diagnosed with neuroblastoma IV in 8/06.
he has been NED since 4/07
doing great finished 6 antibody treatments at sloan kettering nyc

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Comment Wall (8 comments)

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At 2:11pm on March 8, 2009, Lori Ahern Miller said…
Pleased yes, just overwhelmed. Do you know of any child that has ended up with nerve damage because of the 3F8 treatment?
At 7:51am on March 8, 2009, kirsty sharkey said…
we live in manchester
At 7:50am on March 8, 2009, kirsty sharkey said…
nathan starts radiotherapy on the 17th he,s doin ok he went back to school last week and is loving it
At 11:25am on March 7, 2009, Lori Ahern Miller said…
What antibody is your son doing in NY? 3F8 or 8H9? We were just in NY last week for information on the 8H9 antibody.
At 7:47am on March 4, 2009, kirsty sharkey said…
how old was he wen diagnosed?
At 7:47am on March 4, 2009, kirsty sharkey said…
was he high risk NB
At 1:50am on November 8, 2008, the thomas family said…
how wonderful to hear hes doing great- he looks like a pretty tough little guy- :) our only son has ALL we are halfway thru maintence but so thankful that we are here - may God continue to bless your family
At 1:26pm on September 23, 2008, AJs Dad said…
Dear Andrea,

welcome to PAC2 and great news for Willie being NED! We are a community of parents, friends, survivors, medical professionals, childhood cancer organizations (CureSearch, Alex's Lemonade Stand, Make-A-Wish and others) and concerned citizens, all with the same goal - eradicate Childhood Cancer.

My first initiative was the Childhood Cancer Awareness Petition. The Petition was started before Stand Up 2 Cancer, and now has over 14,000 signatures with the objective to have a major TV network produce a show solely on Childhood Cancer. To be childhood cancer's "Inconvenient Truth" moment.

The format is unique. You can have friends, post photos and videos, blog, participate in Forum discussions, start Groups about your interest, chat live with other members, promote fundraisers or join a Group that is focused on your interests in childhood cancer. It's interactive and will continue to evolve.

While all those features are nice, it still takes ACTION. This is truly the reason PAC2 started. Each day or so, I will feature some ideas for members in the highlighted section on the home page called "Stuff to Do Today". This is where I call on each member to participate and act. You can get started here.

I look forward to your contributions and ideas, and working together in the future. Thanks again for being here, I am sorry you have to be............AJs Dad

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