Claire went to the endocrinologist for the first time since she left the hospital today. They said shes still not ready to wean down anymore yet, and they noticed all the teeth she has. They ordered an Xray to check her bone age. They did an Xray of her hand and knee to look at the growth plates. You can read below to see why.…Continue
Educate yourself on adrenal cancer, For those who know Claire I'm sure you wish you wouldn't have read this though
From emedicine.com (AC is adrenal cancer)
Patients with functional AC may have a better prognosis because they present earlier, unlike patients with nonfunctional variants, who invariably present…Continue
Yesterday (1-6-12) was the third day Claires dose was set at every 8 hours instead of every 8 hours. She has been doing very well however, yesterday my mom noticed her starting to stink again and had to give her a bath in the middle of the day.
I dont know if this is a step back since her body odor has been gone, or a step forward meaning her other gland is working...
Accepting denial? I realized a few days ago I am in denial. This has nothing to do with Claires progress but perhaps it might help other parents. My husband and myself still have yet had time to stop and comprehend or grieve or even cry about anything thats happened. Day 1 was an immediate trip to the hospital. Day 2 was surgery and Day 3 on was take care of claire. We haven't had a moment to stop and say My daughter has cancer.... my daughters having surgery...my daughter.. Every moment…Continue