Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
In the summer of 1985 I was a normal, active five-year-old child learning to ride my bike. After a hard fall, I was very ill for two days and we discovered that the illness was not due to the fall, I was diagnosed with Acute Myelogenous Leukemia(AML), and was started on chemotherapy. I went into remission very quickly and we began to feel hopeful. All went well until January of 1986, when I relapsed. Doctors put me on experimental treatments for a little over a month, but it did not work. The hospital had no other treatments to offer us, so they told us to go home, be a family, and try to keep me comfortable. In August of 1986, I began to bleed fro my brain. I was airlifted to Arkansas Children's Hospital, where I had yet another hemorrhage in the brain. The doctors informed me that I had 86% leukemia blasts. They started me on chemotherapy again and I immediately went into remission. Although AML can be easy put into remission, it gets increasingly hard to hold remission each time a relapse occurs. For this reason we considered a bone marrow transplant. My family was tested in November and my one-year-old brother was found to be a perfect match. On April 22, 1987, I received the transplant. It was successful " textbook" case. I came home in June, and for the first time since being diagnosed I was the normal, active little girl again.
All was going great until the summer of 1989. A knot appeared behind my right ear and after a biopsy, it was found to be a mucoid-epidermoid carcinoma of my parotid gland. It was surgically removed in September of 1989 at UAMS.
As I look back I recognize the importance of my special time at Camp Quality;getting together with other kids like me and making friends. At the time it just seemed like fun. I spent the year wondering what the theme of camp was going to be, what I was going to bring to cam, and what I was going to wear to the dance on the last night of camp. Now I relize it was a suitable form of therapy and I cannot imagine where I would be without it. I give thanks to God, doctors, nurses, social workers, pastoral care, and the cancer camps like Camp Quality!
I have now been involved with Camp Quality for 19 years now. I really like working with the kids there now. It gives me a chance to give back to them what someone once gave to me!
Yep, we are good. We're staying busy too. We have not received anything yet on reunion, don't know any details or when...but we sure hope to be there if we can! Jessica still in chemo, so it will really depend on her schedule....hoping the timing is right. She really hated missing the water park because of chemo.
Hi I just joined this group yesterday. I'm a survivor of Bilateral Retinoblastoma. I too love working at a camp for cancer and sickle cell patients. I love helping show the kids a wonderful week at camp. It's a wonderful thing we can do for them considering we've been through the some of the same things they're facing.
I want to thank you for joining PAC2. We are a network of parents, friends, survivors, medical professionals, childhood cancer organizations and concerned citizens, all with the same goal - to help eradicate Childhood Cancer.
My first initiative was the Childhood Cancer Awareness Petition. The Petition has over 14,000 signatures and its objective it to have a major TV network produce a show solely on Childhood Cancer, thus raising awareness.
We also seek to become a clearinghouse for childhood cancer organizations, a "one stop shop" for anyone interested in learning more, participating in the fight, attending fundraising events, or simply sharing stories and friendships with other people who are fighting this terrible disease.
The format is unique. You can have friends, post photos and videos, blog, participate in Forum discussions, start Groups about your interest, chat live with other members, promote fundraisers or join a Group that will have other organizations listed focused on childhood cancer. It's interactive and will continue to evolve.
While all those features are nice, it still takes ACTION. This is truly the reason PAC2 started. Each day or so, I will feature some ideas for members in the top middle section called "Stuff to Do Today". This is where you pay your dues. This is where I call on each member to participate and act.
I look forward to your contributions and ideas. Thanks again for being here............AJs Dad