Dash Wallooppillai
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Ishani's Journey

Started this discussion. Last reply by Dash Wallooppillai May 14, 2009. 8 Replies

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Latest Activity

Team Scot Foundation commented on Dash Wallooppillai's blog post 'My thoughts about the American Cancer Society'
"Dash, My 19 year old son was diagnosed with Rhabdomysarcoma in June 2012 and has relapsed just last month January 2014. I am scared to death of losing my child to this horrible disease and very disturbed by the research I have done on research for…"
Feb 2, 2014
Randall Hartman commented on Dash Wallooppillai's blog post 'My thoughts about the American Cancer Society'
"I have serious issues with the ACS.   Sometimes I think they are just more concerned about raising money for their pet research buddies, than actually curing cancer.  Unlike the American Lung Association who actively campaigns against…"
Apr 3, 2012
Sean's mom commented on Dash Wallooppillai's blog post 'My thoughts about the American Cancer Society'
"Great job, Dash!!! You have been able to put into words all of the emotions I have been feeling since the uproar started and ACS got a taste of how angry families of childhood cancer patients are. I even messaged the cc dad who works for ACS - the…"
Mar 1, 2012
Suzanne Dahl-Crumpler commented on Dash Wallooppillai's blog post 'My thoughts about the American Cancer Society'
"Well said Dash.  I could not agree more.  I have and will continue to address my similar concerns to ACS.  I will conitnue to donate my money and educate others to donate thier money to other organizations that are better stewards for…"
Feb 25, 2012
Dash Wallooppillai posted a blog post

My thoughts about the American Cancer Society

My thoughts about the American Cancer Society So this is written out of frustration and sadness. These are MY thoughts.  If my view offends you, then I am sorry….I am speaking as an advocate for ALL our children. I DO CARE about every person affected by cancer, but our kids have no voice and sadly not many adults choose to speak on their behalf. Recently there has been a lot of talk regarding the American Cancer Society and it’s lack of support of Childhood Cancer. There are days when I get…See More
Feb 23, 2012
Dash Wallooppillai posted a blog post

WHY

Why?It has been over 5 years since my 9 yr old daughter was first diagnosed with cancer (Rhabdomyosarcoma), and never once did I think “why Ishani”. The truth is it can be any of our kids. 36 kids are diagnosed each day in the U.S. 1 in 300 kids are diagnosed before the age of 19. So why do we think it will NOT be our kid?But I have repeatedly asked “why children?”, “why our kids?”. Sadly over the past 5 years I have not found any comforting explanations for “why?”. Childhood Cancer is…See More
Jan 21, 2012
Lisa Molina is attending Dash Wallooppillai's event
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CureSearch Milestone Walk - Austin, Texas at Hill Country Galleria

September 11, 2010 from 8am to 12pm
Join us as we walk in honor of all children touched by cancer and raise money for CureSearch for childhood Cancer research and raise awareness. September is National Childhood cancer awareness month.
Sep 6, 2010
Dash Wallooppillai posted a blog post

September is coming - why I do what I do.

I posted this on facebook and sent it to my family and friends (to explain why I am always talking about childhood cancer and why I am always trying to get them involved). While on a personal level we get a lot of love, support and prayers, I need them to understand why it is even more important to fight for our kids.To my family and friendsSeptember is Childhood Cancer Awareness Month and it is less than 3 weeks away. We have many fund raising events planned and I wanted to take this…See More
Aug 16, 2010

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City
Georgetown
State
TX
Country
USA
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
www.carepages.com/carepages/Ishani
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
My 6 yr old daughter Ishani was diagnosed with Alveolar Rhabdomyosarcoma in her leg in June 2006. After surgery, radiation and 42 weeks of chemotherapy, she was in remission and doing really well. Sadly last week she was diagnosed with a relapse. We don't know what the future holds for her or us, but we will continue to enjoy every moment we have together.

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Dash Wallooppillai's Blog

My thoughts about the American Cancer Society

Posted on February 23, 2012 at 10:17pm 5 Comments

My thoughts about the American Cancer Society

 

So this is written out of frustration and sadness. These are MY thoughts.  If my view offends you, then I am sorry….I am speaking as an advocate for ALL our children. I DO CARE about every person affected by cancer, but our kids have no voice and sadly not many adults choose to speak on their behalf.

 

Recently there has…

Continue

WHY

Posted on January 21, 2012 at 9:30pm 0 Comments





Why?

It has been over 5 years since my 9 yr old daughter was first diagnosed with cancer (Rhabdomyosarcoma), and never once did I think “why Ishani”. The truth is it can be any of our kids. 36 kids are diagnosed each day in the U.S. 1 in 300 kids are diagnosed before the age of 19. So why do we think it will NOT be our kid?

But I have repeatedly asked “why…

Continue

September is coming - why I do what I do.

Posted on August 16, 2010 at 6:30pm 0 Comments

I posted this on facebook and sent it to my family and friends (to explain why I am always talking about childhood cancer and why I am always trying to get them involved). While on a personal level we get a lot of love, support and prayers, I need them to understand why it is even more important to fight for our kids.

To my family and friends

September is Childhood Cancer Awareness Month and…

Continue

Please help me understand...

Posted on July 9, 2010 at 3:19pm 4 Comments

I am trying hard to understand why it is so difficult to get support for childhood cancer and even harder to get funding.



I have some simple questions..



1) If you had to choose between you or your kid having cancer who would you choose:

a) yourself b) your kid



2) If both you and your kid had cancer and there was enough money to find a cure for one of you who would you choose the cure for…
Continue

Need to vent!

Posted on March 29, 2010 at 1:47pm 5 Comments

When I feel "down" I always turn to PAC2 for comfort and inspiration. I guess I do the same when I need to vent...

I spend many hours a day (like all of you) to advocate for our kids, spread awareness and fundraise. We just raised $2200 from a Silent Auction for the Alex's lemonade stand. At the end of the day I feel like I have contributed in some small way to make a difference for the generations to come.

But then I get home and find the American…

Continue

Comment Wall (30 comments)

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Join People Against Childhood Cancer

At 1:14pm on November 7, 2009, Lisa Binkley said…
Hi Dash,
Thanks for the message!
Lisa Binkley
At 7:19pm on October 12, 2009, Brenda Everson-Wiesman said…
Hi Dash,
Thanks for adding me as your friend. Sending you positive thoughts and prayers for clear scans. Thinking positive is the only way to get through it, we have found.
At 10:36am on October 12, 2009, Angie Giallourakis said…
Hi Dash,
thanks for your message...prayers that your child has clear scans!!! I know the stress you are feeling! It is a very heavy weight on the heart and mind. Hang in there!
Angie
At 3:02pm on October 7, 2009, Sean's mom said…
Dash,
I just read your blog. I guess I am not alone, huh?
Thanks for sharing your wonderful letter; I know it will make an impact.

Mary Beth, Sean's mom
At 8:06am on September 29, 2009, AJs Dad said…
i told su2c about it yesterday....still not working..
At 8:16pm on July 30, 2009, Sarah Nyberg said…
Thank you for steering me to this site. I know that I'm only one voice but at least I know that it's loud and I will do whatever I can to get this message out. I'm sure I will see you again soon at the clinic. : )
At 10:21am on June 26, 2009, Michaelle said…
hello

www.caringbridge.org/visit/lanefickler

www.jmmlfoundation.org

michaelle
At 3:12pm on June 23, 2009, Lisa Molina said…
Dash - Also, who is your Congressional Rep? Mine is Lloyd Doggett.. I'm going to invite him to tour the clinic and Dell Children's with me and other reps and parents from the clinic in August. Are you interested in also inviting your rep?
At 3:11pm on June 23, 2009, Lisa Molina said…
HI Dash - Good luck with your ALSF stand coming up! I will e-mail you about my meeting with Cynthia. We are trying to plan a large fundraiser/bone marrow drive/awareness event for September - hopefully it will attract lots of local media coverage. Cynthia has a ton of contacts! Lisa
At 1:22pm on June 23, 2009, Lisa Molina said…
Hi Dash - I met with Cynthia at the clinic this morning about September events here in Austin. Would love to talk with you about them - and also, she mentioned that People magazine is doing a story on your Lemonade Stands? Is this true? Any chance they might do a story for September CC Awareness?
Call me at 512 288-1683 if you want to talk.
Lisa Molina - Austin
 
 
 

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