Freda Tao
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My son is 11 years old, he's a younger twin... diagnosis with Diffuse Intrinsic Pontine Glioma on July 30, 2008.... just earned his wings on Nov. 22, 2008.

Freda Tao's Blog

All I want for Christmas...

Posted on December 16, 2008 at 2:20am 0 Comments

Christmas is coming
Bells are ringing
My heart feels empty
when Bentley is missing.

All the joy of shopping and the fun in decorating
seemed to vanish when I see the candles burning.

The days are gone
but the love still here
Wishing you a Merry Christmas
and feel you in my heart

All I want for Christmas... is you!

the happiest angel...

Posted on November 23, 2008 at 1:34pm 49 Comments

Bentley's battle with the 'monster' is over... 3 months and 22 days... is over!

He now can smile, can laugh, can draw, can run, can tell silly jokes,again!
I believe he's having a great time seeing his great-grandparents, or playing with some new friends, like Mathew, AJ or Caitlan..

... but I missed him so much!

Songs of Love...

Posted on November 14, 2008 at 10:37pm 2 Comments

Please check out my blog for Bentley's Song of Love! Even though it's me who provides all the infos... I like the song, it's so sweet to have a song about Bentley!

Bentlley is now in his 'sleeping mode' all the time, but there's times that he's 'awake', and I'm sure he can hear and sense us when we hold his hand or hug him... I think he like his song too... because he gave me a 'facial movement' when I ask him if he likes it... and I take it as a 'yes'!

Glad that he's… Continue

To Bentley... from Mommy

Posted on October 31, 2008 at 4:22am 3 Comments

One of the twins is who you are

Double my fun is what you bring...

Blessed with love and blessed with joy

We play, we read, and we like to draw...

Don't you know I'm so eager to see you to be an illustrator?

So sad to see you get so sick

Too bad I can't even do a thing...

Give you hugs and hold you tight

Stay by you in every night.

Close my eyes and make a wish

Hope that you can get well soon.

Keep on… Continue


Posted on October 17, 2008 at 12:00am 3 Comments

July 30, 2008 is the worst day of my life. It's the day that Bentley has dx with DIPG after feeling headaches, dizziness and numbness on his left fingers. He had a MRI the night before at the Children's Hospital Orange County, CA... and found out it's abnormal.... My brain just went blank, but then lots of questions came up to my mind and I remembered my husband was sitting there like frozen... but I kept asking questions to the doctors on what, when, how,... & why!? My brain just keep… Continue

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At 10:00pm on December 24, 2008, dari mcmanus said…
i hope you have a tolerable holiday. much love and im never gonna stop taking those pics, and loving these kids.
you remain in prayers
At 1:56pm on December 17, 2008, dari mcmanus said…
lean on the DIPG parents or even the other Angel parents THEY KNOW(much more than i do) how to perhaps, if not COPE with the holidays, and maybe there is no coping, but perhaps just getting through it.
you remain in prayers sweet freda
At 9:55am on December 17, 2008, vicki cotton said…
Still thinking of you Freda. I agree with Dari, DIPG sucks!
At 8:16am on December 17, 2008, dari mcmanus said…
thinking of you today as well.

At 7:42pm on December 3, 2008, dari mcmanus said…
still in my prayers
At 9:27pm on November 27, 2008, Kim Vaughn said…
Keeping you in my thoughts and prayers during this difficult time. May the warm memories you have of Bentley help carry you through the days ahead. I'm very sorry for what you are going through right now. Hugs...
At 9:00pm on November 25, 2008, Debbie Anderson said…
At 4:55pm on November 25, 2008, Angel ^^Dae Hons^^ Grandma Cheryl said…
I am so very sorry for the loss of your precious Bentley.
Sending you lots of hugs & love.

At 12:26pm on November 24, 2008, Shannon McNitt said…
I am so sorry for loss. My prayers are with you and your family.

Shannon McNitt
At 8:36pm on November 23, 2008, Sherry Monahan said…
We are so sorry for your loss. Sending you hugs and peace...
God Bless,
Sherry and Fiona

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