Julie Weber - ^Kayla's^ Mom
  • Female
  • Colorado Springs, CO
  • United States
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Julie - mom 2 Angel Kayla - wants to kick cancer's butt!

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Julie Weber - ^Kayla's^ Mom is attending Kelly Cyr's event

Reach the Day:2009 at Washington D.C

June 22, 2009 to June 23, 2009
CureSearch will be hosting the 9th annual childhood cancer advocacy event in our nations capitol. Join others in the childhood cancer community as we continue to sound the alarm to fund lifesaving research!VERY IMPORTANT NOTE:RSVPing to Pac2 will NOT be enough for a head count or to schedule meetings with members of Congress. I will send an additional announcement for registration for the event when it is posted on www.curesearch.org within the next week.See More
Mar 9, 2009

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Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
www.caringbridge.org/visit/kaylaweber
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
See more in the story section of CaringBridge.
Kayla was diagnosed with Neuroblastoma just before turning 4 months old. She suffered major complications and almost lost her life several times in the first days of diagnosis. She battled on and survived the first "wave" of treatment. Unfortunately the cancer was relentless and progressed to Stage 4 and became non-responsive to chemotherapy. Days after Kayla turned 15 months old - about one year into her treatment - Kayla lost her battle and went to Heaven to join many warriors that battled before her. I am dedicated to her and this cause ... forever. We have started The Kayla Weber Believe Foundation and are active with CureSearch (Colorado State Team Co-Leader).

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Comment Wall (15 comments)

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At 11:18pm on November 16, 2008, Paula Mella said…
Hi I joined yesterday,my daughter Kayla is 7,she also has a brain tumor.YOu look so young I cannot imagine what you are going thru,my heart and blessings go out to u.We will keep fighting this terrible monster!!
At 7:22pm on October 17, 2008, Lin said…
Hi. Just stopping by to say Hi. i learned about thsi site from Alexa's mommy. Then saw you belonged too.very small world indeed. Hope all is well with the new little one. Think of you often. Lin n Crew~*
At 10:22pm on October 2, 2008, Peggy said…
Hi Julie,
Kayla is so beautiful. I'm terribly sorry for your loss.

I wanted to invite you to join my new group I just formed today for PAC2 members in the Rocky Mtn Region. Hope you can join us!

Peggy
At 11:36pm on September 4, 2008, Kara Cunningham said…
Julie,
Thank you for all you and Jason do to raise awareness and funds for childhood cancer -- what an inspiration you are. And, happy 2nd birthday to sweet angel Kayla.
At 2:02pm on September 2, 2008, AJs Dad said…
Hi Julie,
I am trusting that you will add CS events as the are announced. Also, sorry I still need to post the CS update, thanks again for keeping us informed.....
At 11:25am on September 2, 2008, Michaelle said…
Hello,
Thinking of you.
Love the pic of you on here. So cute!

www.caringbridge.org/visit/lanefickler

www.jmmlfoundation.org
At 1:09am on September 2, 2008, Sandy Barker said…
Hi Julie,
I think we met in DC at Reach the Day. I am Christian's mom and I spoke with you and Stacey at your table.
I am glad to see you on PAC2 even though none of us wants to be here. Hopefully we can all make a difference.
Sandy Barker
www.caringbridge.org/visit/christianbarker
At 7:28pm on August 30, 2008, Tiffany Zook said…
I am excited to be a part of the group, let me know what I can do!
At 10:29pm on August 28, 2008, AJs Dad said…
Julie, and update on the Cure Search call?
At 12:14pm on August 13, 2008, AJs Dad said…
Julie,

I just sent you two messages, I think you can get them by clicking the little envelope in the top left of the page.....or else your inbox in top right where you change your settings......let me know if you do NOT get them OK? Thanks, and great Group!
 
 
 

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