"My son has also had problems with Vincristine, he had also developed neuropathy. His neuropathy also developed into Autonomic Neuropathy which was very difficult to over come. He has had a reduction in dosage of Vincristine to 50% and may not be…"
"My daughter had terrible pain from the vincristine. Along with the pain and tingling in her hands and feet, she had terrible joint pain and extreme pain throughout her body. The doctors did prescribe neurontin, and kept increasing the dose…"
"Our son Chase had severe tingling in his feet, legs, and hands afterwards. Your doctor can prescribe neurontin, which is actually an epilepsy drug, but it helps with the neuropathy. We had to ask for it too as the docs don't seem to…"
I am wondering what other Hem Onc Docs and parents are saying about sports with a port. Our doc is saying no contact sports like football. Our neighbors son also has ALL the same age as my son and his docs say there is no reason he can't play football. We are talking about removing his port during maintenance so he will be more free for sports and swimming but our doc says the steroids make it a no because of weak bones and joints. Just wanted to know how other parents are handling this.See More
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Child with ALL
My 11 year old son Ethan was diagnosed with B cell ALL 4/2/2010. He starts DI next week. We had a really rough start, typhyllitis during induction, and another infection in July. Right now he is doing pretty well. Almost to Maintenace.
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I'm glad Ethan is doing well and I hope things get easier for all of you once you get to the maintenance phase. Ethan's a handsome chap, and his Bob Marley hat shows his good taste in music, (good as in "the same as mine"). Thanks for joining. I hope you find something here to help you through, whether it's ways to help or just the comfort of others sharing your family's journey.