Levi's mama
  • Female
  • New Castle, VA
  • United States
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Levi's mama replied to Levi's mama's discussion 'Levi's story'
"Thank you, Connie. I'm so honored to be a part of the Story Room and can't wait to read the upcoming entries."
Aug 23, 2011
Levi's mama replied to Levi's mama's discussion 'Levi's story'
"Love you, too!"
Aug 23, 2011
Levi's mama replied to Levi's mama's discussion 'Levi's story'
"Thank you, Jeremy. I will definitely give him a huge hug for you. I'm so sorry for your loss."
Aug 23, 2011
Levi's mama replied to Levi's mama's discussion 'Levi's story'
"Regina, I'm so sorry for your loss. Aliyah and Levi are very close in age. Levi was in a wheelchair when he went to preschool. By the time he finished kindergarten, he was running down the halls, albeit a wobbly little run. He has tested out…"
Aug 23, 2011
Levi's mama replied to Levi's mama's discussion 'Levi's story'
"Hugs and love back to you. Xoxoxoxo"
Aug 23, 2011
Levi's mama replied to Levi's mama's discussion 'Levi's story'
"Love to Emmett!"
Aug 23, 2011
C. Hood replied to Levi's mama's discussion 'Levi's story'
"For your Levi, for every child, for the future!! Their stories MUST BE TOLD...thus, our voices become THEIR VOICES!! Children should be happy, healthy, carefree, worry free, HOSPITAL FREE, DOCTOR FREE, SURGERY FREE, NEEDLE FREE and cANCER/DISEASE…"
Aug 23, 2011
Regina Siddiqui replied to Levi's mama's discussion 'Levi's story'
"Thank you for being brave. You have been for many years. Our family started the "cancer" fight in 2005. Our daughter Aliyah was 6 and diagnosed with leukemia. She earned her wings just a year ago. When your child is diagnosed there is…"
Aug 22, 2011

Profile Information

New Castle
United States
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
Levi was dx 9/2/04 with high risk medulloblastoma. Off treatment 7/23/05. A true miracle... He also had posterior fossa syndrome/cerebellar mutism - had to relearn everything after surgery, including swallowing, speech, walking.... Now a proud first grader, bike rider and handsome boy. Mama's (and dad's, stepdad's and stepmom's) pride and joy, brother of Ethan, Gus and Kayleigh.

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Comment Wall (16 comments)

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At 10:17pm on September 15, 2009, Kristina's parents, Tom & Joanne said…
If you use the web site, it will cost $25 for the plate and a $3 PayPal fee. If you mail your application to us, it will cost $25. Please make your check out to: Childhood Cancer Awareness Foundation. Our address is on the our web site.
Thanks so much for your support. We have a total of 80 applications, so far. We need a total of 350.
V/r, Joanne
At 11:58am on September 2, 2009, Pete Hughes said…
Melina, how are you guys doing. Our guys are back on campus and wwere asking about Levi. Let me know if you need anything. Pete Hughes VT Baseball
At 10:37am on March 11, 2009, Kristina's parents, Tom & Joanne said…
Thanks for the kind words. Any exposure you can give will help all of us. We need everyone's help. Thankyou for yours.
At 8:52am on February 28, 2009, Kristina's parents, Tom & Joanne said…
For a year now, my husband and I have started a foundation for local children battling childhood cancer. We lost our seven year old daughter on Thanksgiving day, 2006 to Pancreatoblastoma, and we know firsthand the financial and logistical struggles that are encountered by families who are thrust into this unknown and frightening world. Our non-profit foundation uses its money to help ease some of the burdens that are faced by parents with sick children. We are trying to get 350 people to register for a Childhood Cancer license plate. If we can do this, the state of Virginia will approve this plate and the money the foundation receives will be used to help our neighbors, friends, maybe even ourselves. We have developed a web site explaining our cause and we even have DMV on board so that anyone can register right on line. I would value any time or publicity you can give to our mission and hope that you would call me at home at 757-485-1055 or on my cell phone at 757-323-7354 (husband's).
Thanks for taking a look at us, and I hope that you will call.

Joanne Kral
At 1:35pm on February 2, 2009, Renee Rodkey said…
He is such a sweetie. Your family is so blessed.
Abbeys mommy
At 1:19pm on December 31, 2008, Kay Gregory said…
What a precious young man. Children are such a blessing and Hope is what keeps us going. Love and Blessings to you.
At 2:06pm on December 25, 2008, Lisa Jaeger said…
Finally I have heard from someone with the happy ending I really needed to hear!!! I hear of other medullo "happy" endings but not from someone with disease progression like my son. Thank you soooo much!! Merry Christmas!!
At 11:09pm on December 17, 2008, Sy's mom said…
Thank you for sharing your story. I am so grateful that Levi is doing well ~ hugs
At 7:51am on December 15, 2008, Heide Randall said…
Hi, Melina. That's so incredibly sweet!!!!! That's a future advocate in the making right there!! Thanks for sharing, and thanks for all your support. I wish you and your family a beautiful Holiday.

At 1:02am on October 10, 2008, Rebekah said…
I have a medullo surviving first grader, too.
Was so pleased to hear another success story on the discussion page.

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