Sweet Lily's Dad
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  • New York, NY
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New York
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
My name is Lily. I am 4 years old and I am a very happy,thriving little girl... I have a brain tumor. It is a grade II, infiltrating mixed glioma( astrocytoma AND oligodendroglioma ) in the thalamus. Because of the location they cannot touch it without "destroying me". I was just recently removed from a COG protocol after 14 months, due to an allergic reaction to carboplatin. The protocol was a pilot study of carboplatin, vincristine and temodar. I tolerated the treatment very well. My parents are now supporting me with a variety of nutritional/supplemental and homeopathic remedies in the hope that the tumor will not grow, and perhaps get smaller, until the day that a cure is found!

The Lily Fund

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Sweet Lily's Dad's Blog

Pediatric Study Finds Alternatives for Radiation of Low Grade Tumors

Posted on October 15, 2008 at 10:24am 0 Comments

Pediatric study finds alternatives for radiation of low-grade brain tumors

Chemotherapy may help delay cranial radiation and minimize damaging side effects

Joann L. Ater, M.D., professor of pediatrics and special assistant to the VP for Medical Affairs, CMO Office.

Click here for more information.

HOUSTON - A multi-institutional study led by researchers at The University of Texas M. D. Anderson Cancer Center has found that using chemotherapy… Continue

This is the very first tool I used upon hearing the Dr.s words, " I see a mass..."

Posted on October 2, 2008 at 10:39am 4 Comments

For Google's 10th anniversary, they've brought back the oldest available index...
Interesting to take a look at what we did,and did not have access to just 7 years ago! I thank Google for existing.
Interesting to search for things AFTER 2001, it's as if they never existed.
A nice way to waste some quality time...


Maybe somehow we could get Google to help us with our mission...

When Thumbs up isn't enough...

Posted on September 17, 2008 at 6:17pm 0 Comments

Here's something I found 3 months ago that really resonated with me, how 'bout you?

When Thumbs Up Is No Comfort


Published: June 1, 2008

OVER the Memorial Day weekend, the actor Patrick Swayze, who is being treated for pancreatic cancer, made a pointedly public appearance at a Los Angeles Lakers game, looking strong-jawed and bright-eyed. He released a statement about his lively schedule and good response to therapy.… Continue

Please pray for our friend Jacob...

Posted on August 14, 2008 at 10:41pm 2 Comments

Our friend and fellow brain tumor warrior Jacob W. needs divine intervention, RIGHT NOW!!!
Please keep him and his mother Christine and family in thought and prayer...

Comment Wall (20 comments)

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At 4:31pm on August 2, 2009, AJs Dad said…

miss having you around. Hope all is as well as can be expected.

At 2:35pm on April 2, 2009, judy hurley said…
I love you too!
At 2:22pm on December 22, 2008, Angela Lam said…
BTW, great music selection for Sweet Lily's page!
At 2:21pm on December 22, 2008, Angela Lam said…
Hi Denis - Thanks for your email last week. And an extra thank you for the outstanding gift you sent. It put a smile on our face every morning since. Lily, both you and Olivia will continue to be in our thoughts an prayers. Also, if anything comes my way as far as new information, treatment, etc. I will be sure to pass it onto to you. And the fight goes on. . .
Love and Laughter -
Angela Lam
proud mom of Devon Lam -- forever 5
At 8:07am on December 18, 2008, dari mcmanus said…
At 8:19am on December 3, 2008, dari mcmanus said…
im so DOWN with the chains idea.
lily is BEAUTIFUL. you live so close to me, do you think lily might want to be a supermodel for me? im fun and free!
oh, and

At 9:24pm on October 27, 2008, Natalie Rivard said…
Hi there! Glad to see your name here, and of course, to see more photos of your gorgeous Lily!
At 9:08pm on October 19, 2008, Ellen Robertson said…
Hi Dennis, we'll see you Saturday!!! We're so excited...Take care... Ellen and Sammi
At 2:26pm on October 19, 2008, Neal R. O'Brien Jr. said…
Hi Dennis, Olivia, and Lily,

Thanks for sharing the site info, I don't really know what I am doing for now. Will you be attending the Pumpkin Festival on Saturday? Maura and I are planning to be there.

Take care, the O'Briens
At 9:57pm on October 16, 2008, Charlotte said…
I like this page!

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