Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
I lost my niece last year on Sept. 26th. She was only 9 when diagnosed. Life will never be the same without her. Don't want others to have to live this nightmare. More awareness and research is so urgently needed.