Misty Barger
  • Female
  • Knoxville, TN
  • United States
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Misty Barger's Friends

  • Timeka Leach (Carly's Mommy)
  • Lala Smith
  • Rhonda Dudley
  • Denise (Angel Tay's Mom)
  • Freda Tao
  • pamela loyd
  • Laura Gorney
  • James Harrill (Maddie's Daddy)
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Emily's Mom

Profile Information

City
Knoxville
State
TN
Country
United States
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
www.butterflyfund.org
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
My 7 year-old daughter, Emily, was diagnosed with Rhabdomyosarcoma in January of 2007. She finished treatment in Nov. of 07 and was doing great until she relapsed in May of 2008. She passed away on June 24, 2008. Along with another family that also lost their daughter to Rhabdo, we have developed The Butterfly Fund to raise money for childhood cancer research.

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Comment Wall (11 comments)

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At 12:56pm on February 6, 2011, AJs Dad said…
Misty, I finally added the Butterfly Fund to our list, thanks.
At 8:11pm on February 23, 2009, Sy's mom said…
Misty,
could you tell me more about the butterfly fund? I am sorry for the loss of your beautiful daughter.
At 3:58pm on February 7, 2009, Kathi Clarke said…
Hi misty,
We have a new PAC2 member looking for advice on Rhabdo if you have time to connect with her....Marci Miess
http://curechildhoodcancer.ning.com/profile/MarciMiess
Thanks....hope you are doing well....
TAke care.
At 12:39pm on January 14, 2009, Kathi Clarke said…
Hi Misty,
I searched you out because we have a new PAC2 member, name is Wes Carter

http://curechildhoodcancer.ning.com/profile/WesCarter

who is from TN here doing research for an article he is writing about CC....thought you might like to contact him since you would be local....or add him to your geo group media contact list.
Kathi
At 8:10pm on December 7, 2008, Laura Gorney said…
Hi Misty. I see you're in contact with my mom. Fabulous! I noticed you asked if there was any media at the treelighting in DC last night. We were there...no media. However, we're going to attend again next year...and I worked in TV news in DC for 6 years. So, I've got contacts and will see to it that the event is covered next year.
At 6:24am on December 5, 2008, Lala Smith said…
Good morning, Thanks for your phone number. I may not get you called until after Christmas, but I WILL call. I know that Laura would love to meet you, but we will be very busy while they are here. In fact, to do something different this year, we are spending Dec. 21-23 in Pigeon Forge.......Dollywood, etc. Blessings to your family. We wil talk soon. Lala
At 10:43pm on November 28, 2008, Lala Smith said…
I would like to help with anything you need help with. Can we get in phone contact when we return to Knoxville? Laura is going to working on a MileStone Walk here in the Norfolk area. She wants to know if one may be planned for Knoxville?
At 11:50am on November 17, 2008, Denise (Angel Tay's Mom) said…
I am so sorry for the loss of Emily. She is absolutely beautiful. I, too, lost my precious daughter to rhabdo. No child should have to endure what our children suffered. Do you have a website for The Butterfly Fund. I would love more information.

Denise
At 10:17pm on November 14, 2008, rob whan said…
I am so sorry for your loss. Please take comfort and know that I will pray for your strength through this grief walk. God Bless
At 7:58am on November 14, 2008, Laura Gorney said…
Misty, I know about you guys because my husband and I are from Knoxville (he's in the Navy). My parents live off of Bluegrass and Ebeneezer. Mom watches Channel 10, so she told me when Emily passed away. Do you guys know Laura Nutzell? I worked with her years ago at HGTV.

I saw what you guys did with for Operation Christmas Child. Emily's Butterfly Boxes were beautiful! I'm thinking of approaching our local school next year about doing something like that in honor of our son.

It was nice "meeting" you! Stay strong....
Laura
 
 
 

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