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PAC2's Discussions

September 2016

Started Sep 1, 2016 0 Replies

Dear PAC2,September is National Childhood Cancer Awareness Month (NCCAM). This is the ninth September of PAC2's involvement.  In each of those 9 years, another 16,000 moms, 16,000 dads, 64,000…Continue

September 2015

Started Sep 1, 2015 0 Replies

Dear PAC2,September is National Childhood Cancer Awareness Month (NCCAM).  This is the ninth September that we knew about childhood cancer, but probably the eighth that we knew about NCCAM, doubtful…Continue

Long-Term Outcomes - GOOD NEWS!!

Started Jun 1, 2015 0 Replies

Dear PAC2We all know that the survivors of childhood cancer (i.e., alive 5 years after diagnosis) face numerous challenges.  Many of those challenges are related to the effects of the treatment that…Continue

So, where is the money still going? -- The ACS, 2014, and childhood cancer research funding

Started this discussion. Last reply by Ami D Phillips Sep 30, 2014. 3 Replies

In 2008 and 2010 we presented in-depth analysis of the amount of funding directed to childhood…Continue

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Latest Activity

PAC2 posted a discussion

September 2016

Dear PAC2,September is National Childhood Cancer Awareness Month (NCCAM). This is the ninth September of PAC2's involvement.  In each of those 9 years, another 16,000 moms, 16,000 dads, 64,000 grandparents, untold siblings and other family and friends became aware of childhood cancer - because they heard those words we all heard and will never forget: your child has cancer.   In each of the next 9 years, or 9 decades, the childhood cancer community, for better or for worse, will continue to…See More
Sep 1, 2016
PAC2 posted photos
Sep 4, 2015
PAC2 posted a discussion

September 2015

Dear PAC2,September is National Childhood Cancer Awareness Month (NCCAM).  This is the ninth September that we knew about childhood cancer, but probably the eighth that we knew about NCCAM, doubtful we even knew during the September he was fighting.  In each of those 8 or 9 years, another 16,000 moms, 16,000 dads, 64,000 grandparents, untold siblings and other family and friends became aware of childhood cancer - because they hear those words we all heard and will never forget: your child has…See More
Sep 1, 2015
PAC2 posted a discussion

Long-Term Outcomes - GOOD NEWS!!

Dear PAC2We all know that the survivors of childhood cancer (i.e., alive 5 years after diagnosis) face numerous challenges.  Many of those challenges are related to the effects of the treatment that has saved their lives.  The Childhood Cancer Survivor Study (CCSS) is the largest, nationwide evaluation of the long-term survivors of childhood cancer.  It monitors the long-term health outcomes of over 35,000 survivors diagnosed between 1970 and 1999. Previous WorkPAC2 has previously reported on…See More
Jun 1, 2015
Ami D Phillips replied to PAC2's discussion 'So, where is the money still going? -- The ACS, 2014, and childhood cancer research funding'
"Events are created with their own designated fund, typically the general fund, unless otherwise specified. Additionally, campaigns to raise money also typically have a designated fund that goes towards their general fund. For other donations, not…"
Sep 30, 2014
Jan Webb replied to PAC2's discussion 'So, where is the money still going? -- The ACS, 2014, and childhood cancer research funding'
"Ami, the ACS will not let you designate where your donation goes. It all goes to their general fund. I know families who did Relay and other ACS events and raised money only to be told that they could not designate their money to childhood cancer…"
Sep 30, 2014
Ami D Phillips replied to PAC2's discussion 'So, where is the money still going? -- The ACS, 2014, and childhood cancer research funding'
"This is great information and highlights one commonly overlooked feature of making donations: designated funds. When you make a charitable donation to an organization, they can use that money however they see fit. This is when your donations get…"
Sep 29, 2014
PAC2 posted a discussion

So, where is the money still going? -- The ACS, 2014, and childhood cancer funding

In 2008 and 2010 we presented in-depth analysis of the amount of funding directed to childhood cancer by the American Cancer Society (ACS) and others.  We have updated the analysis for the ACS based on links to financial data provided by the ACS for 2013/2014 below. Things have not changed. According to the report:…See More
Sep 25, 2014
PAC2 posted a discussion

National Cancer Institute Names UTHSCSA Pediatric Hematologist-Oncologist to Council of Research Advocates

In a big step forward, ped-onc doc and childhood cancer survivor Greg Aune has been appointed to the National Cancer Institute Council of Research Advocates. Announced Friday by NCI Director Varmus, this appointment is designed to help align the interests of childhood cancer advocacy groups with those of the NCI. “I hope to encourage a meaningful dialogue regarding the future funding priorities for pediatric cancer,” said Aune. “I’d like to…See More
Sep 23, 2014
PAC2 posted a discussion

September - #ChildhoodCancerChallenge

Dear PAC2,This will be PAC2's 7th September, aka National Childhood Cancer Awareness Month.  Starting virtually unaware, except for the worst fact about childhood cancer, over the years we've learned that the research funding for all cancers is not the same, and that funding for childhood cancer research is severely lacking, especially from some organizations not directly focused on kids. …See More
Sep 1, 2014
PAC2 posted a discussion

PAC2 Update - July 2014

Dear PAC2,Welcome to the PAC2 Update for July 2014 bringing you news from the childhood cancer world.   As always, if you have things to share please contact us at info@peopleagainstchildhoodcancer.org. JUST REALLY GOOD STUFF....Dr. Jim Olsen of the Seattle…See More
Aug 7, 2014
PAC2 posted discussions
Aug 1, 2014
PAC2 posted a discussion

It's time....

Dear PAC2,We’ve written all about statistics, and made logical yet heartfelt cases for increased funding for childhood cancer research.   But really, it’s simple: They are kids and we’re supposed to protect them.  In 1924 The League of Nations endorsed the first Declaration on the Rights of the Child recognizing that that mankind owes to the Child the best that it has to give, and that the child must be the first to receive relief in times of distress.In 1948 The Universal Declaration of Human…See More
May 15, 2014
PAC2 posted a discussion

PAC2 Update - February 2014

Dear PAC2, welcome to the February 2014 PAC2 update sharing news and information around the childhood cancer community.   It's already past the Ides of March, and we wanted to quickly share two recent news stories.... #SaveJosh - Josh is a 7 year old who has already fought cancer 4 times.  After a BMT he developed a virus at St. Jude and needed a drug, under Compassionate Use, to live.  The drug company, Chimerix, is currently…See More
Mar 17, 2014
PAC2 posted an event

National Cancer Institute at Bethesda MD

February 21, 2014 from 9:30am to 4pm
The National Cancer Institute (NCI) will hold its 64th Meeting of the Director’s Consumer Liaison Group (DCLG) on Friday, February 21, 2014 from 9:30 a.m. to 4:00 p.m. on the National Institutes of Health (NIH) Campus in Bethesda, MD.The meeting will focus on barriers to drug development in pediatric cancer research and will include participants from the pediatric cancer advocacy community, as well as private and public sector presenters.The panels will discuss the State of Pediatric Cancer…See More
Feb 19, 2014
PAC2 posted a discussion

Childhood Cancer: Getting Less and Less Rare

Dear PAC2,Each year the American Cancer Society reports on the state of the cancer world in its report Cancer Facts and Figures.   The latest report came out last week and, surprisingly, featured a Special Section on Childhood Cancer.   The Special Section summarizes some of the more recent…See More
Feb 4, 2014

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