Peter Brown
  • Male
  • Washington, DC
  • United States
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  • Alpha Bedoh Kamara
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City
Washington
State
DC
Country
USA
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
http://www.mattiemiracle.com
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
Our son Matthew was a 7 year-old with multi-focal synchronous Osteosarcoma. Mattie was diagnosed on August 4th 2008, and endured two invasive limb-sparing surgeries placing prostheses in three of his four limbs, as well as a median sternotomy and 11 months of chemo.

On August 5th 2009, we scanned Mattie and discovered his cancer had spread to the plura of his lungs as well as the diaphram and liver. We did our best to make Mattie as comfortable and as pain-free as possible and no longer talked about a "cure".

It is truly the most wicked of torture and worst pain on the face of this earth to see your child dying a little bit each day right in front of your eyes. Mattie passed away on September 8th, 2009 at 7:15am in our arms.

Something must be done about Osteosarcoma and pediatric cancers in general because no child, no parent, no sibling, no grandparent, no friend or community deserves to go through the torture of childhood cancer and losing your child.

You can also read about his entire story at: http://mattiebear.blogspot.com

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Peter Brown's Blog

November 13, 2009 Update

Posted on November 14, 2009 at 11:19am 3 Comments

I've been away from PAC2 for some time, as things are really very difficult for me and Vicki (my wife) since we lost Mattie. It's been 67 days since he's been gone and the pain and emptiness is only getting worse. I know I will never, ever recover from this although we've had so many people tell us "it will get better and you'll move on and adjust", which frankly is some of the most insensitive statements I have ever heard in my life. I feel like I am living someone else's life; it's a very… Continue

Mattie Passed Away on September 8th at 7:15am

Posted on September 10, 2009 at 10:32am 13 Comments

We lost Mattie on Tuesday morning after a horrific 5 hour struggle watching him fight to stay alive. Mattie's disease had completely taken over his body and no measure of narcotics or drugs (dilaudid, Versed, Vallium, Fentanyl) could contain the pain. We had to put Mattie on a Propofol drip that allowed his body to finally relax and give into the disease.



Mattie had the spirit of 10 people and infected everyone who interacted with him with a little piece of himself. Vicki and I were… Continue

Our Bad News...

Posted on August 22, 2009 at 10:42am 6 Comments

On August 5th, 2009, we demanded scans of Mattie since he was having increased pain, and we discovered that his cancer had spread to many places in his body. We have lost the battle against the cancer and are now no longer treating his disease, but rather focusing on making Mattie's remaining days with us as enjoyable as they can. This has come as a terrific shock, that has only been compounded by a year filled with depression, sorrow, pain, anguish, and fatigue.



We cannot say thank… Continue

Comment Wall (9 comments)

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At 1:44pm on November 15, 2009, Alice Poynter said…
I FEEL HONORED TO BE INCLUDED AS A FRIEND
At 12:59pm on November 15, 2009, Alice Poynter said…
Peter & Vicki
How my heart aches for you... I have already lost a daughter a few years ago but not to cancer..
Now facing this illness will our Maddie, maybe that is why I am drawn the likeness if names.. It takes my breathe away..One second at a time strive for it that is all you can do..God help you each second..
At 10:24am on August 22, 2009, Kathi Clarke said…
Peter I should have read your blog to see updates before posting below. I have now and I AM SO SORRY for what you are going through. Your family is in my thoughts and prayers......
At 10:19am on August 22, 2009, Kathi Clarke said…
Peter, I totally dropped the ball on story time, I am sorry! And I see I also missed you in DC! If you still want to do a story time we'd love to have you....send a message to Bob (AJ's Dad) if you'd like to....and he will get you all set up!
At 10:36pm on May 21, 2009, Brenda Everson-Wiesman said…
Hello:
Thank you for going to Reach the Day in June and giving osteosarcoma a spot light. It sounds as if your son has been through a lot. Our son is in remission almost three years from it. I know a lot of kids with it on the caringbridge sites. I will look for your story on Story Time.
At 1:01pm on May 11, 2009, Kathi Clarke said…
I will put you down for June 1. In the meantime....go to Forums (tab above), in the pull down menu click Story Time...you can read there some of the past STory Times to see how it works. You can write anything you like...people respond. It is a great tool for so many reasons....let me know after you check it out and I will send directions on how to post on JUne 1.
Thank you! And let me know if you have any questions getting around the site! There is so much information here and we are always open to new things to post as well.
At 12:54pm on May 11, 2009, Kathi Clarke said…
Peter...was just looking at Mattie's site....wow what a great site with lots of information, etc! He sounds like such a special boy. Would you like to share your story in our STORY TIME...we post every Monday. You could share your story, along with some of the things you have done to create awareness and tell your story elsewhere...interested? I think you have a lot to offer others! I could put you down for June 1 if you are interested. Thank you.
At 12:47pm on May 11, 2009, Kathi Clarke said…
Hi Peter....thanks for your note! Sounds like you are doing great things to help with awareness! We are planning to have a PAC2 get together as well at Reach the dAy....watch for a post later this week on that....would be great to meet you....so many of us with the same goals, we WILL make a difference for our kids!!
At 2:03pm on May 9, 2009, Kathi Clarke said…
Peter,
Thanks for joining PAC2....hope Matthew is doing as well as can be expected. Help us spread the word of PAC2 and our petition by posting on your site. If you need anything please reach out here...many others in your shoes.
 
 
 

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