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Robert Miles posted a discussion

Possible new neoroblastoma treatments (research)

Some articles on research that has identified 7 candidates for drugs to treat neuroblastoma:Breakthrough in the fight against childhood cancerhttps://secure.worldcommunitygrid.org/about_us/viewNewsArticle.do?articleId=342Identification of novel candidate compounds targeting TrkB to induce apoptosis in neuroblastoma…See More
Mar 6
Robert Miles posted a discussion
May 21, 2012
Robert Miles posted a discussion

Links to some research news

Mass. General study finds amplification of multiple cell-growth genes in some brain tumorshttp://www.massgeneral.org/about/pressrelease.aspx?id=1419&utm_source=an18&utm_medium=email&utm_campaign=enews Newcastle doctor receives leukaemia research grant…See More
Feb 20, 2012
Robert Miles posted a discussion

World Community Grid's subproject for childhood cancer research

Some news you may want to spread:The BOINC project World Community Grid allows you to use any spare time on your computer to help childhood cancer research.http://www.worldcommunitygrid.org/index.jspClick on each of the small pictures under the big picture to see their various subprojects; one is related to childhood cancer research.BOINC was intended to run in the background without disturbing your other programs, but I've found that…See More
Jan 3, 2012
Robert Miles posted a discussion

Asking the US government for action

For those of you who are US citizens:http://www.WhiteHouse.gov/PetitionsScroll down until you see View Recent Petitions under Build Support and Gather Signatures, then click on it.Filter by Issue.  Health Care.  Filter Petitions.Look for the one related to childhood cancer research.  Also the one related to antineoplastons.See More
Oct 4, 2011
Robert Miles replied to Robert Miles's discussion 'A clinical trial for newly diagnosed glioblastoma multiforme (GBM)'
"I just tried a web search for more information on GBM.  Here's what I found, in case it includes anything you haven't already…"
Jul 14, 2011
Robert Miles replied to Robert Miles's discussion 'A clinical trial for newly diagnosed glioblastoma multiforme (GBM)'
"You're welcome.   In case you haven't found it yet, here's a site for finding places that have clinical trials for a wide variety of conditions, in many countries: http://clinicaltrials.gov/   A high percentage of the…"
Jul 14, 2011
Maureen T. Lilly replied to Robert Miles's discussion 'A clinical trial for newly diagnosed glioblastoma multiforme (GBM)'
"Thanks, Robert. Since our daughter had a GBM, I am always interested in research for this aggressive disease. One eligibility criteria to note is that you must be 18 years or older to participate in this clinical trial."
Jul 14, 2011

Profile Information

City
Huntsville
State
Alabama
Country
USA
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
to spread information on how to help cancer research
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
I wonder if you've thought of running programs in the background on your computer to help cancer research.

This project is the largest I've found:

http://www.worldcommunitygrid.org/index.jsp

Now has two cancer projects - a general cancer project not recommended for machines with less than 1 GB of memory, and a childhood cancer project not requiring as much memory; as welll as a few non-cancer projects

This one seems to be medium sized:

http://boinc.bakerlab.org/rosetta/

Changes fairly frequently and often shows errors, so not for people who insist on running only well-tested software.

This one is now unreachable - hopefully because they no no longer need computing help:

Cels@home

I had my computer set to contribute to all three, plus several more medical research projects elsewhere. BOINC allows you to do this.

Comment Wall (4 comments)

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Join People Against Childhood Cancer

At 9:52pm on September 1, 2009, Mary Dorsey said…
Thank You for the links, to date we have had both the city mayor and county mayor sign a proclamation delclaring Sept. Childhood Cancer Awareness Month. The local paper did a nice write up about the city mayor presenting steven with the proclamation. We are continuing to try to get others in the community involved. i think we wil be involved for a very long time. My daughter is involved in pageants and has choosen childhood cancer awareness as her platform.
At 11:00pm on August 24, 2009, Mary Dorsey said…
Thank you for the comment, but unfortunately Josh lost his battle with cancer. He had glioblastoma mulitform, it was very aggressive and progressed very quickly. My son, Steven, has decided to dedicate his Eagle project in scouts to him. He is launching a Childhood Cancer Awarness Campaign in our community. He has already been presented with a proclamation signed by the mayor of our home town! We approached the mayor over the summer and he was very willing to help. It is a great way to get word out into the public about September being Childhood Cancer Awarness month. Our local paper did a nice small piece on it and it was on page 3!! Josh would have been proud.
At 9:47pm on November 7, 2008, karen mckinley said…
My 14 year old daughter has ALCL and has been on continuous treatment for 9 years. She lost a beautiful little friend, McKenna, to ALCL and she wants to start a foundation in her memory. McKenna's mom, Krista, suggested we take a look at this website and join forces.
At 7:55pm on October 8, 2008, AJs Dad said…
Hi Robert,

thanks for the info, and welcome to PAC2. We are a community of parents, friends, survivors, medical professionals, childhood cancer organizations (CureSearch, Alex's Lemonade Stand, St. Baldrick's, Make-A-Wish and others) and concerned citizens, all with the same mission - eradicate Childhood Cancer.

My first initiative was the Childhood Cancer Awareness Petition. The Petition was started before Stand Up 2 Cancer, and now has over 17,000 signatures with the objective to have a nationwide major media event bringing awareness to Childhood Cancer. To be childhood cancer's "Inconvenient Truth" moment.

The format is unique. You can have friends, post photos and videos, blog, participate in Forum discussions, start Groups about your interest, chat live with other members, promote fundraisers or join a Group that is focused on your interests in childhood cancer.

While all those features are nice, it still takes ACTION. This is truly the reason PAC2 started. Each day or so, we feature ideas for members in the golden boxes on the home page. This is where you can help by taking action. You can get started with these ideas.

I look forward to your contributions and ideas, and working together in the future. Thanks again for being here, I am sorry you have to be............AJs Dad
 
 
 

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