Sandy Barker
  • Female
  • Laguna Niguel
  • United States
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Sandy Barker's Discussions

THE LEGACY OF CHRISTIAN BARKER

Started this discussion. Last reply by Rebecca Wright Nov 1, 2008. 12 Replies

Money being sent to defense instead of fighting cancer

Started this discussion. Last reply by Kathi Clarke Aug 31, 2008. 2 Replies

 

Sandy Barker's Page (^^Christian's^^ proud mom!)

Profile Information

City
Laguna Niguel
State
California
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
www.caringbridge.org/visit/christianbarker
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
Our oldest son Christian was a quiet and happy guy with a great sense of humor who loved soccer, video games, and legos. He was diagnosed 5/7/06 (1 day after turning 13) with an extremely rare form of leukemia (hypo-diploid). Over the next 20 months Christian painfully endured 2 bone marrow transplants in Seattle, separation from our family in California, full body irradiation, tons of extremely strong chemo, 3 relapses, 16 months in the hospital, uncontrollable hemorrhaging for 4 months near the end, and fatal graft vs. host disease. The brutal journey he suffered was beyond describable. NO child should have to endure such suffering. He went to heaven on 12/29/07 just before midnight with our family at his side. He was only 14. We will miss him forever!!
I was separated from my husband Gary and other 2 children (Kendall 9, Garrett 12 who was Christian's 1st BMT donor) for over 1 1/2 years during Christian's treatment. Our family has been through hell and we are really wanting to do something to help find a cure so other families don't have to go through what we have gone through. We have lost too much and seen too much to NOT do something! I have been to Washington D.C. 3 times so far since Christian went to heaven to petition for more funding for pediatric cancer research. I pleaded with our government leaders each time to make the vital change necessary in pediatric cancer funding/research so our kids will have a chance at life once diagnosed with cancer. I told them that this is not about my family. I am representing SO many families who have battled for their child's life as we did only to lost that battle. I pray I can somehow make a difference in this fight for a cure and honor our angels at the same time. They MORE than deserve it!
We have also formed the 'Christian Barker Research Fund' through the Leukemia and Lymphoma Society where the funds we have raised (through a half marathon I ran recently, a fundraiser held through my husband's work, etc) goes directly toward funding a research grant focusing on pediatric cancer we chose with a cancer research doctor.
We all MUST band together for our heroic warriors who are angels, those kids still fighting, and those not yet diagnosed. There is NOT enough being done for them and we need to change that. We can't give up until things change!! Let's all help cure pediatric cancer!!

"A healthy child has many wishes...A sick child has one."

Sandy Barker
www.caringbridge.org/visit/christianbarker

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Sandy Barker's Blog

CureSearch Advocates needed for June 22-23, 2009 Washington D.C. "Reach the Day" trip!! Please help us speak up for our cancer kids!!

Posted on March 4, 2009 at 9:30pm 14 Comments

We are looking ahead to CureSearch's June 22-23 trip to Washington D.C. We REALLY need to have ALL states represented and there are still a few that have no representation. This means that nobody goes to the Senators and Congressional leaders in these states to ask them to help us in our efforts to acquire more funding for childhood cancer research. We need you! If you live in any of the states listed below, please email me (barker-5@cox.net )and I will put you in contact with Kate Shafer who… Continue

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At 2:36pm on March 18, 2010, Laura Ribelin said…
A really great looking family, may God RICHLY bless you all, and may the cure be right around the corner for you sweet Christian.
At 2:34pm on March 18, 2010, Laura Ribelin gave Sandy Barker a gift
Gift
God Bless you
At 10:55am on December 3, 2009, Brenda Everson-Wiesman said…
Hi Sandy:
Could you please post on your geo group page the need to have others who live in CA call four Representatives about the new initiative on the front page of PAC2?
Names and phone numbers are listed there... Thank you so much for your help!
At 11:34am on November 19, 2009, Brenda Everson-Wiesman said…
Hi Sandy:
I would love to go to DC but I have four teenagers in school and..... they would probably love for me to take a trip so they could get by with more stuff.... :) I have to be an armchair advocate for a few years.

Thanks for contacting people where you are. I keep thinking that with all of these members in the geo groups that we could rally for contacting our congress people on important bills such as this. Realistically, we will have to fight for the apporpriation money each year for this bill. So, we could all take our own state and try to get other constituents, members in our geo groups to make the calls, too. I also contacted our CureSearch walk chair here in Omaha to get her to send emails out to all of our walk people. A big list. Thank you for helping with CA.
At 12:11pm on November 18, 2009, Brenda Everson-Wiesman said…
Hi Sandy:
Could you contact the following congress people for the state of CA, if you haven't done so already: Lucille Roybal, Barbara Lee, Michael Honda and Jerry Lewis for support for the bill? There are a lot of CA members in the PAC2 Western geo group, can you contact them about doing it, too? Everyone can go to the Team Unite link on the top of the page or the CureSearch link just posted today to do it. Thank you for your help!
At 11:27am on June 18, 2009, Kathi Clarke said…
Hi Sandy,
Would you like the petition signatures for your state to take with you to DC, maybe part of your leave behind packets as there are many stories there? If so email AJ's Dad. See you soon!
At 12:54am on March 19, 2009, Erin Waterman said…
Thank you for your reply on my wall - I'm so glad to hear your positive feedback about Seattle Children's. I'm on the SCCA Family Advisory Board there and am passionate about contributing to parent-to-parent support in any way I can. You are able to articulate your family's story so well, and that is essential to help people outside the "club" understand. My daughter was fortunate not to have required a BMT, but I watched several families go through it and lose children to a wide range of cancers including the "good kind" (a pet peeve of mine is that doctors around the country seem to call leukemias the "good cancer"). Carli is doing fabulous. She just finished her duties as an "Honored Hero" for the LLS Pennies for Patients campaign in the schools. While I was a single parent going through her 2-1/2 years of treatment and have no other children, I can't imagine being separated from those closest to you while going through it. In my case, I had been divorced prior to her treatment, and her dad unfortunately reacted to her diagnosis (he had lost a child from a former marriage) by lashing out at me, resulting in me being required to file a protection order against him during the height of her illness. It was almost a "perfect storm" of events. We learned last year he was diagnosed with Asperger syndrome, so some of his reactions make sense in that light, but because he had a long military background people advised me not to take chances. Fortunately we are able to communicate on her behalf now and things have calmed down as long as I keep my boundaries clear. Because I have lived through so many "social work" challenges (we were evicted from the Ronald House during the protection order and moved 6 times while remaining close to the hospital because no shelter accepts immune compromised children), I am passionate about supporting other families going through the process of coping with their child's illness and treatment.
At 11:09am on March 18, 2009, AJs Dad said…
hey Sandy, whats up?
At 8:03pm on March 16, 2009, Lisa Molina said…
Hi Sandy,
I saw on the gold box today that all states need more representation. I live in Austin, TX and I would be very interested in being a Team Leader for Texas. I have recently contacted my rep. Lloyd Doggett, and he has now agreed to join the Pediatric Cancer Caucus, so I feel like I have already made some progress in this ongoing battle to find a cure for our kids.
My son Thomas (13 years old next week) is currently battling a relapse of leukemia. He is also interested in advocacy work.
Unfortunately, we will not be able to attend the Reach the Day event in DC this year, but we would be very interested in attending an event here in Austin at the capital. We do plan to attend RTD in DC next year, and I would be happy to send Thomas's story along with other Team leaders who will be going this year.
Also, I would be interested in being on the planning committee for the Milestones walk to be held here in Austin.
My e-mail is lisabmolina@earthlink.net if you would like to reach me, or you can leave me a message on my page here on PAC2.
Thanks,
Lisa Molina
At 2:48pm on March 12, 2009, Marcia Jacobs said…
Hi Sandy,
I am so sorry for the loss of your beloved son. I lost my daughter Anjuli........there are far too many angels.
I have been told that I should be your rep for the state of Alaska. After reading this beautiful site I can tell you that I am with you and I am up for the challenge. I agree I should be the rep for Alaska. I have already lobbied congress twice and have done many other things in the fight against this horrible disease. Please read my page to see more. Please let me know what is needed/required as a rep.
One last thing - the event in WDC this year is happening on the anniversary of my daughter's death.............sigh...........
I don't know if I can afford to go, we shall see. I am a single parent and got wiped out by the cancer and then divorce......I work full time and have a beautiful little toddler now......she's Emily - Anjuli's little sister. Please call me if you want to: 907-262-6267.
 
 
 

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