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I have a three year old cancer survivor: Hepatoblastoma
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
My daughter was diagnosed with stage 4 Hepatoblastoma at 14 months. I was 2 months preganat and our older daughter just 2 1/2 years old. This tore at everything our family was made of. My daughter recived 18 months of chemo, 4 operations, 3 relpases and finally remission.
No family or child should ever have to endure this. Childhood cancer must be brought to light and cured: money cannot be a barrier in saving our childrens lives.
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Last week I signed on to be Co-Team Leader for Washington State for CureSearch. (Shirley Enebrad previously held this position). Kathi Clarke, the creator of the PAC2 of the Northwest, will be co-leading with me.
This is an exciting opportunity, but also a bit intimidating. On February 1 I will be heading to Washington, DC for some volunteer training with CureSearch and then heading to the Hill to meet with lawmakers. I will be giving them statistics about childhood cancer and creating the argument about why childhood cancer research needs funding. In an effort to make the numbers come to life I will be telling Jackson's story and want to tell them about other children in Washington State who have battled cancer. Reportedly it is the personal stories that pack the punch.
I would love to be able to share daughter’s story. Would you be willing to write something up and send it back to me? Ideally it would be in letter format (addressed to Washington State Lawmaker and signed with your address). If possible, please attach a photo as well. If you can help, please e-mail her story to email@example.com by Saturday, Jan. 31. (Sorry for the short notice. I just found out about my need for stories yesterday).
Thanks for your support!
Tell me more about the foundation you work for...is it local? Trying to get some thoughts together to have a NW group live chat or meeting soon. Hope you had a nice Holiday season....talk soon. Kathi
I just saw you joined the PAC2 NW. Welcome to the group. I'm glad to see more folks from Western Washington joining.
I'm glad to hear that your daughter is in remission! Where was she treated? My son Jackson was diagnosed at 15 months with Rhabdoid Tumor of the Kidney. He was treated at Seattle Children's. Thankfully he is also in remission and doing well.
I hope to see you at the next PAC2 NW chat.
Hi Trina....I just saw your comment on the PAC2 NW page....if you go back to that page and actually join the group you can then get emails that are sent to the group for planning and can participate by posting on our group page too. We do live chats a couple times a month and we are planning to have a meeting after the first of the year...hope you will be able to join us.
I found you through Curesearch because of the event you had. Would love to hear more about how that went. We need to recruit, recruit people here and to our petition...so your first task would be to invite everyone here and to our petition!
Thank you for being here. Talk soon.