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I am a working mother with a 14 year old who was diagnosed with pre-B all in Feb 2007 at the age of 12 she will be done with her chemo in May 2009. We have had many ups and downs and still have problems in the Maintenance phase she doesn't tolerate the oral drugs very well and has had problems with her liver. I would also
like to talk to anyone whos child is having absorbtion problems..
Congratulations, Meagan! And Vickie!!! It is such an incredible accomplishment to be able to say you crossed the finish line! Yahoo!
Fiona finished chemo on May 21. She has her last bone marrow next week to make sure she is NED. I was bummed because originally they were supposed to have done it last month but changed protocol to do all bone marrows a month off treatment. We compromised and are doing it early because we have a big bash to celebrate on the 20th.
I hope you are going to celebrate in a big way because you all deserve it!
Sherry and Fiona
Sorry to hear about your daughter. I don't know how my parents handled my cancer. Wilm's tumor is a childhood cancer of the kidney. When I was first diagnosed I was three years old. They were taking care of me and two other kids with serious medical problems. So I will keep your little one in my prayers. I remember a lot about the treatments and they were very hard to deal with. My prayers are with you.
PS - Thomas also had an echo done after he was off-treatment for 5 years - and they considered that his "baseline" when he started relapse treatment a few months later. I expect he'll have another one this year sometime.
HI Vickie - When Thomas was 4, he was given echo-cardiograms before he had any anthricyclene (sp?) drugs (as a baseline) and then afterwards to check for any changes/abnormalities, so if your daughter has had any of these drugs during her treatment, you might request an echo to be done, and then follow up every few years - I'm thinking that maybe since your daughter is older, they aren't as concerned, as I believe the younger the child, the higher the risk of heart issues down the line. Also, if you go to the Cure Magazine web-site and search under childhood cancers, there is an article on heart issues with survivorship, and it does say something about girls being higher risk.
The book I mentioned in my post (Childhood Cancer Survivors) is definitely worth getting. Great info on all aspects of surviviorship. Hope this helps and hope you guys are doing well and have a good weekend.
Hey Vickie, Courtney was diagnosed with pre b cell All Oct 2,2003. We done 2 1/2 years of chemo..Courtney done well with the chemo all except the ARA-C shots. I hope everything goes well for you guys. If you have any questions I'm here anytime.. Robin
Kami is, indeed, on steroids. She is on the St. Jude Protocol XV, and is required a five-day steroid pulse, every 4th week. As you guessed it, she's already displaying signs of AVN (as of nine months ago.)
The differences in our protocols are interesting--Kam was scheduled to take 2 years, 8 months to complete (Kami will be about six weeks post that, due to some complications during ReInduction II.) Like yours, the boys take longer (about 3 years). The newest St. Jude protocol has the boys and girls completing treatment in the same amount of time.
It would be interesting to find out if St. Jude's newest protocol still utilizes the Dex. Hmm...thoughts for research...thank you!
I'm psyched that your Megan is so close to completion...a friend of mine always says "Each day brings us a day closer to the Cure".