Vickie Walk
  • Female
  • Salt Lake City, Utah
  • United States
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Childhood Cancer Survivor Scholarship Information?

Started this discussion. Last reply by AJs Dad Jul 23, 2012. 2 Replies

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salt lake
Please list your CarePage/Caring Bridge/blog site, your organization, or your reason for being here?
Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
I am a working mother with a 14 year old who was diagnosed with pre-B all in Feb 2007 at the age of 12 she will be done with her chemo in May 2009. We have had many ups and downs and still have problems in the Maintenance phase she doesn't tolerate the oral drugs very well and has had problems with her liver. I would also
like to talk to anyone whos child is having absorbtion problems..

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Comment Wall (25 comments)

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At 7:59am on June 4, 2009, AJs Dad said…
Im glad you're done! And, they don't have awards that are worthy....
At 7:08am on June 4, 2009, Sherry Monahan said…
Congratulations, Meagan! And Vickie!!! It is such an incredible accomplishment to be able to say you crossed the finish line! Yahoo!
Fiona finished chemo on May 21. She has her last bone marrow next week to make sure she is NED. I was bummed because originally they were supposed to have done it last month but changed protocol to do all bone marrows a month off treatment. We compromised and are doing it early because we have a big bash to celebrate on the 20th.
I hope you are going to celebrate in a big way because you all deserve it!
Sherry and Fiona
At 11:29am on May 21, 2009, Sandra Keeley said…
Yes I do.
At 5:30am on March 25, 2009, Mary Anne Thomas said…
Sorry to hear about your daughter. I don't know how my parents handled my cancer. Wilm's tumor is a childhood cancer of the kidney. When I was first diagnosed I was three years old. They were taking care of me and two other kids with serious medical problems. So I will keep your little one in my prayers. I remember a lot about the treatments and they were very hard to deal with. My prayers are with you.
At 4:29pm on March 18, 2009, Kristen Anderson said… I am sure you have seen this before......but just so you know there are tons of us out there that hate cancer too. Hang in there.

Kristen (Molly's mom)
At 9:46pm on February 20, 2009, Lisa Molina said…
PS - Thomas also had an echo done after he was off-treatment for 5 years - and they considered that his "baseline" when he started relapse treatment a few months later. I expect he'll have another one this year sometime.
At 9:45pm on February 20, 2009, Lisa Molina said…
HI Vickie - When Thomas was 4, he was given echo-cardiograms before he had any anthricyclene (sp?) drugs (as a baseline) and then afterwards to check for any changes/abnormalities, so if your daughter has had any of these drugs during her treatment, you might request an echo to be done, and then follow up every few years - I'm thinking that maybe since your daughter is older, they aren't as concerned, as I believe the younger the child, the higher the risk of heart issues down the line. Also, if you go to the Cure Magazine web-site and search under childhood cancers, there is an article on heart issues with survivorship, and it does say something about girls being higher risk.
The book I mentioned in my post (Childhood Cancer Survivors) is definitely worth getting. Great info on all aspects of surviviorship. Hope this helps and hope you guys are doing well and have a good weekend.
Lisa Molina
At 4:16pm on February 2, 2009, Robin said…
Hey Vickie,
Just wanted to stop by to see how things are going and to say hi. I hope things are going well or you guys..You are in my thoughts and prayers.
At 12:00am on January 31, 2009, Robin said…
Hey Vickie, Courtney was diagnosed with pre b cell All Oct 2,2003. We done 2 1/2 years of chemo..Courtney done well with the chemo all except the ARA-C shots. I hope everything goes well for you guys. If you have any questions I'm here anytime.. Robin
At 5:19pm on January 21, 2009, Jill Chauncy said…
Hey, Vicki...

Kami is, indeed, on steroids. She is on the St. Jude Protocol XV, and is required a five-day steroid pulse, every 4th week. As you guessed it, she's already displaying signs of AVN (as of nine months ago.)

The differences in our protocols are interesting--Kam was scheduled to take 2 years, 8 months to complete (Kami will be about six weeks post that, due to some complications during ReInduction II.) Like yours, the boys take longer (about 3 years). The newest St. Jude protocol has the boys and girls completing treatment in the same amount of time.

It would be interesting to find out if St. Jude's newest protocol still utilizes the Dex. Hmm...thoughts for research...thank you!

I'm psyched that your Megan is so close to completion...a friend of mine always says "Each day brings us a day closer to the Cure".

I can't wait!

Best Wishes.... Kami's mom, Jill

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