annette leslie
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medulloblastoma invaded my boy's brain and stole him from me

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At 7:30pm on September 22, 2010, Benji Palus said…
I have already found a teenage girl to give Carson's book to. When I saw her this week she was alone, sitting in her window and listening to headphones. She didn't want to come out of her room or check out any movies or even talk. I'm going to bring her the book on Monday. I hope that it will help her to open up, if not to me, than to someone. I'll talk to the hospital and to Child Life services. Maybe we can find a sponsor who will donate many books that we can give to the older kids. Regardless, after my bills are paid this month, I'll be ordering more for myself. Thanks again.
At 11:58am on September 18, 2010, Benji Palus said…
I finished Carson's book late last night. I lay awake a long time thinking about him. He had great courage and a way of looking at things that was so confident. What really struck me though, was that he was very much a teenage boy. It was that he went through all of these painful and exhausting and terrifying things with a wisdom so far beyond his years, but at the same time he retained his age. I know I'm not explaining this right, but it's hard to find the words. His thoughts and feelings had the familiar tone that I remember from my own teenage years, but filtered through everything he went through, giving him an ageless quality as if he were a thousand years old. His acceptance of what he was facing, of his flaws and his gave such a clear insight into how someone at that age deals with something so huge, what he shouldn't have had to deal with until he'd had decades more to live and learn. I just wanted to tell you that his book has done for me exactly what he wanted it to. I volunteer on the cancer floor at Children's Hospital here in New Orleans, hanging out with the kids and talking to parents and families. From now on I will see the teenagers' struggles more clearly. I will gratefully use what I learned from Carson's book, and hopefully be able to find a way to better help them through this terrible beast that they each have to face. Thank you so much for everything, and I know that I owe the most thanks to Carson himself. He was a remarkable human being. I'm so sorry that you had to lose him. I know you must miss him more than I can comprehend.
At 10:37pm on September 12, 2010, Benji Palus said…
My copy of Carry Me came yesterday. Thank you so much. I'm about to crawl into bed and start reading. I'll write again when I've finished it.
At 10:43pm on August 13, 2010, Benji Palus said…
I looked through Carson's website, watched his video, and wrote down the address so I can immediately pre-order a copy of his book. I know it will help me and friends who are fighting this monster. I tried not to cry while watching your boy, but I couldn't help it. So often the most heroic warriors are also the most humble. I hope you find many more friends here that will help you through your loss, as I'm sure you have so much to give yourself. Thank you.

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