Optional question where you can tell us more about you, your child, your reasons to be here, or simply introduce yourself.
I am the mom of 2 boys. Jackson, my oldest, was diagnosed with Rhabdoid Tumor of the Kidney (RTK) in September 2005. He was 15 months old at the time. Today he is 5 1/2 years old, 3 1/2 years post-treatment, cancer-free, and living an almost normal life......with the exception of a lot of doctors appointments for issues associated with treatment and long term survivorship.
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At 10:45am on September 18, 2009, Ron McKune said…
Hi Kelly...was a pleasure to meet you and Jackson also. I look forward to meeting Gregg and doing some running together. By the way, if you get a copy of the picture of all the kids we took that day I would like a copy also.
Kelly, thanks for writing to me a few months ago (I'm slow on the e-mail returning). I definitely remember you from our time on the hospital floor! Did you ever make it to Camp Side by Side as well? I have a success story with Carli, but I know one family who lost their beautiful girl January, and another family at the RMH now from Whidbey with an 11-year-old with osteosarcoma whose cancer is very advanced. I also remember Joe Bowen's 1-year anniversary of his passing on March 11. He endured 7 years of chemo/transplant/3 recurrences of ALL. I've found it pretty universal that doctors tell folks with leukemias/lymphomas they have the "good" kind of cancer, and it makes me want to scream!! With all the families I have met, and my good fortune to have a healthy child, I want SOOOOO badly to make it to D.C. to advocate for those who cannot. I literally have no $ and work 7 days a week, so if I can come up with a brilliant fundraising/mileage donation idea, I want to try to make it to D.C. in June.
We should try to hit Connie Bunch up to go. I would love to see her there again. They were our next door neighbors at the RMHouse in Seattle. I talked her into going to Reach the Day last June in D.C. Have you met her? Great lady. Amanda was her only child :( Cancer sucks!
I will try calling SCCA and if it doesn't work, at least I tried. I would love to encourage others to read it and consider being an advocate. Will you be back in D.C. in June? I will be back there with my husband.
I am so happy Jackson is doing so well. Thank God!
How are you doing? How is Jackson? I hope your family is well.
I was thinking of contacting SCCA's media and letting them know about you, me and Tawny Flanders who's kids were all treated at SCCA. I wanted to let them know about our D.C. trip and see if they could put it in their paper. We REALLY need media coverage for childhood cancer awareness, and that may be one avenue. Your Washington paper may be another. What do you think? Do you know their # or email?
Let me know your thoughts.
I hope you are well. I still want to order the cards for Christian.
Thanks, Kelly. His "foster mom"/real Mom and I are listed as his parents... it leaves nurses and doctors puzzled on just how that works since I have a wonderful husband! I've had the opportunity to be up there with so many foster children that some of the day to day stuff with being a parent at Children's is almost second nature! There are so many questions about Rhabdo that I wonder about. I've googled it but wish to know more. Got any good links?
I'm so sorry that I didn't get Hunter's story from you. It turned out to be way too soon for me. I thought I could do it, but hopefully, I can work on it a little here & there & then send it off to you when I'm in the right mindset.
Thanks for the opportunity.