March 2010 Blog Posts (22)

Give yourself a name...

Childhood Cancer Advocate.



You are. Sure, you're still Maddie's Mom, I'm still AJs Dad. Etc.



But the fact of the matter is - we are childhood cancer advocates.



I sorta changed the description of PAC2 in our welcome box (below the hands picture). It used to say we are an "on-line community". I changed it to we are an "advocacy community". Because we are. I guess I realized it when I was putting together the much discussed "… Continue

Added by AJs Dad on March 31, 2010 at 5:00pm — 4 Comments

Child Brain Tumor Survey

There is still time for parents of children with a brain tumor to fill out the IRB approved survey. http://www.surveymonkey.com/s/braintumor

Thanks.

Michelle McKiernan

braintumorsurvey@ymail.com

Added by Michelle McKiernan on March 30, 2010 at 4:42pm — No Comments

Help get $25,000 for childhood cancer through Facebook!

Fla-Vor-Ice wants you to click for a cure for childhood cancer! Help them raise $25,000 for all the little cancer warriors out there! … Continue

Added by Jen Nelson on March 29, 2010 at 9:00pm — No Comments

Need to vent!

When I feel "down" I always turn to PAC2 for comfort and inspiration. I guess I do the same when I need to vent...

I spend many hours a day (like all of you) to advocate for our kids, spread awareness and fundraise. We just raised $2200 from a Silent Auction for the Alex's lemonade stand. At the end of the day I feel like I have contributed in some small way to make a difference for the generations to come.

But then I get home and find the American…

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Added by Dash Wallooppillai on March 29, 2010 at 1:47pm — 5 Comments

In remembrance of one of our heroes...

We were saddened to learn this week that one of our childhood cancer heroes, Matthew Schechter passed away. Matt was a lemonade stand host and most recently a volunteer at our annual gala, The Lemon Ball.



Matt was a true hero. We are reminded especially this week that the work of our supporters, volunteers, grantees, and everyone fighting for a cure for kids with cancer really does matter, in big and small ways, to these kids and their families. They are why we are… Continue

Added by Alex's Lemonade Stand Foundation on March 26, 2010 at 4:53pm — 1 Comment

THE DAD FACTOR

I love being a dad. It is the greatest thrill in my life.



Our family is about as traditional as it gets. Kathy is the comforter, the one who teaches the love and joy. I teach our kids the confidence to strive toward new thrills and adventures. We discuss dreams, giant ones, and strategize on how to achieve them. I absolutely love my role (I had great examples in my dad and grandfathers).



I know many moms also play this role (and do a great job). But dads bring a critical… Continue

Added by Kyle Alfriend on March 26, 2010 at 1:46pm — 4 Comments

Shuffle Up for Seany!

Don't miss all the excitement at this year's Seany Lew Charity Poker Tournament and Casino Night! We're ready for some fun. Are you? Be sure to register online: http://www.theseanyfoundation.org/poker

Added by The Seany Foundation on March 23, 2010 at 6:52pm — No Comments

Round 2

March 16 2010

SEATTLE CHILDRENS HOSPITAL

 

We got our appointment for a second opinion and took rheagen to seattle childrens'. when we first arrived Rheagen was taken back to have labs drawn.  When the nurse went to access rheagen's port but couldnt get through. The saline flush wasnt working. He started to tell the nurse it hurt as soon as she began the flush but he always complains that it hurts to be accessed.  He was…

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Added by brandie marie robinson on March 23, 2010 at 5:30am — No Comments

Survey for Parents of Children with Brain Tumors

Dear Families of Children with Brain Tumors,

My name is Michelle McKiernan and I am the mother of a six year-old girl with a Juvenile Pilocytic Astrocytoma (JPA) who was diagnosed 3 years ago. I am also a Fellow in the Leadership Education in Neuro-developmental Disabilities (LEND)…

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Added by Michelle McKiernan on March 22, 2010 at 6:00pm — 1 Comment

Kids Giving Back

The familiar and founding principle of Alex’s Lemonade Stand Foundation is that when life hands you lemons, make lemonade. However, the foundation also operates under another especially important principle - that everyone, no matter how young or old, is capable of making a difference – including kids. We believe in kids helping kids, and since inception have seen the amazing spirit of kids who give back.



For us, this dates back to our own 4-year-old…

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Added by Alex's Lemonade Stand Foundation on March 19, 2010 at 5:17pm — 1 Comment

50 States video

Fun project. Participants in some states still needed. Be part of the AlexsLemonade Stand Foundation- 50 states video. Email me if you are interested in taking a photo at one of your local landmarks wearing an ALSF tee or other ALSF gear. Thanks, Jay- jay@AlexsLemonade.org

Added by Alex's Lemonade Stand Foundation on March 15, 2010 at 4:11pm — No Comments

Here We Go Again

After learning that Dr.Louie has decieved me I feel like I cant trust him. He litterally has my sons life in his hands and we cant take any chances. After some research I contacted seattle childrens hospital for a 2nd opinion.Dr.Pendergrass will see him on the 16th, he's an amazing doctor at the SCCA children's cancer treatment center and served as a director for the children's oncology group. But due to the severity of his relapse were allowing chemo therapy be started at mary bridge as…

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Added by brandie marie robinson on March 14, 2010 at 5:30am — No Comments

The Big East Tournament

If you read last week’s blog, you may know that Alex’s Lemonade Stand Foundation has had the immense honor of hosting a lemonade stand at The Big East Tournament this week. The Big East Tournament is the longest running conference tournament at any one site in all of college basketball, and determines the conference champion. In addition, the winner of the tournament receives an automatic bid to the NCAA Tournament. Due to our location, many of…

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Added by Alex's Lemonade Stand Foundation on March 12, 2010 at 4:30pm — No Comments

Trust

I loaded Rheagen into the van and explained to him that the doctor looked at his ultrasound pictures yesterday and they think that his cancer is back. He was so upset, he had just fought for 18weeks of  chemo and gotten his port removed and now he was going right back to where he started. Dr.Louie met as at the entrance of the hospital and walked with us back to the imaging department where Rheagen was prepped to have an MRI before the scan was even finished Doctor Louie came out of the…

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Added by brandie marie robinson on March 12, 2010 at 5:30am — No Comments

A Mothers Intuition

We sat down to dinner and I noticed rheagen was looking pale, he was losing energy again and I started worrying even more but we had a scan scheduled for the 6th of march to check for relapse so I didnt take him in to see the oncologist. His scan was at 8am when he was done we went home to unpack from the trip at 9am the phone rang, it was Dr.Louie, rheagen's oncologist. "Brandie, it's dr.Louie" Yeah I know your voice, whats going on" I just got a copy of his scan, it looks like we have a…

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Added by brandie marie robinson on March 10, 2010 at 5:30am — No Comments

WARNING!!! Talking about my heart...

After posting on PAC2 last night, a friend told me that I should" talk about my heart" , not sure what that meant really , I thought I did talk from my heart. I guess I did right then. But today is another day . Yesterday , I felt strong enough . I told all about how I get myself back up from rock bottom.

But today, thats where I'm headed and I will need to read my own words and take my own advice. Today, every breath is a struggle, every thought is painful, every task is a challenge.…
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Added by Julian's Mama on March 9, 2010 at 8:01pm — 3 Comments

Athletes Help Alex’s

Here at Alex’s Lemonade Stand Foundation for Childhood Cancer we love our lemonade stands. We also love the many other creative ways that our volunteers choose to support us. Something we have seen become an increasing trend over the years is the support of athletes and sporting events in the battle against childhood cancer. Athletes from all sporting arenas and all skill levels support ALSF, whether they are simply participating in an annual softball tournament or taking us along…

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Added by Alex's Lemonade Stand Foundation on March 5, 2010 at 2:30pm — 2 Comments

Launching Our Website For Maggie's Ministry!

Dear PAC2 friends, We are so excited to announce that we now have an official website for our foundation Maggie's Ministry.We are asking that you help us get the word out there on facebook,twitter,carepages,caringbridge and any other sites you can think of.For the last 17 months,we have relied on family and friends to support our mission,it's time to grow and go global.With your help,we can accomplish this.Please check it out at:…

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Added by Helen Achuff on March 5, 2010 at 9:22am — No Comments

We Need a Miracle

Hi all,

I'm writing this in hopes that one of you can help us! My 10 yr old son, Aiden has stage IV Rhabdomayosarcoma. On Dec 23, 2009, he finished the grueling 17 months of treatment perscribed by the docs @ Memorial Sloan Kettering Cancer Center. Two weeks ago two tumors were found in his lung. His three month scans are set for 3/10 & 3/11. The Drs believe he has already relapsed. Needless to say we are devistated. With Rhabdo any relapse has a horrific survival rate and to…

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Added by Lisa Binkley on March 3, 2010 at 12:36pm — 5 Comments

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