April 2009 Blog Posts (26)

The Swine Flu: A Crisis

It's all over the news. The Swine Flu has entered the U.S., and everyone is responding quickly. Here is what has happened already:



--Over 100 schools have closed.



--President Obama called on all schools with possible swine flu cases to "strongly consider temporarily closing."



--Congress approved $1.5 billion in emergency funds.



--Education Secretary Arne Duncan said that everyone involved in schools needs to "pitch in and do our part to prevent the… Continue

Added by Kyle Alfriend on April 30, 2009 at 11:58pm — 8 Comments

My Hero Won the Battle

Blake David Kurtz, aka 'Baby Hercules' has WON his battle against AT/RT, the rare brain cancer he was fighting. He passed peacefully on Mon. April 27, at 4:04 pm in the arms of his mother and father, surrounded by his family that he loved so dearly. We will miss our sweet prince, and know that he will somehow find a way to help fight the beast we all know as cancer. Rest peacefully, my sweet angel.

Added by Shelly Kurtz on April 30, 2009 at 11:34am — 6 Comments

The Seany Team says, "Be extra nice to Mom this Mother's Day."

Mother's Day is May 10.



Say, "Happy Mother's Day" this year to Mom and make her proud by buying her some flowers or gourmet food through our special link to ProFlowers.



Go to www.proflowers.com/theseanyfoundation



If you follow this link and buy flowers and/or gourmet food, not only will you get a FREE vase with your bouquet, but ProFlowers will also donate $10 (yes, $10) from each order to The Seany… Continue

Added by The Seany Foundation on April 29, 2009 at 8:37pm — 1 Comment

Hello Friends

Just wanted to introduce you to Sean:



Sean Lewis Robins

December 27, 1983 ~ November 17, 2006

www.theseanyfoundation.org



Sean Lewis Robins was born in Detroit in 1983 to his parents, Amy and Mitchell. Seany grew up as the middle child with older brother, Alexander, and little sister, Emily. At age 7, Sean moved with his family to San Diego. There he grew older and stronger, excelling at outdoor sports and… Continue

Added by The Seany Foundation on April 28, 2009 at 2:30pm — No Comments

Great Lemon Ride

A wheel chair racing athlete left San Francisco today on a 3,500 mile, 45 day trek to New York city to raise awareness about childhood cancer. See route map. http://bit.ly/48bZ0 Come out to cheer him on.

Read more about this amazing athlete here : http://bit.ly/boPbF

Added by Jay Scott on April 27, 2009 at 10:54pm — No Comments

Interview Available

the interview we did airs this morning on "Better" 10-11am West coast time. Or you can go to www.better.tv and it is the first video to play today after today search on cancer and it pops up.
It was more difficult then I thought to do it. Let me know what you think.

Sherri

Added by Sherri G on April 23, 2009 at 12:04pm — 3 Comments

ugh

Well Aiden is done with radiation to the lungs, and will start chemo on Monday. 36 weeks of chemo...I try not to be selfish and dread this, I know cicumstances could be much worse. Basically what I'm trying to say is, I should be content with the fact my child is still here, and try not to be upset that he has to go through thirty six more weeks of chemo. With the first diagnoses, I was ready for anything that came, except when they told me they had to remove his entire right pelvic bone, but I… Continue

Added by Amanda on April 17, 2009 at 8:45pm — 1 Comment

Take The Power and Use It

Dear Maribel,
Be active in your son's care. Research therapies outside of mainstream. Take your son to a physician that has trained him or herself in therapies on their own time when med school was over. ACAM is a place to find one. Nutrition can make or break the outcome. Go to www.bobbysfund and find out how to think outside of the box for your son.
Keeping the Promise,
Linda Kimball
http://www.bradkimball.com

Added by Linda Kimball on April 16, 2009 at 4:07pm — No Comments

My First Experience With ALSF, and My Lasting Inspiration

From www.LemonadeBlog.org

Visit ALSF on Twitter at www.Twitter.com/alexslemonade



Thanks to our guest blogger; Lauren Humphries – Race Director,

2009 LEAD Strong Half Marathon





Coming into this position as race director for the 2009 LEAD Strong Half Marathon, I knew very little about Alex's Lemonade Stand Foundation, or its founder Alex Scott. But I believe that giving back is an essential part of being… Continue

Added by Alex's Lemonade Stand Foundation on April 16, 2009 at 3:44pm — 1 Comment

The New Normal

You've heard the phrase. This is now your new normal. It's thrown around like rice at the end of a wedding. Please adjust and live your life as a New Normal. The New Normal. Yep, just move ahead with the New Normal. It always sounds like it's capitalized doesn't it? THE NEW NORMAL. Like its turning a page in a book and starting a new chapter, and you just keep on going. The stuff you've read already, well, I suppose in the New Normal, you're supposed to just take it in as part of the story.… Continue

Added by AJs Dad on April 14, 2009 at 2:19pm — 8 Comments

Please Light Candles for Katie & Jake

Please take a moment to light a candle for Katie and Jake. Thank you.

Added by Sue Pompetti on April 14, 2009 at 1:13pm — No Comments

Safe place...

because our family read our carepage , I never feel I can just let it all out...

I can never say things like " Man this sucks horribly and I wish I had died with Julian" At least 4 people would call 911... or a shrink anyways.

Well, I do think that at times, doesnt mean I want to go out and buy a gun and shoot myself. I just mean the pain is unbearable and I want it TO STOP!!!!

I am tired of putting a happy face on , so people dont think I am gunna crumble every time I take a… Continue

Added by Julian's Mama on April 13, 2009 at 2:15pm — 7 Comments

Article on Thomas on local newspaper

See an article on Thomas and another young man battling an auto-immune disorder at www.oakhillgazette.com.

Added by Lisa Molina on April 13, 2009 at 2:03pm — 1 Comment

For Matthew

An Easter gift, held off a day

The baby boy that came their way

He was his parents’ pride and joy

Their second born child and first born boy



It was a beautiful family like many another

‘Twas Mommy and Daddy, sister and brother

Mommy’s sweet angel, Daddy’s big man

Big sister’s best bud to take by the hand



First it was scooting, then on to crawling

Up to his feet, then walking not falling

Miranda was waiting, in the wings, all the… Continue

Added by C. Hood on April 13, 2009 at 5:00am — No Comments

SUPERHEROS

Superhero



Su-per-he-ro, (dictionary.com defination) n. A figure, especially in a comic strip or cartoon, endowed with superhuman powers and usually portrayed as fighting evil or crime.



I am brought here to this place in time to share my thoughts of the superheros that our children cherish so much. I will start with the odvious. Our children who must endure the beast that childhood cancer is are superheros to us all. They show us strength that we never thougth that they… Continue

Added by rob whan on April 11, 2009 at 12:49pm — 2 Comments

How Social Support Helped Our Family In Small And Big Ways

From The Lemonade Blog



Thanks to Guest Blogger Shannon Staino



On March 26, 2008 our lives were changed forever. Our 15-month-old son, Brett, was diagnosed with stage III Wilms’ tumor, a form of pediatric cancer. The immediate outpouring of support from the hospital staff, family, friends, our community and even perfect strangers is, to this day, beyond words. I will never be able to thank everyone enough for all they have done to help my… Continue

Added by Alex's Lemonade Stand Foundation on April 9, 2009 at 4:53pm — No Comments

Joe as Honored Hero

Here is a link to the web page that features Joe:


http://www.lightthenight.org/sun/localchapter/heroes

Our Joe:



Added by Bev Simmons on April 7, 2009 at 9:20am — No Comments

TV Interview/Sallie update

Hi All,



We did a T.V. interview for a program call "Better". It was with our local KPTV channel 12 FOX affilated station. The interview was on parenting a child with cancer. It will air on April 23 locally between 10-11am. Since it is a FOX affiliated station it is being picked up in over 50 market areas so if you are not in the Portland area check your local listing for a time. It will also be on the internet at www.kptv.com or www.better.tv it was harder to do then I had thought it… Continue

Added by Sherri G on April 6, 2009 at 5:30pm — No Comments

I'm so hurt about how life changed my son.

I know we all have our own struggle in life with our kids being sick. I have tried so far for 8 1/2 months to deal with my son being sick. I know this is a long journey, I know it will get better, I know I'm doing my best, I know it all... But it's not enough. I'm so unhappy about everything, no matter how many people around me are so supported, understanding, listening to me vent, it's not enough. I even went to church to help me feel better about myself that didn’t help. I was angry just… Continue

Added by Maribel Einarson on April 5, 2009 at 7:16pm — 4 Comments

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