Ok, I'm stealing part of this blog post from my caringbridge entry for today. It's been a rough one. Please bear with me.
I’m trying very hard not to dwell on the fact that 10 months have gone by since we said goodbye to you. I’m trying awfully hard not to look back at where we were a year ago, working on getting you ready to return home from CHOP, having just gotten your J-G tube placed because you still… Continue
Added by Amy Bucher on June 30, 2009 at 10:30pm —
Use voucher code FREESHIP during checkout at http://www.highstrungbeadsetc.com
to receive free shipping through 6/30/2009!
Added by Sue Pompetti on June 29, 2009 at 4:27pm —
Hello to all
I live in the state of Missouri Kansas City and Trenton missouri area . I am looking for someone who might be able to help with this.
While I was getting tags for our truck I looked up and saw all the plates for causes child abuse ,breast cancer and such . Do not get me wrong these are all good causes , However there was not one for childhood cancer awareness . I got home wrote the MVR and asked how to get plates in missouri for childhood cancer . They wrote me back it… Continue
Added by Deidra Combs on June 27, 2009 at 9:43pm —
CT and x-rays are done the results came back we were taken to a conference room down the hall. the news wasn't good, the lungs showed signs of cancer as well they now were telling us that the cancer looks like it spread to his lungs which lowers his chances of survival. We have to stay in the hospital for a few days until all tests are complete so they can schedule the Nephrectomy. The operation has been scheduled for next Friday, they'll removed his entire… Continue
Added by brandie marie robinson on June 27, 2009 at 6:30am —
I do believe that is the best PAC2 home page I have seen yet. It really shows some results of alot of peoples hard work. It impressed me so much, I sent the link out in an e-mail and copied that e-mail to Dustins Caring bridge page.
Way to go everyone, but lets not stop till we find that cure.
Added by Jim Perry on June 25, 2009 at 10:56pm —
When I joined here I had just lost my 14 yr old niece and Bob and Lori had just started PAC2. I knew nothing of the lack of funding, only knew that my niece died because there was NO CURE and had such a feeling of loss and overwhelming drive to do SOMETHING to help other children/families not have to go through what I watched Kelsie and my family go through…. something needed to change.
Since that time I have learned so much, mostly all here on PAC2. It is a tremendous resource, wealth of… Continue
Added by Kathi Clarke on June 25, 2009 at 5:30pm —
As our biggest month of the year winds down (we are still looking forward to our very first Childhood Cancer Symposium this weekend, click here for information
), we are anxiously awaiting the submission of grant applications for the 2009 Nursing Grants and a brand new and exciting addition. Alex’s Lemonade Stand Foundation is proud to announce a new grant category to our already prestigious line up, the “A”… Continue
Added by Alex's Lemonade Stand Foundation on June 25, 2009 at 2:30pm —
If you want to see the hottest movie this summer before it comes out in theaters, write to firstname.lastname@example.org for more info. Join us Tuesday, July 14 for a special screening and costume party to celebrate what being a kid is all about!
We just got the tickets hot off the press and are selling now.
Added by The Seany Foundation on June 25, 2009 at 1:20pm —
Added by Sue Pompetti on June 24, 2009 at 7:00pm —
I found this article quite interesting:
NIH funding level correlates with lower US mortality rates
A few random excerpts:
"The primary finding was that mortality rates generally decline with increasing funding, but this drop comes… Continue
Added by Dave Nickason on June 24, 2009 at 6:00pm —
My daughter was recently diagnosed with ALL. She is 7 years old. We are looking to chat with people who are going on this pediatric cancer journey.
Added by Eileen Frederick on June 21, 2009 at 3:55pm —
Thrilled to give some details from the last week.
CBS 3 Telethon in Philadelphia raises $891,000
Movie Actor Terrence Howard and his son work a lemonade stand at the Ritz-Carlton to raise money for childhood cancer research. They raised $3000 in an hour or so.
Baseball player Evan Longoria and singers Jordin Sparks Tweet about Alex's Lemoande and childhood cancer on Twitter.
20+ world class chefs come together to raise money and awareness for… Continue
Added by Jay Scott on June 18, 2009 at 8:30pm —
Jay and Liz Scott with Bobby Flay
Hi everyone, we hope this finds you well. As you can imagine, the entire staff at Alex’s Lemonade Stand Foundation, as well as all of our wonderful volunteers, are recovering from a very busy week and a half of lemonade activities. We had another successful Lemonade Days weekend, including Alex’s Original, the Philadelphia CBS 3 telethon, and so much more. We wanted to take this opportunity to share our experience from the event that… Continue
Added by Alex's Lemonade Stand Foundation on June 18, 2009 at 3:30pm —
Thank each of you for being here. I was asked to speak a bit from a caregiver perspective, but I will start with some background. Many of you here know my family's story.
The day after Thanksgiving 2004, I rushed my 3-year-old daughter to Whidbey General because she was struggling to breathe. This was her 3rd visit to the ER within the month and she was believed to have asthma. This time when a chest x-ray was taken, I was told, "You're going to Children's Hospital." When we arrived… Continue
Added by Erin Waterman on June 16, 2009 at 7:28pm —
Mark your calendars for Saturday, Sept. 12, 2009 for a Childhood Cancer Awareness Day CELEBRATION! It is for anyone that wants to celebrate our littlest HEROES! There will be food, live music, fishing, paddle boats, petting zoo, a balloon release, etc. It'll be a day of fun and a great way for PAC2ers in the region to meet, collaborate and celebrate LIFE!
I'm super excited!!! If you want to help plan the event, let me know!
Added by Kara Cunningham on June 16, 2009 at 1:30pm —
This is deeply disturbing to me -- to read about so many people lauding over the Jel-sert's company putting the "Gold Ribbon" of Awareness on their toxic "Fla-Vor-Ice" product. And then to visit the Candlelighter's webpage and to see the picture of the Cancer-stricken child clutching the box of these toxic-pops made me cry.
The ingredient list:
Fla-vor-ice ingredients: water, high fructose corn syrup, fruit juice (apple, grape, and/or pear, from concentrate), citric… Continue
Added by Bev Simmons on June 16, 2009 at 9:21am —
Added by Sue Pompetti on June 13, 2009 at 11:24pm —
Well, it's been 8 months since I posted...8 months ago, Corey relapsed for the first time on Oct. 1, 2008. He was NED (no evidence of disease) again March 13, 2009. Unfortunately, he relapsed again on April 17, 2009. Again, it was the thunderstorm we all dreaded, but it was upon us and all we could do was trudge forward and fight. And fight we did, until the bitter end. Corey fought with more courage than I have ever witnessed. Corey lost his battle with neuroblastoma on May 8, 2009. He… Continue
Added by Karla on June 12, 2009 at 8:06pm —
On Saturday, June 6th, two of my colleagues and me set up our very first Alex’s Lemonade Stand as part of our company's (Royal Bank of Scotland) "One Week in June" volunteer project. In March of this year, we had looked at a few charities and decided that ALSF seemed like something we should be a part of. From the very beginning I decided that we needed more than a table to peddle our lemonade, and became determined to build a proper stand for big and little kids alike! The unique problem… Continue
Added by Alex's Lemonade Stand Foundation on June 11, 2009 at 1:30pm —
Well 2009 Lemonade Days are just about here and there is lots going on in the name of battling childhood cancer. It sometime seems to me like Lemonade Days has gone from a weekend long event to a June event. For a full list of June happenings click on this; Lemonade Days Happenings
I will give a brief run down of some of what is happening here. We hope to see you out there.
For Philadelphia area… Continue
Added by Jay Scott on June 10, 2009 at 10:00pm —