September 2008 Blog Posts (43)

Addicted!

I am addicted... to blogs - reading them and updating my own. But it wasn't always like that. Before Bianca became sick, I really had no idea what blogging was all about. Then Bianca became sick and the internet sort of became my life. I read and Googled and read some more! I've never read more on any other subject than I did about cancer. So hubby encouraged me to start my own. Not only would it be helpful to me for writing about our journey, but… Continue

Added by Lea White on September 30, 2008 at 2:00am — 1 Comment

They actually said it!!!! YEAH!!!!

Today my family went to Vanderbilt Children's Hospital to hand out Girl Scout cookies at an event called We Care For Kids. I went prepared with printed out statistics praying to be interviewed. And I just saw the segment on TV. It started out with the words "September is Childhood Cancer Awareness month,..." And the only quote they used from me was "breast cancer and prostate cancer get one third of all money for cancer research, the overall survival rate for breast cancer is 90%, for prostate… Continue

Added by Tiffany Beamer on September 29, 2008 at 12:19am — 9 Comments

We are coffee beans!

Here is a story that Joe and I received on the day that Zack's last needle biopsy showed his final relapse of diffuse anaplastic Wilms:



A young woman went to her mother and told her about her life and how things were so hard for her. She did not know how she was going to make it and wanted to give up, She was tired of fighting and struggling. It seemed as one problem was solved, a new one arose.

Her mother took her to the kitchen. She filled three pots with water and placed each… Continue

Added by Sara Schumann on September 28, 2008 at 10:43am — 2 Comments

Sort of a photo blog.

So, some of you may glance at my PAC2 profile and wonder what my connection with childhood cancer is, and that's OK. Most college students my age haven't witnessed what I have, and therefore might not feel as passionate about CC as I do. Rather than typing paragraph after paragraph for you to read though, I figured I'd be creative and do a little partial photojournalism of my own (plus, my profile SERIOUSLY lacks some visuals.)



Enjoy!









What CC Means… Continue

Added by Stephanie on September 28, 2008 at 5:35am — 7 Comments

A united front for our future!

Fighting Together



Standing face to face with the beast

Brothers and sisters in a common cause

Beyond the storm, victory creased

A fight of forever, of win or of loss



Camaraderie forged, engaged in battle

Trusting His path as it’s revealed

Our steadfast faith, it shouldn't rattle

As we hold fast to God’s great shield



Perhaps the monster’s name is “cancer”

Shocked into such disbelief

Searching for the perfect… Continue

Added by C. Hood on September 27, 2008 at 2:50pm — No Comments

JMML CHILDREN AND CANCER AWARENESS

Hello



IT IS WITH A VERY SAD HEART THAT I TELL YOU TODAY ......



A LITTLE GIRL HAS PASSED AWAY FROM JMML LEUKEMIA LAST WEEK THAT TURNED INTO AML .



AFTER A LONG BATTLE SHE HAS EARNED HER ANGEL WINGS AND NOW IS CANCER FREE ......



THIS IS THE 3RD LITTLE GIRL THIS HAS HAPPENED TO THIS YEAR THAT I KNOW ABOUT...



THE SAME CANCER MY SON HAD JMML LEUKEMIA

. 3 ANGELS WHO LEFT TO SOON.



SEVERAL KIDS ARE DIEING OF jmml AND GETTING DX EVERY… Continue

Added by Michaelle on September 27, 2008 at 8:30am — No Comments

blogging about a blog

a friend of mine told me i should start blogging about childhood cancer and everything having to do with it because i'm so passionate about it.



so THAT'S what i'm going to start doing. even though i'm not a parent of a child with cancer, i still feel strongly enough to want to do something about it. once i get a good topic to start off on, i will link you all to the blog, and we can start talking! :)



basically i'm thinking the blog will be another place to personally share… Continue

Added by Stephanie on September 27, 2008 at 1:34am — 5 Comments

Continue

Added by Rebekah on September 26, 2008 at 9:04pm — 1 Comment

Grace shows off her medal... and her mettle!

On Tuesday, September 23, 2008, almost a year to the date of Grace's diagnosis, Grace participated in a ceremony at the Rhode Island State House to honor Pediatric Cancer Awareness Month. There were children and families there from all over Rhode Island and Massachusetts - each with a cancer story. Each child shook hands with the Governor and received a certificate and medal declaring her/him a Tomorrow Fund Ambassador. The Tomorrow Fund is a Rhode Island based non-profit that supports children… Continue

Added by Rebekah on September 26, 2008 at 9:00pm — 1 Comment

A Prayer lifted on the wings of an Angel

Dear God,
I pray for a cure for childhood cancer. Amen!

In memory of any child that has already earned their wings, in honor of those children still fighting and for the families of all these brave warriors!

Added by C. Hood on September 25, 2008 at 7:25pm — 2 Comments

CCAM...

Ok, here's a question, and I HOPE someone can answer it.



Why isn't there more awareness on childhood cancer??



See they have telethons for MDA, and EVERYONE knows that October is Breast Cancer Awareness Month and people do fundraisers for that, but NO ONE that I have talked to knows that September is Childhood Cancer Awareness Month.



I know they do fundraisers for St. Jude, but why cant childhood cancer have a 24 hr. telethon? I think we need to do something… Continue

Added by Lisa on September 25, 2008 at 7:17pm — 2 Comments

Members Project -- Project Brain Child

http://www.membersproject.com/project/view/NN934A -- Please visit this link and vote for Project Brain Child! Please pass it on -- thank you.

Added by Sue Pompetti on September 24, 2008 at 3:15pm — No Comments

Pediatric Brain Tumor Walk in Fort Worth , Oct 4th

Hello, all...



Here is some info about a walk happening here in Fort Worth on October 4th .We will be celebrating the life of Trinity Bright , sweet angel who was attacked by DIPG in the spring of 2007 . The fund raised will go the Pediatric Brain Tumor Foundation .



here is the website for the event…



Continue

Added by Julian's Mama on September 24, 2008 at 1:52pm — 2 Comments

Brain Cancer in the Family Raises Risk

You know, it's not particularly reassuring to have my personal neuroses borne out by research...


Brain Cancer in the Family Raises Risk

Source: http://medpagetoday.com/HematologyOncology/BrainCancer/tb/10959

TEL AVIV, Sept. 22 -- Family members of patients with brain cancer, particularly astrocytoma, may inherit a higher risk of the same diagnosis,…

Continue

Added by Kathy Bell on September 23, 2008 at 6:55pm — No Comments

Letter to Elected Officials

Dear Elected Official,



My son, Caleb Whan, lost his life to a horrible monster named Leukemia. Caleb fought a valiant battle for over 7 months; just to have this disease take his future and leave us with only 4 short years of his life. Caleb passed on to heaven on March 28th 2008. I have been thinking a lot lately of how to persuade people to get aboard and make a change for the good in this sick world of Childhood Cancer. The most difficult challenge I face, is to get people to… Continue

Added by rob whan on September 22, 2008 at 6:59pm — No Comments

Angels Among Us...

I'd been wandering around the PAC2 halls again this morning, before I slipped away offline; I walked away from the computer but for some reason I was drawn back to it. When I sat down, I pulled up Microsoft Office Word with no idea why; but after letting my fingers once again do the walking over the keyboard, apparently I'd been inspired and a seed had been planted. This was the outcome of 10 minutes of allowing my fingers and brain to collaborate without allowing time to rethink any words that… Continue

Added by C. Hood on September 19, 2008 at 2:39pm — 3 Comments

A Letter to ^Caleb^

Dear Caleb,



Well, it is August 10, 2008. Just one short year ago we got the news that we would all be battling this damning disease of Leukemia. Since the first day there was no doubt in my mind that you would be healed of this monster. You were so strong, brave, innocent and beautiful, there was no way that God would have taken you away from us. I knew just as I am sitting here breathing that you would conquer this. I had hope through the entire battle. I never thought that we would… Continue

Added by rob whan on September 18, 2008 at 10:11pm — 9 Comments

When Thumbs up isn't enough...

Here's something I found 3 months ago that really resonated with me, how 'bout you?









When Thumbs Up Is No Comfort





By JAN HOFFMAN

Published: June 1, 2008

OVER the Memorial Day weekend, the actor Patrick Swayze, who is being treated for pancreatic cancer, made a pointedly public appearance at a Los Angeles Lakers game, looking strong-jawed and bright-eyed. He released a statement about his lively schedule and good response to therapy.… Continue

Added by Sweet Lily's Dad on September 17, 2008 at 6:17pm — No Comments

Make a Difference - Vote for Project Brain Child!

Project Brain Child is an effort of the Pediatric Low Grade Glioma Association.

Members Project is a program sponsored by American Express where cardmembers submit innovative ideas for projects that make a difference. Cardmembers vote on the projects, and the winning 5 projects will receive up to $1.5 million in funding from American Express, awarded as follows:…

Continue

Added by Kathy Bell on September 17, 2008 at 2:01pm — 2 Comments

Your Future Peds Oncology Nurse...

When I became a dental hygienist 14 years ago, I thought my future was set. For the first five years after graduation, I had always said, "I will NEVER go back to school! I've paid my dues." Well, as they say, "Man plans, God laughs"!



Truth be told, I have always wanted to be an RN, but I never had the guts to pursue the dream....until now. Before I even started hygiene school, the Lord was whispering the dream of nursing to me, but I was too stubborn to listen. The whisper… Continue

Added by Angel on September 17, 2008 at 1:32am — 4 Comments

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