September 2009 Blog Posts (33)

OpEd

I sent the below to the Wall Street Journal a couple of days ago as a hope for an OpEd piece. To date, I haven't heard anything back from them. In as such and you have the desire, please feel free to use whatever or all portions of it for your use.



We protect and value them as our most important assets. We clothe, feed and give them shelter. We educate them. We pray they can attain and aspire to a level in society higher than what we achieved. We see in them a future, dreams yet… Continue

Added by Jim on September 30, 2009 at 2:38pm — 14 Comments

SU2C article from today

I just read the article in SU2C posted today, which included Ishani's story. It makes good awareness of childhood cancer... BUT like Bob noted there was no mention of the childhood cancer foundations... I thought the main reason for this article was to also bring awareness to the foundations that we support - otherwise why would those foundations have shared our stories with them...? I sincerely hope that next year childhood cancer research is high on their list for funding, since this article… Continue

Added by Dash Wallooppillai on September 28, 2009 at 10:14pm — 2 Comments

Communities Come Together for a Common Cause



Above: Riley, Lauren and Jeremey celebrate a successful day of raising awareness for childrens cancer. Photo Credit: netequityloans.com

If you have been visiting our website lately, you know that it has been a busy end of summer/beginning of fall for Alex’s Lemonade Stand Foundation. This past weekend was no exception, as both myself and Alex’s dad were busy attending events in three different states. Though the events couldn’t have been… Continue

Added by Alex's Lemonade Stand Foundation on September 25, 2009 at 12:02pm — No Comments

Watch Thomas Tell His Story and Receive Proclamation from Austin City Council Tonight

My brave, beautiful son - now fighting for his life in 2nd relapse of leukemia, will tell his story, urge for funding for childhood cancer, and receive the Childhood Cancer Awareness Proclamation from Austin Mayor Leffingwell at 5:30 (CST).

You can watch it live stream at http://www.cityofaustin.org/council/cclive3/livestream2.html

or on Ch 6 locally.


Lisa

Added by Lisa Molina on September 24, 2009 at 2:06pm — 1 Comment

Wilson to Children's Mercy Again

Wilson has a clinic appointment at Children's Mercy Oct 7th at their GI Clinic. For the last month he has been having problems with bowel movements.



At the end of Aug I was getting calls from the school nurse saying that Wilson was complaining of stomach pains. He wasn't wanting to eat much and he couldn't go poop. After several phone calls I took him to his dr. The dr put him on a stool softner to try to eleveate some of the blockage. It didn't work like she wanted.



We… Continue

Added by Clara on September 22, 2009 at 8:38pm — 1 Comment

Patient Endurance

ka'tie'less, a. 1. Without Katie



ka'tie'less-ness, n. 1. The state of being without Katie.



I've read that cancer patients and their families typically suffer from symptoms of Post Traumatic Stress Disorder, the disorder that plagues rape victims and combat veterans. On many days, I feel as if I suffer from it. I have horrendous flashbacks, bad mental pictures - from the days in the hospital, and on hospice care - that flit onto the screen of my mind, and stick… Continue

Added by Karen Gerstenberger on September 22, 2009 at 10:14am — 2 Comments

Does anyone else out there get tired?...

Tired of smiling all the time when it's not how you're truly feeling? Tired of answering "we're doing good" when I know we're not? Tired of listening to how great everyone else's life is ? Tired of hearing"life goes on,you just have to keep going"? Tired of hearing advice about how to get through the grieving process? I'm sorry,I'm just having a bad day/week /month and I'm tired.How is it that we can go 24/7 and take care of our sick children and our other children and not be tired? How is it… Continue

Added by Helen Achuff on September 22, 2009 at 9:57am — 5 Comments

RI STATE HOUSE LIT WITH GOLD!

Added by Rebekah on September 21, 2009 at 11:23pm — 4 Comments

Harley's MRI Report

Hello All



WE got Harley's MRI report they were not good . We had done one in June and they thought they saw two more spots . SO we just did another MRI in Sept . We got the report this week and the tumor has grown and there are two more small ones . When they gave us our options one was do nothing and they would still be there for us to keep her comfortable or 4 choices in chemo . We have picked the chemo that has had the best results in children . We will get a port put in on… Continue

Added by Deidra Combs on September 20, 2009 at 11:13am — 2 Comments

Will the hurt ever end...

The first day of school came and went...with an empty seat on that big orange bus. I sat at the cemetery most of the day with Trent's dog, Rex; it's just not fair. The hurt is not getting 'better' and the pain is as intense as ever; whoever said that time can make a difference has never lost a child.

Added by Donna Childers on September 19, 2009 at 10:27pm — 3 Comments

Up date On Adriana

Well We finished up treatment on Aug. 4th. Everything went really good with radation. We will be having scans on October 19th and 20th. I am of course very nervous. Adriana has been doing pretty good. Still having lots of pain in her right leg and back. But for the most part we have been just enjoying being home.

Added by DeAnna, Adriana and Family on September 19, 2009 at 3:29pm — No Comments

A Lemonade Trip to Kansas City

With September and Childhood Cancer Awareness Month upon us, I am getting out to as many events and speaking engagements as possible to raise the profile of childhood cancer. These events often bring memories of Alex to the surface, allowing me to reflect on the time that has passed, and what I have learned about childhood cancer, and especially life over the passed 10 years. I wanted to share a recent experience with you, a trip to Kansas City,… Continue

Added by Alex's Lemonade Stand Foundation on September 18, 2009 at 4:01pm — 2 Comments

2009 Parkway Run/Walk for Children's Cancer Research

Sunday, September 27, 2009

In just the past four years, the Parkway Run/Walk presented by Four Seasons Hotel Philadelphia, raised more than $2,000,000 for The Cancer Center at The Children’s Hospital of Philadelphia. By working together we can make this wonderful event even more successful. Our goal for 2009 is to have 8,000 participants gather on the parkway to show their support for children’s cancer research.

Schedule of Events (preliminary program)

Sunday, September 27,… Continue

Added by Suzanne Wozniak on September 18, 2009 at 2:47pm — No Comments

www.Transitionthemovie.com

Movie finished editing and is on it's way to sundance. Hopefully we can get some Hollywood royalty interested in the cause. Check out the trailer on the website..On another note Nick started Lafayette college and is doing great! With hope ,love and gratitude Kathy Bisignano

Added by Kathy Bisignano on September 18, 2009 at 12:00am — 3 Comments

The Road to Transplant -

My CarePage Update - 9/17/09 - www.carepages.com/carepages/thomasmolina



Hi everyone,

This is Thomas, and I am going to have a bone marrow transplant, but I’m ready to beat this cancer once and for all. Thanks for caring. Father Stephen, a priest from our church, reminded me today that I am not alone, and that there are lots of people thinking about and praying for me. If it wasn’t for you, I would not have a reason for living. Thomas—



This is now Lisa - All went well… Continue

Added by Lisa Molina on September 17, 2009 at 3:32pm — 4 Comments

Aimee's Walk

I would like to thank everyone for all your support in making Aimee's walk for childhood cancer a success. Here is the link from an article that was in the paper the morning after. I would also like to Thank all the families of childhood cancer for coming and speaking about your child and the devastion our children continue to go through. God Bless everyone for all your hard work in getting our childrens voices heard. I know together as one we will be… Continue

Added by Aimee Dickey on September 17, 2009 at 6:56am — 3 Comments

www.cancer.org

What does one think if they type in www.cancer.org? Yep, you'd think this was the site that could answer all questions on cancer, right? Well, tell ya what. Click on the link and tell me what their banner says? Diana called them and asked what it was and they were very qucik to answer with "October is Breast Cancer Awareness month". She then asked what the color was that represented Childhood Cancer. "I have to look that up" was the reply. She then made him AWARE of the color and that September… Continue

Added by Jim on September 16, 2009 at 1:40pm — 9 Comments

RI State House dome to be GOLD!

So pleased when I got word today that my request will actually happen. For the week of September 21st, the Rhode Island State House dome will be lit with gold lights in honor of Childhood Cancer Awareness Month. Kudos to The Tomorrow Fund for covering the expenses. The lighting will coincide with the Governor's ceremony to honor the children of the Tomorrow Fund Clinic (September 22nd). Grace will be receiving a "Lifetime Ambassador" medal. I will photograph the event and the dome and post… Continue

Added by Rebekah on September 16, 2009 at 10:57am — 2 Comments

Blood Drive= Huge Success!

Our blood drive in Maggie's memory was a huge success! Thanks to everyone that came out on such a miserable day and night to donate.We were able to help,drum roll please-111 patients in the Philadelphia area hospitals! I am so proud that our Maggie could motivate and inspire so many people.Some of which were first-time donors.We are definately doing this again soon.For the first time in a long time,I don't feel so helpless.This is the happiest my heart has been in a long time~thank you my sweet… Continue

Added by Helen Achuff on September 15, 2009 at 9:41am — No Comments

We were very humbled to read this....

My husband's patient just passed away from Lung Cancer. He was 67. This was written at the end of the obituary notice in the paper..

"In lieu of flowers, donations may be made in David's memory, to the Ishani - Alex's Lemonade Stand to help with children's cancer research, 3613 Williams Drive, #404, Georgetown, Texas 78628, www.alexslemonade.org/stand/9893."

Not for Lung cancer, Not to the American Cancer Society, but for our kids.

Added by Dash Wallooppillai on September 13, 2009 at 10:30pm — 6 Comments

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