October 2008 Blog Posts (57)

To Bentley... from Mommy

One of the twins is who you are

Double my fun is what you bring...



Blessed with love and blessed with joy

We play, we read, and we like to draw...



Don't you know I'm so eager to see you to be an illustrator?



So sad to see you get so sick

Too bad I can't even do a thing...



Give you hugs and hold you tight

Stay by you in every night.



Close my eyes and make a wish

Hope that you can get well soon.



Keep on… Continue

Added by Freda Tao on October 31, 2008 at 4:22am — 3 Comments

Cancer Camp and Sibling Camp

Jakob looks forward to going to cancer camp every year with Camp Quality. However his brother Logan always feels left out and has at times said he wishes he could have cancer so he could go to camp too. Only if they knew what they were saying. A nurse resently told me about this camp that also does sibling camp. We are looking into how we can fit it into the budget to send Logan but thought anyone that lives close might like to know about it. Below is the link…



Continue

Added by Staci Tubbs on October 29, 2008 at 9:58pm — 1 Comment

Bone Marrow Transplants Resource

I was contacted by this company to place a link on my web site and thought everyone might find it useful.



DKMS Americas

We work to increase the number of donors on the registry so that every cancer patient has a fair shot of finding their perfect match. What makes us unique is that we do not charge donors for the $65 tissue typing test. We perform HLA- A*, B*, C*, DR* high-resolution typing on every registered donor minimizing the search time for finding the best possible donor… Continue

Added by Staci Tubbs on October 29, 2008 at 9:55pm — No Comments

Even More Cancer Awareness Jewelry

Ok I think I have it all but one thing listed now. I made a Reach The Day bracelet and am waiting for Cure Search to send it back to me. Everyone who is a pac2 memeber gets 50% off just send me an email at staci@ beadsofhope.com (remove the spaces) with what you would like. Let me know if you have any ideas on new things to design. I am putting together some line sheets to send out to retailers.



I love the challenge from others ideas. If you have any special words I can do that to.… Continue

Added by Staci Tubbs on October 29, 2008 at 9:48pm — 3 Comments

Debt after a loss

Hi everyone. My name is Colin and I joined PAC2 a couple of months ago. My son Dillon passed away April 18, 2008. I have a question for parents that might be in my shoes. Its a question that I have wondered about posting because it is a kind of how could that be what you are worried about question. I wanted to know what others might be doing about debt or have done about debt after the loss of a child. We were lucky in the fact that between my work's insurance and insurance we qualified for… Continue

Added by Colin Wilson on October 29, 2008 at 9:23pm — 4 Comments

"LET'S MAKE A DEAL & STOMP OUT CHILDHOOD CANCER

A FRIEND OF MINE JUST LOST HER 17 YR OLD SON ON 10-03-08 HIS NAME WAS BRENDAN KIZER HE WAS AN OUTRAGEOUS KID FULL OF LIFE BUT THE HORRIBLE HORRIBLE DISEASE TOOK HIS LIFE SOME HOW WE HAVE TO GET TOGETHER AND FIND A CURE FOR CHILDHOOD CANCER IF WE CAN SEND A MAN TO THE MOON WHY DO WE HAVE TO MAKE SO MANY CHILDREN SUFFER, HIS MOM ROBBIN IS LOST NOW WITHOUT HER SON & I AM SURE THERE ARE MANY OF OTHER FAMILIES JUST LIKE HERS SO LETS GET IN TOUCH WITH CONGRESS & FIND OUT WHY ARE WE NOT… Continue

Added by terry marques on October 29, 2008 at 2:00pm — 1 Comment

we need prayers

we got josh's mri report today........it was not good. the existing tumor has grew and there is what appears to be a second tumor.....i want josh to recieve the cpt 11 / avastin chemo treatments. have any of you used or on this treatment and if so please give me feedbck. thks

Added by pamela loyd on October 29, 2008 at 1:01am — 4 Comments

Matthew's Boundless Playground at Give Kids the World

On Saturday we returned from Grace's wish trip to Disneyworld. We had a wonderful time. The kids were particularly enamoured of The Give Kids the World Village where we stayed. With horseback riding, ice cream, swimming, and Santa... who needs Disney!!! We were told that Matthew's Boundless Playground, named for Rich M's son, was not yet open because of the construction all around it. Since I'm not so good at being told no, we went to check it out anyway. A nice man with a key let us in… Continue

Added by Rebekah on October 27, 2008 at 2:30pm — 1 Comment

New Childhood Cancer Awareness Jewelry

Hello Everyone.



I have been working hard and creating some pieces for Cure Search.



They are done. I have some of them listed on my site. Check it out and let me know what you think.



http://www.beadsofhope.com/catalog.php?item=157&catid=13&ret=catalog.php%3Fcategory%3D13





I am trying to get them into stores so if anyone knows any… Continue

Added by Staci Tubbs on October 27, 2008 at 1:49pm — 10 Comments

What a crazy world we live in!!!!

I really don't understand people. A while back Aimee and I were at Price Chopper picking up a few things. Aimee always uses the electric wheelchair so I can push the shopping cart. When we entered the store a man was selling newspapers and stopped me. Aimee went over to the produce to start getting what we needed. When I reached her, a women came up to me and told me I was a rotten Mother for allowing my child to play on something that was meant for disabled people. She wanted Aimee to give her… Continue

Added by Aimee Dickey on October 25, 2008 at 7:44am — 11 Comments

organizing a fundraiser walk/run

I am sure someone here can tell me, where does one start to organize a walk? I would love to organize one in my area, but honestly have no idea where to start. Any help would be greatly appreciated.

Added by Connie Strayer on October 24, 2008 at 11:25pm — 6 Comments

THE INCONVENIENT TRUTH

I just have to get this off my chest, that most people REALLY don't want to know what it's like to have a child with cancer. The truth is that they are deep down hoping you will say, Kate's doing good today, when they ask how she is. They don't REALLY want to know that waking her up to go to her biweekly doctors apt (an hour away) is one of the hardest parts. Knowing that when you walk into her room, you are going to wake her & take her to get "medicine" that will make her sick as hell,… Continue

Added by Mary Prokop on October 24, 2008 at 12:38pm — 4 Comments

Just bloggin

Dear Caitlyn, Did you know?



You are my sunshine, my only sunshine

You made me happy... when skies were gray

You'll never know dear, How much I love You..

Please don't take my sunshine away!



The other night, dear

As I lay sleeping

I dreamed I held you

In my arms

But when I woke up,

I was mistaken

Then I hung my head

and I… Continue

Added by vicki cotton on October 23, 2008 at 8:00pm — 3 Comments

article

http://www.ajc.com/opinion/content/opinion/stories/2008/10/23/scotted_1023.html



Pediatric cancer deserves more funds, higher profile

By LIZ SCOTT and JAY SCOTT



Thursday, October 23, 2008



When our daughter, Alexandra “Alex” Scott, was diagnosed with childhood cancer in 1996, we were as frightened as two young parents could be. Both under the age of 30, we were not only terrified by the realization that our daughter had a disease that could prove terminal,… Continue

Added by Jim on October 23, 2008 at 10:12am — 3 Comments

Check out this link posted today on MSN about the Pink Ribbon Phenomenon. Interesting...

http://www.msnbc.msn.com/id/27283197

Added by Claire Stopher on October 22, 2008 at 2:21pm — No Comments

Hello Everyone!!

Hi all,

We are so glad to be here helping fight this with you all. This is a busy time for us. I changed the boys pediatrician and he had ordered a boatload of labs, xrays, and stool cultures on the boys. Now he is sending them to GI specialist and today Noah is now going to go see my lung specialist for his lungs and possible sleep apnea. Since my van is broke down and I'm only using my ex's car I cant take us to our dermotogist for our skin checks in San Fransisco because his car only… Continue

Added by GinaMarie on October 22, 2008 at 11:04am — No Comments

Jessica Lives (introduction)

I posted this entry on Jessica's Caringbridge last week and wanted to share it here, as well.



Jessica Lives: Introduction…

Continue

Added by Heide Randall on October 22, 2008 at 9:30am — 3 Comments

Heaven got another warrior.

Michael Sparkman passed away today. Please pray for his family.

http://www.caringbridge.org/visit/michaelsparkman

Added by Jessica Greenfield on October 21, 2008 at 10:48pm — 2 Comments

Aimee's Walk was great!

The first annual Aimee Dickey walk for childhood cancer was to me a huge success. Aimee’s friend Lizzie who was very strong in getting Aimee’s Army going, with the help of her Mom Kim and another good friend Laura, came from Arizona to join Aimee in her walk. Next year Lizzie is going to have one in AZ at the same time we have ours here in PA. What a wonderful friend to have. Even though the weather was very cold and windy the turn out was great. About 200 people off and on all day came and… Continue

Added by Aimee Dickey on October 20, 2008 at 7:25am — 1 Comment

IN MEMORY OF MY LITTLE JIMMY

HELLO MY NAME IS JENNIFER I HAVE TWO KIDS MY DAUGHTER'S NAME IS JASMINE SHE IS SEVEN MY SONNAME IS JIMMY HE WILL BE FIVE IN DECEMBER 17TH.THE REASON I JOIN THIS WEBSITE IS BECAUSE MY SON JIMMY PASSED AWAY FROM (AML)LEUKIMA ON JULY 13TH 2007.HE HAD BEEN FIGHTING CANCER SINCE HE WAS 16 MONTHS OLD..EVER SINCE MY SON GAIN HIS ANGEL WINGS MY LIFE HAS CHANGE SO MUCH I JUST FELL SO LOST MOST OF THE TIME.I MISS HIM SO MUCH I REALLY DONT UNDERSTAND WHY THIS HAPPENS TO OUR CHILDREN..

Added by jennifer on October 18, 2008 at 11:52pm — 2 Comments

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