November 2008 Blog Posts (42)

Pediatric Brain Tumor Foundation

Chase and I had the opportunity to join in the effort to help raise money for the PBTF with the Raleigh radio staion G105 yesterday, Black Friday. We met all the people that are involved with the foundation including the founder Mike Traynor. What a neat guy and what a wonderful foundation. I can't say enough about what a great thing they do for helping to… Continue

Added by Judith Jones on November 29, 2008 at 10:09pm — 3 Comments

Dear Dub,

DEAR DUB,



ITS BEEN 3 MONTHS SINCE MOMMY HELD YOU, SLEPT WITH YOU, FELT YOU NEXT TO ME AND EVEN THOUGH ITS BEEN 3 MONTHS IT FEELS LIKE YESTERDAY. EVEN THOUGH MOMMY IS LIVING LIFE AND PLAYING WITH BABY JAH JAH, (DONT TELL HIM BUT SOMETIMES I ENVISION ITS YOU) IM THINKING OF YOU EVERY SECOND. EVERYTHING THAT HAPPENS AROUND ME REMINDS ME OF YOU. SO JUST IN CASE YOU WERE WONDERING, OR IF YOU SEE MOMMY SMILING, ITS PROBEBLY BECAUSE IM THINKING OF YOU.. YOUR BABY BROTHER IS THE ONLY THING… Continue

Added by Codi Dornan on November 28, 2008 at 9:28pm — 1 Comment

SHORT AND SWEET.....

I love this new site and as soon as I get time I will be blogging on here as well as adding some old writing and poetry that no-one had read before.... I loaded new pics and a video of my sweet angel and hope everyone can see can see how beautiful and special he is.... He truly is my inspiration and alot of other people who have grown to love him through his website and video's.. I will start off by saying what a wonderful I dea this website is and want to thank the creater of it, whoever they… Continue

Added by Codi Dornan on November 27, 2008 at 11:45pm — 2 Comments

Happy Thanksgiving all!!!

Happy Thanksgiving all, today I hope you all have a safe and happy thanksgiving. Please don’t take this day for granted and remember everything you do have to be thankful for and not upset for what you have not. I know a lot of you will be missing someone very close to you today, please note that my thoughts are prayers will be with you today and always. Aimee and I were given a total make over last night by AMPS hair salon, No matter how hard they tried they couldn’t make me look better then… Continue

Added by Aimee Dickey on November 27, 2008 at 9:40am — 1 Comment

17 Years

17 years ago today the greatest gift was given to me. A beautiful red

haired, blue-eyed girl. My heart soared. I have never and will never

again know such joy, as being her mom. Alecia filled my life with

pure, unconditional love-- and purpose. I excelled at being her mom.

I was good at it and I loved it and her like nothing else. Alecia's

dad and I were not married. We decided within the first year to

separate. He moved away. Leaving Alecia and I to be an awesome… Continue

Added by Jan Louder on November 27, 2008 at 8:37am — 6 Comments

Holidays? OH NO!

This Thursday will be Thanksgiving....It will also be Jason and Caitlyn's birthday. Caitlyn truly was a gift from God. A gift sent to Jason for his birthday!!! I'm so proud that God chose my son to be Caitlyn's daddy..He could not have chosen anyone who would have loved her more. I and her grandfather (Poppy) could not have been prouder to be her grand parents.

The school that Caitlyn went to (Cumberland Presbyterian) had a mini walk in her honor today.

They made a little banner and… Continue

Added by vicki cotton on November 24, 2008 at 9:24pm — 1 Comment

educational fun! and Santa!

my mother-in-law found this web site.

www.starfall.com

its for pre-k through 2nd graders, they can do it themselves. its alot of fun and its free! If you have young kids and they are not able to go to school or are stuck in the hospital, this will help ass the time......

also I found this website.

www.mailbysanta.com

this site isnt free but its still cool, your kids can get mail from santa caluse. its poasted from the north pole and everything...Just thought that i… Continue

Added by Tasha Yaksic on November 24, 2008 at 4:52pm — No Comments

Something Heartwarming to do this Holiday Season

I encourage everyone to go to www.hostanelf.com and read about "Elves from Catie". God called Catie home in January 2007. Jenny, her mom, was not sure how she was going to make if through her first Christmas without her and wanted to do something to honor her memory and spread joy. So she called HostanElf and "Elves from Catie" was launched. With only a couple of weeks to work with over 400 Elves were sent to the cancer untit at Scottish Rites and several thousand dollars donated to CURE. This… Continue

Added by Renee Smith on November 23, 2008 at 1:52pm — 1 Comment

the happiest angel...

Bentley's battle with the 'monster' is over... 3 months and 22 days... is over!

He now can smile, can laugh, can draw, can run, can tell silly jokes,again!
I believe he's having a great time seeing his great-grandparents, or playing with some new friends, like Mathew, AJ or Caitlan..

... but I missed him so much!

Added by Freda Tao on November 23, 2008 at 1:34pm — 49 Comments

who the heck is G's Dari?

The whole story is a long, beautiful one. Its full of lessons of love, faith, courage and friendship. Ill make this one short, so you can do all your PAC2 work. (PLEASE DO THE STUFF TO DO).



I must add that Gunner "superboy" Gillespie, www.gunnergillespie.com is, and will always be my superboy. you and me kiddo, you and me. I TOLD you we were gonna help more kids.





The short of it is, in the past I primarily volunteered with spectrum children(autism). I… Continue

Added by dari mcmanus on November 23, 2008 at 12:30pm — 5 Comments

Randy Owen/Braid my hair

Way to go Randy

you can listen to it here

http://musicremedy.com:80/r/Randy_Owen/videos/Braid_My_Hair-20546.html


Jim

Added by Jim Perry on November 21, 2008 at 7:55am — No Comments

Aimee played basketball

First off Aimee is feeling a little better. I think since she hasn't eaten in such a long time it will take her a while to regain her strength, but at least her feedings are going well even though she wants nothing more then to remove that as she states stupid tube from her nose!!!

Aimee was asked by her homebound teacher to play on the faculty team at a basketball game between the teachers and students, to raise funds for the Susan G Komen foundation called hoops for hope. Of course Aimee… Continue

Added by Aimee Dickey on November 21, 2008 at 6:00am — 3 Comments

All Clear

Yea, all is well Sam is clear his echo was perfect and his blood looks great.. He does not need to go back for a year. Thank you for all your well wishes we will continue to be here and check on our other warriors... Be well for now.
Best Kathryn

Added by Samuel Linnell on November 19, 2008 at 8:15am — 1 Comment

Check up tomorrow at dana farber

Please say a small prayer for sam he has a check up and echo tomorrow morning his dad is taking him. We seem to do much better if he goes for these routine check ups, Sam is not as nervous!!! I think it is more about him being mad at me for being there during treatment.

Added by Samuel Linnell on November 17, 2008 at 6:01pm — 1 Comment

A phone call from Nina's doctor

I wanted to share that I just got a phone call from Nina's oncologist saying that he could not believe it's been a year since she died. He actually remembered! Once when Nina was mad about having to take Decadron she wrote a list of the top ten reasons why she hated it and gave it to her doctor. He thought it was awesome and he told me today he still has it hanging beside the work station in the clinic and thinks of Nina whenever he sees it.

This brought tears to my eyes but also joy to my… Continue

Added by Stephanie Thompson on November 17, 2008 at 3:12pm — 3 Comments

Aimee is out of the hospital

Aimee was admitted to the hospital on November 11, due to an ear infection which was dripping down into her throat making it very difficult for her to swallow.

Since the tumor in her brain controls her swallowing it complicates things more so. Aimee was also having a hard time handling her own secretion which was just adding to the problem with the mucus. It all started last Wednesday November 5th when I decided to pull Aimee from school since I felt she was starting to get a cold, and… Continue

Added by Aimee Dickey on November 16, 2008 at 5:11am — 4 Comments

have to vent

Ok I have to vent as I am sure everyone will understand. I was searching the internet today looking for a new supplier for the gold ribbon charms that I use for the conquer kids cancer pendent and came across two sites promoting a Gold Ribbon for breast cancer awareness. URGH!!! They get enough attention without taking our color to. I nicely sent them an email informing them that Pink was for Breast Cancer and GOLD was for Childhood Cancer and could they please change it on their… Continue

Added by Staci Tubbs on November 15, 2008 at 3:28pm — 9 Comments

Friends of Jaclyn Foundation

For those of you out there who have children with pediatric brain tumors, there is a foundation specifically for your child. Please go to http://www.friendsofjaclyn.org/ and find out more about it and see if you would like your child involved. If you would, you can contact me, or, you can do so on the website. My son is now a part of this by way of the UNC Baseball team. Their outreach program this year is adopting a child by way of this foundation. It is unique program and very worthwhile.… Continue

Added by Judith Jones on November 15, 2008 at 9:00am — 2 Comments

Songs of Love...

Please check out my blog for Bentley's Song of Love! Even though it's me who provides all the infos... I like the song, it's so sweet to have a song about Bentley!



Bentlley is now in his 'sleeping mode' all the time, but there's times that he's 'awake', and I'm sure he can hear and sense us when we hold his hand or hug him... I think he like his song too... because he gave me a 'facial movement' when I ask him if he likes it... and I take it as a 'yes'!



Glad that he's… Continue

Added by Freda Tao on November 14, 2008 at 10:37pm — 2 Comments

Prayers needed..again

Well, the CT scan results are back and its not what we had hoped for,

the 3 lesions they were hoping would be gone are still there. There is

also a new one, a much larger one that has them concerned. His CRP is

almost 0, and all other indications of it being fungus as well show no

fungus.



They will be taking him in Monday for Pre-Op, and doing a biopsey of

these lesions on Tuesday.



They are also talking now about getting this cleared up, and… Continue

Added by Jim Perry on November 14, 2008 at 1:39pm — 13 Comments

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