Today was a good day. I sent a letter to congress to Support H.R. 2058: To improve and enhance research and programs on childhood cancer survivorship. I also donated 1500 grains of rice on freerice.com and joined PAC2, all after attending church this morning and Trinity Sunday festival with my family. Now just relaxing with my son watching a movie. Hope everyone had a great day!
Added by Cristina Andrade on May 26, 2013 at 11:29pm — No Comments
Although everyone in our Childhood Cancer group is trying to survive, this contest is not like the TV game show where everyone is reasonably healthy and one lucky person wins a million dollars if they are the lone survivor. Every day, 36 children randomly fall into the battle to survive cancer. In this survival contest, not everyone gets to go home, most that do survive will never be…Continue
Added by Joe Baber on April 20, 2013 at 6:00am — No Comments
This blog is in memory of Anjuli Jacobs, my little one who was killed by a brain stem glioma. She was 4. My heart will never heal.
In my blog I write about some of the latest and most promising childhood cancer research news. Just click on the 4th tab. My entries are short and in English (not so much medical-speak). Check out Feb. 2013 where I wrote about the most promising brain stem glioma research ever!
I'm trying to get my Senators Patty Murray and Maria Cantwell of WA…Continue
Added by Marcia Jacobs on April 7, 2013 at 4:58pm — No Comments
This is my blog about my son and childhood cancer awareness http://briansphirstblog.blogspot.com/2013/02/the-window.html
Added by Brian Jones on February 21, 2013 at 9:30pm — No Comments
Six years ago I read Lance Armstrong’s book, “It’s Not About The Bike”. As a father of four very athletic boys, we were always impressed with Armstrong’s accomplishments. And the story of his fight with cancer was very inspirational. He wrote of meeting kids with cancer, and being inspired by their determination. He said, “If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. We have two options, medically and emotionally:…Continue
Added by Kyle Alfriend on January 17, 2013 at 12:54pm — No Comments
We petition to: Light the White House gold for the month of September 2013 to honor pediatric cancer fighters and bring light to the cause. Signatures needed by February 06, 2013 to reach goal of 25,000 http://wh.gov/PkGX
Added by Theresa M. Collins on January 10, 2013 at 7:04am — No Comments
http://www.huffingtonpost.com/jay-scott/philadelphia-underdogs-th_b_2137378.htmlHow My Daughter Fought Cancer Like Rocky- http://www.huffingtonpost.com/jay-scott/philadelphia-underdogs-th_b_2137378.html via HuffingtonPost
Added by Jay Scott on November 19, 2012 at 4:34pm — No Comments
Our friends at Kids v Cancer are preparing a book for members of Congress thanking them for their efforts in passing the Creating Hope Act......
Dear Member of Congress,
For a couple years, my right shoulder really ached. It ached from throwing thousands of footballs to my 14 year old son, Alex John, AJ. Trying to lead him just right on deep post patterns, to keep up with his speed. And, after the last one every time, from catching the big lug as he ran and jumped into…Continue
The Day Her Spirit Lived.
The night grew dark as the snow muffled the world around me as I lay next to my beautiful 4 year old daughter. The smell of death permeated the air in the bedroom. Her breath was rough and forced, her skin was hot to the touch, her eyes where half closed, and her coloring was patchy with purple and pale pink. I knew this was her last night on this earth, so I stayed awake so not to miss the slightest movement…Continue
Added by Cristine Thomas on September 24, 2012 at 11:25am — No Comments
At the beginning of every school year, I compose a letter to Gregory's fellow classmates. I do it for two reasons. There are illnesses that we need to avoid and we are better able to treat with awareness. I need to know what is going around the classroom. I also feel the need to let the families know what kind of language and topics might be coming home with their kiddos. For posterity and informational purposes, I have decided to share this year's letter.
Added by Mindi Finch on September 6, 2012 at 7:52pm — No Comments
Posted this to my blog on the first of September and just realized I needed to share it here, too. Please feel free to share far and wide.
Today is Saturday, September 1, 2012. Today begins the fast and furious 30 days of National Childhood Cancer Awareness month in the United States.
We, the childhood cancer community, have been furiously preparing for these brief 30 days. During…
Added by Mindi Finch on September 6, 2012 at 7:48pm — No Comments
I have two blogs.
Thank you for reading!
Added by Piper Selden on September 5, 2012 at 3:22am — No Comments
I will soon have a webpage to garner collaboration for a nonprofit I am seeking to establish, called Healing Outdoors. Healing Outdoors will provide support for caregivers of hospitalized children, starting with pediatric cancer caregivers, because that is the world I know. My dream is to build this to a caregiver support model for every hospital in the US.
I learned about this Conscious Business Summit offering seed money to new business ideas, so I submitted an outline of the…Continue
Added by Erin Waterman on August 7, 2012 at 1:17pm — No Comments
By Alpha Bedoh Kamara
In the developed world, cancer is well researched and scientific solutions exploited to the fullest to respond to the needs of victims- while in developing nations, especially in Sub Sahara Africa, the disease continue to hit harder with thousands of people losing their lives.
According to Wikipedia, Cancer (medical term: malignant neoplasm) is a class of diseases in which a group of cells display uncontrolled growth, invasion that intrudes upon and destroys…
Added by Alpha Bedoh Kamara on May 8, 2012 at 4:08pm — No Comments
Managing Children’s Complex Health Care
By James Moran,Wednesday, March 14 2012 02:12:38 PM Falls Church News-Press http://bit.ly/Awv4k9
Rep. James Moran (D) ,Virginia's 8th Congressional District Representative in the U.S. House of Representatives., inrtroduced the Children's Program of All-inclusive, Coordinated Care (ChiPACC for short) to improve coordinated care are for seriously ill…Continue
My thoughts about the American Cancer Society
So this is written out of frustration and sadness. These are MY thoughts. If my view offends you, then I am sorry….I am speaking as an advocate for ALL our children. I DO CARE about every person affected by cancer, but our kids have no voice and sadly not many adults choose to speak on their behalf.
Recently there has…
CureSearch for Children’s Cancer can now be seen in the heart of Times Square on the CBS Super Screen located between 7th and 8th streets next to the Lowes movie complex.
The Foundation received the 26’x20’ viewing space to run an awareness ad and text campaign through the end of March, 2012. The ad features before cancer and during treatment photos of Cami Carver from Salt Lake City who was diagnosed with Acute Lymphoblastic Leukemia just 2 months shy…Continue
Added by Bonnie Douglas on February 6, 2012 at 9:52am — No Comments
two things happen. At least have for the past three years. AJ's birthday is coming up, and so is my shave. Last year they almost coincided, but the shave was on the eve of his 18th birthday. This year, it's about a week before. Still, they seem inexplicably connected somehow. Both are very emotional events. Each for its own reasons, of course.
What I will share is that day of the shave is a feeling without description (like so much of all this). Shaving your head…Continue
Added by AJs Dad on February 2, 2012 at 8:56pm — No Comments
I would like to share the responce I received from ACS, this was in reference to Mr. Becker refering to Childhood Cancer as being Exceedingly "Rare".
From: "American Cancer Society - Contact Us" span class="Object" id="OBJ_PREFIX_DWT30">firstname.lastname@example.org> To: email@example.com Sent: Wednesday, January 18, 2012 7:19:49 PM Subject: RE: Other
Added by Dan Feltwell on January 31, 2012 at 12:00pm — No Comments
The CureSearch website is now available in Spanish! The entire site is translated – from details about specific cancer types, diagnosis and treatment, information about research trials, information on coping with cancer, and how to get involved with CureSearch. Visit www.curesearch.org and click on Spanish in the upper right.
Added by Bonnie Douglas on January 30, 2012 at 8:30am — No Comments