Theresa M. Collins's Blog (15)

A question of Transparency

Childhood Cancer Advocates: Please take a moment to answer this one-question-survey https://www.surveymonkey.com/s/TM9MNTM Did you know…

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Added by Theresa M. Collins on December 16, 2014 at 7:30am — No Comments

We No Longer Can Stand Together

Gabriella Miller Kids First Research Act is a Trojan Horse, rushed to a vote by House Majority Leader Eric Cantor in December 2013 without any debate at the committee level. The most thorough Congressional record of questioning was only a "Dear Colleague Letter," in which the…

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Added by Theresa M. Collins on December 11, 2014 at 8:00am — No Comments

Children ≠ Numbers

An exceptionally informative "Press Conference on Childhood Cancer Awareness Month" was held during September 2013 in the Commonwealth of Pennsylvania. Listen for 30 minutes, watch and think, please! Awareness is the first step toward action. The video is…

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Added by Theresa M. Collins on September 26, 2013 at 10:30am — 1 Comment

Petition: Light the White House Gold for Pediatric Cancer Fighters (Sign by 2/6/2013 for September!)

We petition to: Light the White House gold for the month of September 2013 to honor pediatric cancer fighters and bring light to the cause. Signatures needed by February 06, 2013 to reach goal of 25,000 http://wh.gov/PkGX

WHY? In…

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Added by Theresa M. Collins on January 10, 2013 at 7:04am — No Comments

H.R.4147 - Children's Program of All-inclusive, Coordinated Care (ChiPACC Act)

Managing Children’s Complex Health Care

By James Moran,Wednesday, March 14 2012 02:12:38 PM Falls Church News-Press http://bit.ly/Awv4k9

Rep. James Moran (D) ,Virginia's 8th Congressional District Representative in the U.S. House of Representatives., inrtroduced the Children's Program of All-inclusive, Coordinated Care (ChiPACC for short) to improve coordinated care are for seriously ill…

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Added by Theresa M. Collins on March 15, 2012 at 9:00am — 1 Comment

Oprah Winfrey Ignored Childhood Cancer.

In  September 2010, there was a clever idea: if Facebook people could get Betty White to host Saturday Night Live, maybe they could get Oprah to do a show on childhood cancer during her final season.…



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Added by Theresa M. Collins on May 27, 2011 at 1:38pm — No Comments

May 2011 Update - Zac Attack (DIPG Awareness) & Toyota Sponsafy Your Ride/ NASCAR Contest

Thank you all for your tremendous support of Zac Attack (DIPG Awareness) in the the Toyota Sponsafier Winner. The news came to our attention today (5/20/2011) that Chelsea's Hope is the grand prize winner.

 

I am personally very proud of this choice and the team behind this cause. Like DIPG, Lafora Disease should happen to no…

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Added by Theresa M. Collins on May 2, 2011 at 10:30am — No Comments

DIPG Discussion with Annette McKeon on Internet Radio with Angelica Harris: 23 March 2011 @ 8pm EST

Annette McKeon will be on Internet Radio with Angelica Harris (Wednesday,March, 23) from 8:00-9:00 pm (EST).

Tune in for their discussion of…

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Added by Theresa M. Collins on March 22, 2011 at 2:32pm — No Comments

Contact DIPG Research Funders

Dear Friends, one and all:  It may be good to note our appreciation for some of those who have funded the research at Stanford Univ School of Medicine, and have helped bring along  thewonderful news in DIPG research of this week. Please join me in sending out thanks, by sending a message to the addresses and/or links below. Something as simple as this worked for me:

 

Thank you for support of research at  Stanford Univ. School of Medicine, which has led to the major discovery…

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Added by Theresa M. Collins on March 5, 2011 at 10:30am — No Comments

To: magazine@nytimes.com (about DIPG silence)

This morning I emailed this message to The New York Times, and invite every/anyone to do the same or similarly.



Please write about DIPG (Diffuse Intrinsic Pontine Glioma)



I’ve been tracking Google News all week, to see if there were any legs from a recent press release via St. Jude Children's Research Hospital about PDGFRA & DIPG (and research in the Journal of Clinical Oncology). There’s nothing to be found, not even in the New… Continue

Added by Theresa M. Collins on May 23, 2010 at 12:30pm — No Comments

New on You Tube: When I Get Where I'm Going [DIPG Boys]

On 19 May 2010, SmilesandGigglesx (i.e. Lindsey) launched a video tribute to more than five dozen boys: When I Get Where I'm Going [DIPG Boys]

http://www.youtube.com/watch?v=a-epbvMO5Hs



Her companion tribute, Why? [DIPG Angels: The Girls], was launched on March 12, 2010. It also presents more than five dozen children, adding "There's too many names here and even more not here. I hope there's a cure soon. xx"… Continue

Added by Theresa M. Collins on May 23, 2010 at 11:30am — No Comments

Max, the "Little Dude," the Lacewells & the Naperville Sun (Naperville, Illinois)

This week the Naperville Sun ran two thoughtful, illustrated articles about Max "Little Dude" Lacewell, as his family ran a garage-sale fundraiser which included Max's Lego's. Naperville is city with a total population of 128,358, and Max apparently touched everyone of its residents. The articles are indexed on Google News.





"Deals for 'Little Dude'" Naperville Sun by Susan Frick Carlman -18 May 2010…

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Added by Theresa M. Collins on May 23, 2010 at 11:30am — No Comments

Coalition Against Childhood Cancer

PAC2 is proud founding member of the Coalition Against Childhood Cancer!

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Alison Ingle is now a member of People Against Childhood Cancer
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