I wouldn't know what college kids do... I am a 44 year old mother of two, the oldest is 16 and she will be a 12-year survivor of ALL in Jan 2013... I am going back to school. It wasn't meant to rip on the government...but to prove a point. I chose the topic because it was Childhood Cancer Awarness month, I was interested in knowing more about the funding or lack of it...if anything, I opened the eyes of my classmates, with the exception of one.I learned a lot and that is the most important thing. I am there to get an education and in the process I was able to spread awareness. Mission accomplished.
I had to do a research paper for my COM/172 class and I chose to write about Childhood cancer research funding and I found the numbers on the NCI funding very interesting. I wanted to use them in my paper but they didn't match the numbers I found on the NCI funded research portfolio page, I have to cite my research material and I wanted to know where you got your numbers from. The ones you listed made a bigger statment than the ones I ended up using. I finished that class and recieved an A on my paper. I only had one classmate "attack" my paper, he said I was "ripping on the government." Anyway, I love what you do on PAC2. Thank you for responding to my message.
HeyAJ's father, Excusemylatereply ...havenotbeenin hereso often.It isalmost 3 yearsagoMandadiedand we arecoming back...:-)Butthe loss ofa childis always painfuland it's somethingyou carryyour whole lifeas a parent.We have receivedmuch support fromfamilyin LAand here inStockholm. What aboutyou /your family?
Thanks Bob. We really want to help over here at Route195.com and we're trying as hard as we can to get the word out to the community. Please let me know if there is anything i can do for you. Take care.
Thanks! I was at the childhood cancer awareness advocacy day in DC in March with Curesearch - came home to tell a friend all about the experience who sent me to your website. I look forward to learning more about Pac2!
i sent the following message through facebook. I guess you haven't had a chance to respond. Would you be available for a call early next week?
Beth Anne Baber November 20 at 8:43am
Would you be available for a call early this coming week? I want to share with you a project that I have on the table. It requires advocacy, research (scientfic literature), and a clinical editorial committee. The project is too big for TNCI to do it alone and we do not have the reach in the childhood cancer community that PAC2 does. The platform will be provided by a company in Northern California at a cost (I was told there is a donor interested in covering the majority of the initial cost). TNCI can handle the research end and a well known ped oncologist is interested in chairing the Editoral Board, as well as build out the the editorial committees. The patient advocacy piece is what is missing.
I just got an email saying from Congressman Israel's Health LA saying that he contacted Congressman Sestak's office asking to be added to the Caucus List. Let's hope that this keeps building momentum!
I visited my Congressman's office last month to lobby for funding for cancer research and I met with his health LA. I told him about the caucus that had just taken place and he was not aware of it. Since Congressman Steve Israel is the co-chair of the Congressional Cancer Caucus, I mentioned to Josh, the LA, that this was a glaring omission. I spoke with him again today and he would like the name of someone that the office can contact about this. I have forwarded him the information from the Caucus as well as the Petition. I am sure that he will sign it. Could you please let me know who he can contact?